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Mitoaction Inc

EIN 55-0899427 · Boston, MA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair63 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE.

Income
$416,574
Spending
$503,315
Spent on programs
74%
Reserves
7 months of spending
Largest source of income
donations and private grants, 57%
Employees
2
Highest pay
$111,765, ceo

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 63 out of 100. Higher than 23% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    28 of 35

    Spendable reserves would cover 7.0 months of spending.

  • Debt

    20 of 20

    It owes 2% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 21% of income.

  • Income trend

    0 of 15

    Income fell 45% on the year before.

  • Spending floor

    15 of 15

    74% of spending went to programs and raising each dollar of donations cost 22 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 91% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    8 of 9 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $297,107 spent. OUTREACH AND EDUCATION PROGRAMS - MITOACTION OFFERS OUTREACH AND EDUCATION PROGRAMS THAT ENHANCE UNDERSTANDING OF MITOCHONDRIAL DISEASE AND PROMOTE INFOMED CARE AND DECISION-MAKING FOR PATIENTS AND THEIR FAMILIES. THESE PROGRAMS INCLUDE A MONTHLY EDUCATIONAL WEBINAR SERIES FEATURING CLINICAL AND RESEARCH EXPERTS, WEEKLY SUPPORT CALLS, SCHOOL AND WORKLACE ADVOCACY RESOURCES, AND DISTRIBUTION OF NO-COST EDUCATION MATERIALS. MITOACTION ALSO CONDUCTS COMMUNITY AWARENESS ACTIVITIES, INCLUDING ANNUAL WALKS AND ENGAGEMENT EVENTS, TO INCREASE VISIBILITY AND KNOWLEDGE OF MITOCHONDRIAL DISEASE AMONG THE GENERAL AND MEDICAL COMMUNITIES.
  2. $37,678 spent. PATIENT & FAMILY SUPPPORT - MITOACTION PROVIDES FREE PRACTICAL SUPPORT SERVICES TO INDIVIDUALS AND CAREGIVERS AFFECTED BY MITOCHONDRIAL DISEASE, HELPING THEM NAVIGATE MEDICAL, EDUCATIONAL, AND DAILY LIVING CHALLENGES. KEY RESOURCES INCLUDE MITO411, A TOLL-FREE PEER SUPPORT HOTLINE; WEEKLY AND MONTHLY SUPPORT GROUPS; THE MONTHLY MITO EXPERT SERIES FEATURING CLINICIANS AND RESEARCHERS; AND ACCESS TO EDUCATIONAL MATERIALS, TOOLS, AND RESOURCES THROUGH THE MITOACTION WEBSITE. ADDITIONAL SUPPORT INCLUDES ONLINE DISCUSSION FORUMS, ON-DEMAND PODCASTS AND VIDEOS, AND FAMILY CONNECTION EVENTS. THESE SERVICES OFFER DIRECT GUIDANCE, CREDIBLE INFORMATION, AND ACCESSIBLE PEER SUPPORT.
  3. $37,677 spent. MITOACTION PROVIDES PROGRAMS THAT IMPROVE THE QULITY OF LIFE FOR CHILDREN AND FAMILIES AFFECTED BY MITOCHONDIAL DISEASE. THROUGH PARTNERSHIPS WITH CAMPS IN THE SERIOUSFUN CHILDREN'S NETWORK, THE MATTHEW HARTY CAMER FUND COVERS THE FULL COST FOR CHILDREN WITH MITOCHONDRIAL DISEASE TO ATTEND MEDICALLY SUPPORTED SUMER CAMPS. THE PROGRAM ALSO OFFERS ANNUAL SCHOLARSHIPS TO GRADUATING STUDENTS WHO HAVE BEEN AFFECTED BY MITOCHONDRIAL DISEASE OR ARE PURSUING STUDIES RELATED TO SPECIAL NEEDS POPULATIONS. ADDITIONALLY, THROUGH DELIA'S WISH, THE MITOACTION COLLABORATES WITH GIVE KIDS THE WORLD VILLAGE TO OFFER WISH TRIPS FOR ELIGIBLE CHILDREN AND THEIR FAMILIES.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since September 2005.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

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