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International Society of Amyliodosis

EIN 54-2153449 · Burnsville, MN

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood78 out of 100GovernanceStrong95 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

ISA is the leading global organization dedicated to engaging with scientists, healthcare providers, patients and other stakeholders to provide education, raise awareness and advance research and multidisciplinary clinical practice for all types of amyloidosis.

Income
$946,221
Spending
$616,862
Spent on programs
59%
Reserves
46.7 months of spending
Largest source of income
donations and private grants, 85%
Employees
0
Volunteers
127
Highest pay
$75,000, executive director

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 78 out of 100. Higher than 35% of charities in its peer group (medical research, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 46.7 months of spending.

  • Debt

    20 of 20

    It owes 9% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 35% of income.

  • Income trend

    0 of 15

    Income fell 59% on the year before.

  • Spending floor

    8 of 15

    59% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 95 out of 100. Higher than 88% of charities in its peer group (medical research, $250k to $1m).

  • Independent board

    25 of 25

    12 of 12 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $143,124 spent. Workshop:The Society organized a scientific workshop in 2025 to bring together leading experts, researchers, and clinicians in the field of amyloidosis to discuss cutting-edge advancements in diagnostics, treatment response assessment, screening approaches, and drug development. Manuscripts summarizing workshop results were prepared to submit to the journal Amyloid.
  2. $147,337 spent. Fellowships: ISA awards year-long clinical fellowships to institutions submitting top proposals. The Fellowship Program focuses on clinical training in all types of amyloidosis. ISA supported three fellowships in 2025.
  3. $41,498 spent. Journal:ISA provides editorial support for Amyloid, the leading journal for basic and clinical research on amyloids and systemic and localized amyloidosis.
  4. $33,543 spent. Virtual Case Discussions: ISA holds virtual 90-minute case discussions on a periodic basis, with the goals of increasing awareness of amyloidosis around the globe and showcasing how the latest diagnostic methods and treatment options can be applied to real-life cases.
  5. $697 spent. Symposium:The biennial International Symposium on Amyloidosis is the premier meeting to discover the latestadvancements, stay current on research, and network with clinicians in the amyloidosis field. These meetingsbring together physicians and scientists to share ideas and advance the science of amyloidosis and protein-folding diseases. Symposia are held in even-numbered years.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since January 2022.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.