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Personalized Medicine Coalition

EIN 54-2134884 · Washington, DC

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthWeak25 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE PERSONALIZED MEDICINE COALITION (PMC), REPRESENTING INNOVATORS, SCIENTISTS, PATIENTS, PROVIDERS AND PAYERS, PROMOTES THE UNDERSTANDING AND ADOPTION OF PERSONALIZED MEDICINE CONCEPTS, SERVICES AND PRODUCTS TO BENEFIT PATIENTS AND THE HEALTH SYSTEM.

Income
$2.1 million
Spending
$2.5 million
Spent on programs
62%
Reserves
1.4 months of spending
Largest source of income
fees for its services, 72%
Employees
8
Volunteers
21
Highest pay
$267,891, svp, public policy

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Weak: 25 out of 100. Higher than 2% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    10 of 35

    Spendable reserves would cover 1.4 months of spending.

  • Debt

    2 of 20

    It owes 78% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 21% of income.

  • Income trend

    5 of 15

    Income fell 25% on the year before.

  • Spending floor

    8 of 15

    62% of spending went to programs and raising each dollar of donations cost 33 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    25 of 25

    19 of 19 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $589,812 spent. PUBLIC AND SCIENCE POLICY (ADVOCACY): TO HELP FACILITATE THE DEVELOPMENT OF PERSONALIZED MEDICINE TESTS AND THERAPIES, PMC ENGAGES REGULATORS AND OTHER POLICYMAKERS TO ADVOCATE FOR CONTINUED INVESTMENTS IN BIOMEDICAL RESEARCH AS WELL AS MODERNIZED REGULATORY, COVERAGE AND PAYMENT POLICIES THAT SUPPORT ACCESS TO PERSONALIZED MEDICINE.
  2. $268,704 spent. EVIDENCE DEVELOPMENT: TO ENCOURAGE THE SWIFTER ADOPTION OF PERSONALIZED MEDICINE BY HEALTH CARE PROVIDERS, PMC HELPS BUILD THE EVIDENCE BASE NECESSARY TO DEMONSTRATE THE CLINICAL AND ECONOMIC VALUE OF PERSONALIZED MEDICINE.
  3. $723,678 spent. EDUCATION: TO RAISE THE PROFILE AND SCOPE OF PERSONALIZED MEDICINE, PMC PROACTIVELY EDUCATES DECISION-MAKERS ABOUT HOW THE FIELD CAN MAKE THE HEALTH SYSTEM MORE EFFECTIVE AND EFFICIENT BY TARGETING TREATMENTS TO ONLY THOSE PATIENTS WHO WILL BENEFIT.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 2004.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.