Parkinson Foundation of the National Capital Area
Public records show a registered, tax-exempt organization in good standing.
What it says it does
The Parkinson Foundation of the National Capital Area (PFNCA) improves the quality of life of those impacted by Parkinson's disease, their care partners and families, and fosters a sense of community to ensure that no one battles this disease alone. Full mission on Schedule O.
- Income
- $1.2 million
- Spending
- $722,306
- Spent on programs
- 74%
- Reserves
- 76.4 months of spending
- Largest source of income
- donations and private grants, 81%
- Employees
- 4
- Volunteers
- 50
- Highest pay
- $296,574, president/ceo
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 100 out of 100. Higher than 83% of charities in its peer group (diseases, $1m to $10m).
Reserves
35 of 35Spendable reserves would cover 76.4 months of spending.
Debt
20 of 20It owes 1% of what it owns.
Living within its means
15 of 15Income exceeded spending by 40% of income.
Income trend
15 of 15Income rose 38% on the year before.
Spending floor
15 of 1574% of spending went to programs and raising each dollar of donations cost 5 cents.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Good: 85 out of 100. Higher than 33% of charities in its peer group (diseases, $1m to $10m).
Independent board
25 of 2514 of 14 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $404,583 spent. Education programs & support: PFNCA provided extensive educational programing for families impacted by Parkinson's disease in Fiscal Year 2025. PFNCA produced its annual educational conference - the PFNCA Symposium. Developed by PFNCA's Medical Advisory Board, the event was held online June 28, 2025. Additional lectures were provided using an online view on demand format. Lectures included Translating what is in the news to living with Parkinson's today, Medical Management of PD, Surgical and non-invasive options, Alphabet of dysautonomia in PD: Autonomic dysfunction, Bladder problems, Constipation, Dizziness and Erectile dysfunction, Unusual behaviors in Parkinson's Disease, Atypical Parkinsonism, Treatment case studies, Benefits of Exercise, A Doctor of Osteopathy's Perspective on Parkinson's, (continued in Sch O) Urgency or Emergency, Overview of Parkinson's, Psychological Aspects of Chronic Disease Diagnosis, Parkinson's Medications A to Z, Sharing the News - considerations of sharing diagnosis with employer and family, Changes to Research Environment and Learning the Language of Parkinson's. The PFNCA Symposium included presentations by 19 physicians that specialize in Parkinson's (Movement Disorder Specialists) who represented Johns Hopkins University, Georgetown University, National Institutes of Health, George Washington University, the Cleveland Clinic, the University of Florida, Christiana Care, Inova and other practices. The organization's Walk Off Parkinson's program took place October 6, 2024, and included lectures from physicians, exercise demonstrations and question and answer sessions. Lecture topics at this program included Surgical Options: How Movement Disorder Specialists and Surgeons Collaborate to Support You, What's Next: Information for Those Newly Diagnosed or Just Now Focusing on Their Diagnosis, Overview of Parkinson's, and Benefits of Attending A Support Group. Many physicians attended the program allowing for attendees to ask questions in an informal setting. The program also included a ceremony where people who attended 50 or more PFNCA wellness classes in the previous year were honored. PFNCA also supported a network of more than 45 support groups for those impacted by Parkinson's. Additionally, PFNCA led several support groups designed for people newly diagnosed during FY25.
- $123,990 spent. Wellness classes/programs: A large part of PFNCA's service emphasizes allowing those diagnosed with Parkinson's disease to slow the negative aspects of how the disease makes them feel. Key components of this effort include movement (exercise, boxing, yoga and dance) and voice strengthening (communications club and choir) programs. During Fiscal Year 2025, PFNCA offered program sessions at no per session cost for people impacted by Parkinson's disease who reside in Washington, D.C., Maryland, Virginia and elsewhere. In FY25, more than 2,600 wellness class sessions were provided. Classes focused on various types of exercise (seated, high aerobic, boxing, dance, etc.) and maintaining communication skills. (continued in Sch O) Classes were provided online and in-person. PFNCA's wellness classes also encourage socialization to combat isolation that people with Parkinson's may experience.
- $5,258 spent. Public awareness: PFNCA works to raise awareness within our community about Parkinson's disease. The Foundation's e-newsletter - PD Info for You helps educate readers about the disease. PFNCA also produces print materials and maintains a website with educational resources. One popular aspect of the organization's website is the Parkinson's Scorecard, developed by PFNCA to share information to help people diagnosed with Parkinson's get a snapshot of their knowledge of considerations when living with the disease. PFNCA's Community Outreach Vehicle and mascot (AMP) attended several events in FY25 to raise awareness of living well with Parkinson's. (continued in Sch O) Additionally, PFNCA collaborated with the Ward 8 Health Council and Trinity University to share information about signs and symptoms of Parkinson's with traditionally underserved communities in Wards 5, 7 and 8 in Washington, D.C.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending June 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since November 2001.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
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