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The International Waldenstroms Macroglobulinemia Foundation Inc

EIN 54-1784426 · Chicago, IL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood85 out of 100GovernanceStrong95 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

MISSION OBJECTIVES: (A) OFFER SUPPORT AND ENCOURAGEMENT TO THE WALDENSTROM'S MACROGLOBULINEMIA COMMUNITY AND OTHERS WITH AN INTEREST IN THE DISEASE, (B) TO PROVIDE INFORMATION AND EDUCATIONAL PROGRAMS THAT ADDRESS PATIENTS AND CAREGIVERS' CONCERNS AND (C) TO PROVIDE AND SUPPORT RESEARCH LEADING TO BETTER TREATMENTS AND ULTIMATELY A CURE.

Income
$4.5 million
Spending
$5.5 million
Spent on programs
88%
Reserves
12.6 months of spending
Largest source of income
donations and private grants, 92%
Employees
11
Volunteers
221
Highest pay
$161,623, president/ceo

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 85 out of 100. Higher than 56% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 12.6 months of spending.

  • Debt

    20 of 20

    It owes 5% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 23% of income.

  • Income trend

    15 of 15

    Income rose 36% on the year before.

  • Spending floor

    15 of 15

    88% of spending went to programs and raising each dollar of donations cost 7 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 95 out of 100. Higher than 55% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    25 of 25

    15 of 15 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $2.9 million spent. PROVIDED 44 PAYMENTS TOWARDS 28 DIFFERENT GRANTS TO FURTHER RESEARCH IN WALDENSTROM'S MACROGLOBULINEMIA: TOWARD A RATIONAL TARGETED THERAPY, DIRECT TARGETING THE MYD88 L265P DRIVER MUTATION IN WM, ANTI-TUMOR AND IMMUNE MICROENVIRONMENT RESPONSES, CRISPR-BASED FUNCTIONAL CHARACTERIZATION OF WM CELLS, ORIGINS AND IMMUNOTHERAPY, FROM BIOLOGY TO TREATMENT, MODULATION OF T-CELL FUNCTION, NOVEL ANTIBODY-TARGETED INTERFERONS, SINGLE-CELL NEXT GENERATION, TARGETING THE TUMOR MICROENVIRONMENT AND CORAX IN LYMPHOMA.
  2. $338,713 spent. EDUCATIONAL FORUMS HOSTED A NATIONAL EDUCATIONAL FORUM FOR WALDENSTROM'S MACROGLOBULINEMIA PATIENTS AND PROVIDED A GRANT TO FUND PATIENT EDUCATIONAL FORUMS. THE 2024 EDUCATION FORUM GENERATED $237,956 IN GROSS RECEIPTS, INCLUDING $185,000 IN SPONSORSHIP CONTRIBUTIONS
  3. $66,489 spent. IWMF PUBLICATIONS SERVE TO EDUCATE AND SUPPORT PATIENTS AND CAREGIVERS. IWMF TORCH IS A QUARTERLY MAGAZINE WHICH COVERS THE LATEST INFORMATION ON WALDENSTROM'S MACROGLOBULINEMIA EDUCATION, RESEARCH, ACTIVITIES AND TREATMENTS.
  4. $1.5 million spent. OTHER PROGRAM SERVICES FOR INTERNATIONAL OUTREACH AND OTHER PROGRAM SERVICES FOR SUPPORT GROUPS.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since April 2002.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.