National Gaucher Foundation Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
RAISE FUNDS TO PROMOTE EDUCATION AND AWARENESS; MEET EVER-INCREASING NEEDS OF INDIVIDUALS WITH GAUCHER DISEASE AND THEIR FAMILIES.
- Income
- $391,582
- Spending
- $273,727
- Spent on programs
- 75%
- Reserves
- 35.1 months of spending
- Largest source of income
- donations and private grants, 93%
- Employees
- 1
- Volunteers
- 0
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 90 out of 100. Higher than 66% of charities in its peer group (diseases, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 35.1 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
15 of 15Income exceeded spending by 30% of income.
Income trend
5 of 15Income fell 16% on the year before.
Spending floor
15 of 1575% of spending went to programs and raising each dollar of donations cost 1 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Good: 89 out of 100. Higher than 71% of charities in its peer group (diseases, $250k to $1m).
Independent board
18 of 253 of 3 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Independent check of accounts
12 of 15Its accounts were reviewed or compiled by an independent accountant, but not audited.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (2)
- SUPPORT OF THE CARE PROGRAM, WHICH GRANTS FUNDS TO APPROXIMATELY 250 INDIVIDUALS, TO SUBSIDIZE, OR TO PURCHASE IN FULL, A HEALTH INSURANCE POLICY (PRIMARY, SECONDARY OR BOTH), TO WHICH THE PATIENT IS ENTITLED OR ELIGIBLE, BUT FOR WHICH THE PATIENT DOES NOT HAVE ADEQUATE PERSONAL RESOURCES TO ENROLL.
- $206,428 spent. EDUCATION AND AWARENESS INITIATIVES THROUGHOUT THE U.S. THE PROGRAM INCLUDES A WEBSITE WITH EXPANSIVE CONTENT THAT IS REGULARLY UPDATED, MONTHLY BLOG POSTS ON GAUCHER DISEASE FROM MEDICAL THOUGHT LEADERS, MONTHLY E-NEWSLETTERS, HUMAN INTEREST STORIES IN FILM, DIGITAL AND WRITTEN MATERIALS,AN ANNUAL EDUCATIONAL SYMPOSIUM FOR PATIENTS AND PHYSICIANS, A CARRIER SCREENING PROGRAM AS WELL AS SERVICES TO PATIENTS (WITH INFORMATION, SUPPORT,AND RESOURCES) TO HELP THEM ACHIEVE AND MAINTAIN THEIR OPTIMAL HEALTH.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since November 1984.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.