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Passes our checks

National Gaucher Foundation Inc

EIN 52-1350226 · Rockville, MD

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong90 out of 100GovernanceGood89 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

RAISE FUNDS TO PROMOTE EDUCATION AND AWARENESS; MEET EVER-INCREASING NEEDS OF INDIVIDUALS WITH GAUCHER DISEASE AND THEIR FAMILIES.

Income
$391,582
Spending
$273,727
Spent on programs
75%
Reserves
35.1 months of spending
Largest source of income
donations and private grants, 93%
Employees
1
Volunteers
0

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 90 out of 100. Higher than 66% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 35.1 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 30% of income.

  • Income trend

    5 of 15

    Income fell 16% on the year before.

  • Spending floor

    15 of 15

    75% of spending went to programs and raising each dollar of donations cost 1 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 89 out of 100. Higher than 71% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    18 of 25

    3 of 3 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    12 of 15

    Its accounts were reviewed or compiled by an independent accountant, but not audited.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. SUPPORT OF THE CARE PROGRAM, WHICH GRANTS FUNDS TO APPROXIMATELY 250 INDIVIDUALS, TO SUBSIDIZE, OR TO PURCHASE IN FULL, A HEALTH INSURANCE POLICY (PRIMARY, SECONDARY OR BOTH), TO WHICH THE PATIENT IS ENTITLED OR ELIGIBLE, BUT FOR WHICH THE PATIENT DOES NOT HAVE ADEQUATE PERSONAL RESOURCES TO ENROLL.
  2. $206,428 spent. EDUCATION AND AWARENESS INITIATIVES THROUGHOUT THE U.S. THE PROGRAM INCLUDES A WEBSITE WITH EXPANSIVE CONTENT THAT IS REGULARLY UPDATED, MONTHLY BLOG POSTS ON GAUCHER DISEASE FROM MEDICAL THOUGHT LEADERS, MONTHLY E-NEWSLETTERS, HUMAN INTEREST STORIES IN FILM, DIGITAL AND WRITTEN MATERIALS,AN ANNUAL EDUCATIONAL SYMPOSIUM FOR PATIENTS AND PHYSICIANS, A CARRIER SCREENING PROGRAM AS WELL AS SERVICES TO PATIENTS (WITH INFORMATION, SUPPORT,AND RESOURCES) TO HELP THEM ACHIEVE AND MAINTAIN THEIR OPTIMAL HEALTH.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since November 1984.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.