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Epilepsy Foundation of Delaware

EIN 51-6018401 · Newark, DE

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceGood88 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE EPILEPSY FOUNDATION LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY.

Income
$249,205
Spending
$239,267
Spent on programs
80%
Reserves
20.2 months of spending
Largest source of income
donations and private grants, 39%
Employees
4
Volunteers
28
Highest pay
$73,253, executive director

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 82% of charities in its peer group (diseases, under $250k).

  • Reserves

    35 of 35

    Spendable reserves would cover 20.2 months of spending.

  • Debt

    20 of 20

    It owes 14% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 4% of income.

  • Income trend

    15 of 15

    Income rose 2% on the year before.

  • Spending floor

    15 of 15

    80% of spending went to programs and raising each dollar of donations cost 20 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 88 out of 100. Higher than 79% of charities in its peer group (diseases, under $250k).

  • Independent board

    25 of 25

    13 of 13 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $190,842 spent. THE EPILEPSY FOUNDATION OF DELAWARE IS A PRIVATE, NON-PROFIT ORGANIZATION THAT PROVIDES PROGRAMS AND SERVICES TO INDIVIDUALS AND FAMILIES AFFECTED WITH EPILEPSY AND SEIZURE DISORDERS AND THE GENERAL COMMUNITY THROUGHOUT THE STATE OF DELAWARE. WE HAVE TWO GENERAL TYPES OF SERVICES WE PROVIDE: INFORMATION AND SUPPORT, AND TRAINING AND OUTREACH.INFORMATION AND SUPPORT-DIRECT SUPPORT FOR INDIVIDUALS WITH EPILEPSY OR WHO HAVE A LOVED ONE WITH EPILEPSY. WE HELP WITH QUESTIONS ABOUT MEDICATIONS, TRANSPORTATION, WORK, DISABILITY, ETC AND PROVIDE APPROPRIATE RESOURCES. OVER 122 SERVED IN THIS PROGRAM. -MEET AND GREET SUPPORT GROUPS ARE HELD TWICE PER MONTH (VIA ZOOM DURING COVID) AND HAVE 10-15 ATTENDEES EACH GROUP-PROJECT UPLIFT IS OUR OVER THE PHONE SKILL BASED PROGRAM FOR ADULTS WITH EPILEPSY. IT IS 8 WEEKS LONG AND COMBINES CBT (COGNITIVE BEHAVIORAL THERAPY) SKILLS WITH MINDFULNESS. WE CONDUCTED 2 COHORTS WITH AN AVERAGE OF 4 ATTENDEES (IT IS ONLY FOR SMALL GROUPS)-PACES IS ALSO AN OVER THE PHONE SMALL GROUP PROGRAM TEACHING PEOPLE WITH EPILEPSY SKILLS ON HOW TO MANAGE MEDICATIONS, TALK TO THEIR DOCTOR, AND LIVE THEIR BEST LIVES. WE ALSO CONDUCTED 1 COHORT WITH AN AVERAGE OF 4 ATTENDEES.-CDSMP IS OUR THIRD SELF MANAGEMENT PROGRAM. IT IS ALSO SMALL GROUP AND OVER THE PHONE/ZOOM. WE CONDUCTED 2 COHORTS WITH AN AVERAGE OF 4 ATTENDEES. TOPICS OF DISCUSSION VARY EACH WEEK FROM COMMUNICATING WITH YOUR DOCTOR TO HEALTHY LIVING TO RELAXATION TECHNIQUES.-DELAWARE EPILEPSY CONFERENCE-WE HAD 97 PARTICIPANTS REGISTER FOR THE CONFERENCE THIS YEAR. THE THEME WAS MENTAL HEALTH IN EPILEPSY.-TRANSPORTATION PROGRAM- AS OF FEBRUARY 2025, EFDE OFFERS A FREE TRANSPORTATION PROGRAM TO ALL ADULTS LIVING WITH EPILEPSY IN DELAWARE. THROUGH UBER HEALTH, WE HAVE PROVIDED 142 RIDES FROM FEBRUARY UNTIL JUNE 30, 2025. TRAINING AND OUTREACH-TEENS-THIS IS A SEIZURE FIRST AID AND AWARENESS PROGRAM FOR TEENS IN SCHOOL HEALTH CLASSES. WE TRAINED 221 TEENS.-SCHOOL PERSONNEL- WE TRAINED 80 SCHOOL PERSONNEL ON SEIZURE FIRST AID IN THE CLASSROOM. -LAW ENFORCEMENT-WE TRAINED 281 LOCAL LAW ENFORCEMENT RECRUITS ON HOW TO IDENTIFY AND PROPERLY PROVIDE AID TO INDIVIDUALS HAVING SEIZURES. VAL ALSO TRAINS LAW ENFORCEMENT OFFICIALS ON A NATIONAL LEVEL. MEDICAL/OTHER-WE TRAINED 155 MEDICAL PROFESSIONALS, CAMP COUNSELORS AND OTHERS WHO ASKED TO KNOW HOW TO HELP SOMEONE HAVING A SEIZURE.-SEIZURE FIRST AID-THIS IS A NATIONAL CERTIFICATION PROGRAM AND VAL AND LINDSAY ARE A CERTIFIED INSTRUCTOR ON THE NATIONAL LEVEL. WE HAVE ALSO PROVIDED LOCAL SEIZURE FIRST AID CERTIFICATION AND OFFERED THIS TO ALL THE GROUPS ABOVE. IN ADDITION TO THE NUMBERS ABOVE, WE HAVE CERTIFIED 242 DELAWAREANS IN SEIZURE FIRST AID.OUTREACH EVENTS- THROUGH COMMUNITY EVENTS, HEALTH FAIRS AND CONFERENCES, WE HAVE REACHED 660 FOLKS, SPREADING AWARENESS ABOUT EPILEPSY.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since December 1964.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.