Skip to the page content
Your donations
Passes our checks

Cure Gm1 Incorporated

EIN 47-3154419 · Albany, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood85 out of 100GovernanceStrong91 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

SEE SCHEDULE O.THE PURPOSE OF THE ORGANIZATION IS TO RAISE FUNDS FOR MEDICAL RESEARCH FOR A RARE DISEASE CALLED GM1 GANGLIOSIDOSIS THAT HAS NO CURE OR TREATMENT OTHER THAN COMFORT MEASURES AND SYMPTOM MANAGEMENT. PROMISING RESEARCH EXISTS, BUT LACKS FUNDING. THE ORGANIZATION HOPES TO UNIT FAMILIES OF THOSE WHO SUFFER FROM THIS DISEASE AND THEIR SUPPORTERS BY FUNDRAISING FOR A CURE.

Income
$341,216
Spending
$84,682
Spent on programs
75%
Reserves
Over 10 years of spending
Largest source of income
donations and private grants, 75%
Employees
4
Volunteers
0
Highest pay
$896, ceo

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 85 out of 100. Higher than 48% of charities in its peer group (medical research, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover more than ten years of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 75% of income.

  • Income trend

    0 of 15

    Income fell 36% on the year before.

  • Spending floor

    15 of 15

    75% of spending went to programs and raising each dollar of donations cost 1 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 91 out of 100. Higher than 77% of charities in its peer group (medical research, $250k to $1m).

  • Independent board

    25 of 25

    5 of 5 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $21,196 spent. CURE GM1 IS INVESTIGATING THE DEVELOPMENT OF NEW RESEARCH PROGRAMS. OUR CURRENT FOCUS IS THE INVESTIGATION OF AN ENZYME REPLACEMENT THERAPY (ERT). WHILE THERE HAVE BEEN GENE THERAPY AND SMALL MOLECULES TRIALS, THERE HAVE BEEN NO TRIALS FOR ERT.
  2. $21,196 spent. CURE GM1 HAS BEEN HARD AT WORK APPLYING FOR GRANTS TO WORK TOWARDS DIVERSIFYING OUR SOURCES OF FUNDING
  3. $21,196 spent. CURE GM1 WILL PRESENT TWO POSTERS AND ABSTRACT AT THE WORL SYMPOSIUM IN 2025. THE SUBJECTS OF THE POSTER ARE REAL-WORLD DATA ON GM1 AND DATA SHARING TO SUPPORT NATURAL HISTORY AND TO DEEPEN THE UNDERSTANDING OF GM1.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since April 2015.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.