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National Cmv Foundation Inc

EIN 47-2329330 · Tampa, FL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair66 out of 100GovernanceGood81 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

Our mission is to prevent pregnancy loss, childhood death, and disability due to congenital CMV. Our strategic goals are to: raise awareness through advocacy accelerate mission-driven research target education programs grow resources in support of the mission demonstrate commitment to diversity, equity and inclusion

Income
$346,360
Spending
$492,551
Spent on programs
54%
Reserves
6.9 months of spending
Largest source of income
donations and private grants, 99%
Employees
3
Volunteers
65

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 66 out of 100. Higher than 26% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    28 of 35

    Spendable reserves would cover 6.9 months of spending.

  • Debt

    20 of 20

    It owes 4% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 42% of income.

  • Income trend

    10 of 15

    Income fell 9% on the year before.

  • Spending floor

    8 of 15

    54% of spending went to programs and raising each dollar of donations cost 15 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 81 out of 100. Higher than 57% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    9 of 9 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    12 of 15

    Its accounts were reviewed or compiled by an independent accountant, but not audited.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $166,078 spent. Public Health Awareness: The National CMV Foundation creates and disseminates evidence-based health education on congenital CMV, including prevention strategies during pregnancy, modes of transmission, potential outcomes, newborn screening, treatment options, and relevant public health policies. Through diverse communication channels, such as web content, email marketing, social media, paid media, print materials, videos, toolkits, educational downloads, and continuing education activities, the Foundation reaches women of childbearing age, families, child care providers, and healthcare professionals nationwide.In 2024, the Foundations advocacy leadership contributed to the introduction of the Stop CMV Act, the first federally coordinated effort aiming to provide funding and incentives to increase screening of newborns for congenital cytomegalovirus.
  2. $99,547 spent. Community Building: Representatives of the National CMV Foundation hosted a variety of in-person and virtual events designed to strengthen community engagement, raise awareness, and expand advocacy for congenital CMV risk reduction. These gatherings included educational webinars, advocacy trainings, and fundraising events that united families, healthcare professionals, and partners nationwide, building connection, empowerment, and sustained support for those impacted by CMV.
  3. RESEARCH SUPPORT: The National CMV Foundation supports a range of research initiatives and efforts, including workshops and grants for young investigators and early-career researchers studying maternal or congenital CMV infection. Areas of focus include public health, epidemiology, diagnosis, treatment, outcomes, basic science, and vaccine development, all aligned with the Foundations mission to promote maternal and newborn health and reduce the incidence of congenital CMV in the United States. Representatives of the National CMV Foundation were also instrumental in securing the FY '24 inclusion of congenital CMV in the Department of Defenses Peer-Reviewed Medical Research Program, opening new opportunities for federally funded CMV research and innovation, totaling over $700,000.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since April 2015.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

  7. Could it be confused with another charity? Worth knowing.

    A much larger organization has a similar name: Elks National Foundation Inc (Chicago, IL), EIN 26-3718342. If that is the one you meant, check the EIN before giving.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.