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Heterotaxy Connection

EIN 46-5498856 · Eagle Mtn, UT

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthNot ratedToo small or too little detailGovernanceGood76 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

AT HETEROTAXY CONNECTION, OUR MISSION IS TO CREATE A WORLD WHERE INDIVIDUALS AND FAMILIES AFFECTED BY HETEROTAXY FIND THE SUPPORT, EDUCATION, AND EMPOWERMENT THEY NEED TO LIVE THEIR BEST LIVES. WE ARE DEDICATED TO MAKING A POSITIVE IMPACT IN THE LIVES OF THOSE TOUCHED BY THIS RARE CONGENITAL CONDITION. SUPPORTING FAMILIES AND INDIVIDUALS: WE ARE COMMITTED TO PROVIDING UNWAVERING SUPPORT AND A NURTURING COMMUNITY FOR FAMILIES AND INDIVIDUALS DEALING WITH HETEROTAXY. OUR GOAL IS TO BE A TRUSTED RESOURCE, OFFERING EMOTIONAL AND PRACTICAL SUPPORT THROUGHOUT THEIR JOURNEY. WE BELIEVE THAT NO ONE SHOULD FACE THIS CHALLENGE ALONE, AND WE STRIVE TO CREATE A STRONG, COMPASSIONATE NETWORK THAT FOSTERS UNDERSTANDING, CONNECTION, AND RESILIENCE. EDUCATING THROUGH MEDICAL CONFERENCES WITH EXPERTS: HETEROTAXY CONNECTION IS DEDICATED TO PROMOTING AWARENESS AND UNDERSTANDING OF HETEROTAXY AMONG THE MEDICAL COMMUNITY AND THE GENERAL PUBLIC. WE ORGANIZE AND PARTICIPATE IN MEDICAL CONFERENCES, BRINGING T

Income
$803,670
Spending
$19,040
Spent on programs
13%
Reserves
67.4 months of spending
Largest source of income
donations and private grants, 100%
Employees
0
Volunteers
8
Highest pay
$9,746, president &

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 76 out of 100. Higher than 50% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    5 of 6 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. $1,429 spent. HETEROTAXY CONNECTION HOSTED THE FIRST EVER MULTIDISCIPLINARY SCIENTIFIC CONFERENCE DEDICATED TO THE DIAGNOSIS AND TREATMENT OF HETEROTAXY. THE CONFERENCE WAS HELD IN CONJUNCTION WITH HRC3, WAS RECORDED, AND IS AVAILABLE TO SHARE WITH MEDICAL TEAMS WORLDWIDE. THE FIRST CONFERENCE WAS PRESENTED AT NO COST TO ATTENDEES AND FEATURED 17 FACULTY MEMBERS/PHYSICIANS, 6 PHYSICIANS/MEDICAL PROFESSIONALS, AND 3 PARENT/FAMILY PRESENTERS.
  2. $998 spent. HETEROTAXY CONNECTION PROVIDES PATIENT AND FAMILY SUPPORT TO THOSE AFFECTED BY HETEROTAXY. THE ORGANIZATION STRIVES TO CONNECT PATIENTS AND FAMILIES TO EDUCATE AND EMPOWER THEM. THE ORGANIZATION PROVIDES WELCOME BAGS TO FAMILIES WITH NEW DIAGNOSES, GET WELL GIFTS IN PARTNERSHIP WITH THE CLAIRE THE HEART WARRIOR FOUNDATION, AND BEREAVEMENT SUPPORT TO FAMILIES WHO HAVE LOST A LOVED ONE TO COMPLICATIONS FROM HETEROTAXY.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since September 2014.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.