Turner Syndrome Global Alliance
Public records show a registered, tax-exempt organization in good standing.
What it says it does
The mission, duty and purpose of the Turner Syndrome Global Alliance, Inc. is to connect science, resources, and funding to the Turner Syndrome community.
- Income
- $1,698
- Spending
- $19,494
- Reserves
- 16.7 months of spending
- Largest source of income
- donations and private grants, 100%
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $17,600 spent. TSGA continues to focus on funding research on Turner syndrome through the InsighTS Registry research. This is a collaborative project with a shared IRB working with clinic directors from multiple childrens hospitals across the country. In 2025, TSGA actively supported the recruitment of additional registry sites as well as shared patient friendly information to support patient recruitment. By the end of 2025, over 800 participants from 14 hospitals nationwide were enrolled, with additional hospitals onboarding to join the Registry. This year, the Registry has been highlighted in research abstracts and presented at professional conferences, and the Registry data is supporting multiple research initiatives. Results will be able to be quickly translated to care through the TSGA network of clinics, which TSGA continues to grow. In addition, TSGA funded summer research interns to support the InsighTS Registry with data confirmation and entry. Finally, TSGA supported an application to the NIH Rare Diseases Clinical Research Network (RDCRN) which was funded in the fall of 2025. This is an exciting collaborative effort that will change the future of care for all individuals with Turner syndrome.
- TSGA collaborates with a network of more than 40 Turner syndrome clinics and serves as a resource for information on developing clinic services. We also help clinicians connect with other specialists in their field who are working with girls and women with Turner syndrome and develop multi-institutional collaborations.
- $324 spent. TSGA maintains an active social media presence on Facebook that shares evidence-based information and resources to girls, women, and families living with Turner syndrome. This information has helped to dispel many of the preconceived notions of what life is like for those with Turner syndrome, providing hope to many families. We also maintain a website as a resource for information, especially for families with a new diagnosis.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since September 2014.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.