Necrotizing Enterocolitis Society
Public records show a registered, tax-exempt organization in good standing.
What it says it does
The NEC Society is a Clinician-Family collaborative organization specifically focused on the understanding, prevention and treatment of necrotizing enterocolitis.
- Income
- $494,499
- Spending
- $627,433
- Spent on programs
- 74%
- Reserves
- 15.2 months of spending
- Largest source of income
- donations and private grants, 87%
- Employees
- 5
- Volunteers
- 45
- Highest pay
- $81,338, executive director
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 85 out of 100. Higher than 70% of charities in its peer group (mental health, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 15.2 months of spending.
Debt
20 of 20It owes 14% of what it owns.
Living within its means
0 of 15Spending exceeded income by 27% of income.
Income trend
15 of 15Income rose 23% on the year before.
Spending floor
15 of 1574% of spending went to programs and raising each dollar of donations cost 20 cents.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Good: 85 out of 100. Higher than 73% of charities in its peer group (mental health, $250k to $1m).
Independent board
25 of 2518 of 18 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $310,558 spent. In 2025, the NEC Society distributed nearly 1000 resources to families and NICUs across the United States, presented the worlds largest conference on necrotizing enterocolitis, the NEC Symposium, which attracted nearly 250 participants, built and launched new resources for NICU families in partnership with the Childrens Hospitals Neonatal Consortium, spoke at educational conferences every month across the US and around the globe, and launched the NEC Glossary to empower our community with information to understand necrotizing enterocolitis.
- $149,592 spent. In 2025, the NEC Society helped the NEC Biorepository increase enrollment to 1,139 babies, launched the NEC Registry, expanded the NEC Research Incubator to 200 participants and hosted research roundtables, presented at the Pediatric Academic Socieities Meeting, contributed to several research publications and projects, and funded three research awards to attract and support clinicians and scientists studying NEC.
- $5,969 spent. In 2025, the NEC Society participated in the NICU Parent Networks Advocacy Day in Washington DC, the March of Dimes Advocacy Summit also in DC, continued engagement with the FDA to push for better treatment options for babies at risk of and affected by NEC, passed NEC Awareness Day Resolutions in New Jersey and South Carolina, held 22 awareness events across the US during Mays NEC Awareness Month, and launched our first-ever YOLO Run for a world without NEC to inspire more people to get involved in the NEC Societys work for babies and families.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since August 2014.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.