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The Brain Tumor Network Inc

EIN 46-3339186 · Ponte Vedra, FL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong93 out of 100GovernanceStrong92 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE BRAIN TUMOR NETWORK (BTN) IS DEDICATED TO PROVIDING COMPASSIONATE, PERSONALIZED NAVIGATION SERVICES TO BRAIN TUMOR PATIENTS AND CAREGIVERS. BTN ALSO ASSISTS PATIENTS IN FINDING CLINICAL TRIALS THAT MAY BE AN APPROPRIATE MATCH FOR THEM. BTN WAS LAUNCHED IN LATE 2014 BY THE SONTAG FOUNDATION IN RESPONSE TO UNMET NAVIGATION NEEDS IDENTIFIED BY INDIVIDUALS AND FAMILY MEMBERS OF THOSE DIAGNOSED WITH PRIMARY BRAIN TUMORS.

Income
$3.5 million
Spending
$3.2 million
Spent on programs
85%
Reserves
11.1 months of spending
Largest source of income
donations and private grants, 97%
Employees
26
Volunteers
0

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 93 out of 100. Higher than 72% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    28 of 35

    Spendable reserves would cover 11.1 months of spending.

  • Debt

    20 of 20

    It owes 3% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 10% of income.

  • Income trend

    15 of 15

    Income rose 329% on the year before.

  • Spending floor

    15 of 15

    85% of spending went to programs and raising each dollar of donations cost 3 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 92 out of 100. Higher than 48% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    25 of 25

    8 of 8 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $2.7 million spent. PATIENT NAVIGATION SERVICES ARE THE CORE PROGRAM OF THE BRAIN TUMOR NETWORK (BTN). WITH THE SCARCITY OF PERSONALIZED TREATMENT INFORMATION AVAILABLE TO INDIVIDUALS IN THE USA DIAGNOSED WITH PRIMARY BRAIN TUMORS, BTN PROVIDES IMPORTANT INFORMATIONAL/NAVIGATION SERVICES TO PATIENTS, CAREGIVERS, AND CARE PROVIDERS. OUR TEAM OF NURSE NAVIGATORS AND SOCIAL WORKERS RESPOND TO ONLINE REQUESTS AND TELEPHONE INQUIRIES TO MEET PATIENTS/FAMILIES WHEREVER THEY ARE IN THEIR BRAIN TUMOR TREATMENT JOURNEY, AND TO HELP THEM GATHER THE INFORMATION THEY NEED TO EXPLORE THEIR NEXT STEPS WITH THEIR HEALTHCARE PROVIDERS. BTN NAVIGATED 1,404 PATIENTS NATIONWIDE DURING 2025. SERVICES PROVIDED INCLUDE: CONDUCTING PERSONALIZED CLINICAL TRIAL SEARCHES, ASSISTANCE ASCERTAINING ELIGIBILITY FOR PARTICIPATION IN IDENTIFIED TRIALS, FACILITATING SECOND OPINIONS AND CONSULTATIONS, IDENTIFYING SPECIALTY PROVIDERS NEAR PATIENTS' HOME COMMUNITIES, AND OBTAINING AND REVIEWING PATIENT RECORDS. BTN DOES NOT PROVIDE MEDICAL ADVICE, BUT DOES PROVIDE PERSONALIZED TREATMENT-RELATED INFORMATION TO EQUIP PATIENTS AND FAMILY TO ENTER INTO DECISION-MAKING CONVERSATIONS WITH THEIR HEALTHCARE PROFESSIONALS.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 2014.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.