Relapsing Polychondritis Awareness and Support Foundation
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE RP FOUNDATION'S MISSION IS TO: (A) INCREASE AWARENESS ABOUT RELAPSING POLYCHONDRITIS; (B) PROVIDE SUPPORT (PRIMARILY THROUGH THE USE OF THE INTERNET, SOCIAL MEDIA, AND PATIENT ADVOCACY PROGRAMS) FOR THOSE WHO ARE AFFECTED BY RELAPSING POLYCHONDRITIS, SUPPORT RESEARCH TO ADVANCE A CURE FOR RELAPSING POLYCHONDRITIS; (C) PROMOTE QUALITY CARE FOR RELAPSING POLYCHONDRITIS PATIENTS; AND (D) ENGAGE IN SUCH OTHER ACTIVITIES IN CONNECTION THEREWITH THAT THE BOARD OF DIRECTORS MAY AUTHORIZE, IN ALL CASES SUBJECT TO THE PROVISION OF SECTION 501(C)(3) OF THE INTERNAL REVENU CODE OF 1986, AS AMENDED, OR THE CORRESPONDING PROVISIONS OF ANY SUBSEQUENT FEDERAL TAX LAW (THE "CODE").
- Income
- $693,706
- Spending
- $691,103
- Spent on programs
- 81%
- Reserves
- 12.9 months of spending
- Largest source of income
- donations and private grants, 98%
- Employees
- 2
- Highest pay
- $100,000, president
Source: Form 990 for the year ending March 31, 2026, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 82 out of 100. Higher than 49% of charities in its peer group (diseases, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 12.9 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
12 of 15Income exceeded spending by 0% of income.
Income trend
0 of 15Income fell 48% on the year before.
Spending floor
15 of 1581% of spending went to programs and raising each dollar of donations cost 4 cents.
Source: Form 990 for the year ending March 31, 2026, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Good: 85 out of 100. Higher than 66% of charities in its peer group (diseases, $250k to $1m).
Independent board
25 of 256 of 6 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending March 31, 2026, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (5)
- $54,766 spent. AWARENESS: THE RP FOUNDATION PARTNERED WITH MCLAREN TROPHY AMERICA DURING THE 2025- 2026 RACING SEASON TO SIGNIFICANTLY EXPAND AWARENESS AND SUPPORT FOR RP RESEARCH. RACE FOR RP BRANDING APPEARED ON EVERY MCLAREN TROPHY AMERICA RACE CAR THROUGHOUT THE SEASON, WHILE ON-SITE ACTIVATIONS AND PADDOCK ENGAGEMENT OPPORTUNITIES CONNECTED THOUSANDS OF FANS WITH THE FOUNDATION'S MISSION. THE PARTNERSHIP ALSO INTRODUCED THE "WIN A HOT LAP" FUNDRAISING CAMPAIGN, WHICH ENCOURAGED FAN PARTICIPATION THROUGH DONATIONS AND HELPED ATTRACT NEW SUPPORTERS. THE COLLABORATION GENERATED BOTH FUNDRAISING SUCCESS AND INCREASED VISIBILITY THROUGH CHARITY AUCTIONS HELD AT THE INDIANAPOLIS MOTOR SPEEDWAY AND THE MCLAREN TECHNOLOGY CENTRE IN WOKING, UNITED KINGDOM. TOGETHER, THESE EFFORTS BROADENED AWARENESS OF RP AND AUTOIMMUNE DISEASE RESEARCH, ENGAGED NEW AUDIENCES WITHIN THE MOTORSPORTS COMMUNITY, AND CONTRIBUTED TO ONE OF THE MOST IMPACTFUL YEARS IN RACE FOR RP'S HISTORY. THE PARTNERSHIP HAS CONTINUED INTO THE 2026 SEASON, WITH NEW AWARENESS INITIATIVES LAUNCHING AT SONOMA RACEWAY. THE 2025 WARRIOR WALK WAS A RECORD-BREAKING AWARENESS AND FUNDRAISING CAMPAIGN, RAISING MORE THAN 25,000 IN JUST TWO WEEKS AND ATTRACTING THE HIGHEST NUMBER OF FIRST-TIME DONORS IN THE PROGRAM'S HISTORY. PARTICIPANTS ACROSS THE COUNTRY WALKED, RAN, AND ENGAGED THEIR COMMUNITIES TO INCREASE AWARENESS OF RELAPSING POLYCHONDRITIS (RP) AND SUPPORT CRITICAL RESEARCH EFFORTS. A HIGHLIGHT OF THE CAMPAIGN TOOK PLACE AT THE INDIANAPOLIS MOTOR SPEEDWAY, WHERE DRIVERS, CREW MEMBERS, AND FANS ATTENDING A MCLAREN TROPHY AMERICA EVENT JOINED TOGETHER TO WALK A LAP AROUND THE ICONIC TRACK. THIS UNIQUE EVENT INTRODUCED RP AWARENESS TO A NEW AUDIENCE AND DEMONSTRATED THE GROWING REACH AND ENGAGEMENT OF THE FOUNDATION'S AWARENESS INITIATIVES. AWARENESS: THE RP FOUNDATION PARTNERED WITH MCLAREN TROPHY AMERICA DURING THE 2025- 2026 RACING SEASON TO SIGNIFICANTLY EXPAND AWARENESS AND SUPPORT FOR RP RESEARCH. RACE FOR RP BRANDING APPEARED ON EVERY MCLAREN TROPHY AMERICA RACE CAR THROUGHOUT THE SEASON, WHILE ON-SITE ACTIVATIONS AND PADDOCK ENGAGEMENT OPPORTUNITIES CONNECTED THOUSANDS OF FANS WITH THE FOUNDATION'S MISSION. THE PARTNERSHIP ALSO INTRODUCED THE "WIN A HOT LAP" FUNDRAISING CAMPAIGN, WHICH ENCOURAGED FAN PARTICIPATION THROUGH DONATIONS AND HELPED ATTRACT NEW SUPPORTERS. THE COLLABORATION GENERATED BOTH FUNDRAISING SUCCESS AND INCREASED VISIBILITY THROUGH CHARITY AUCTIONS HELD AT THE INDIANAPOLIS MOTOR SPEEDWAY AND THE MCLAREN TECHNOLOGY CENTRE IN WOKING, UNITED KINGDOM. TOGETHER, THESE EFFORTS BROADENED AWARENESS OF RP AND AUTOIMMUNE DISEASE RESEARCH, ENGAGED NEW AUDIENCES WITHIN THE MOTORSPORTS COMMUNITY, AND CONTRIBUTED TO ONE OF THE MOST IMPACTFUL YEARS IN RACE FOR RP'S HISTORY. THE PARTNERSHIP HAS CONTINUED INTO THE 2026 SEASON, WITH NEW AWARENESS INITIATIVES LAUNCHING AT SONOMA RACEWAY. THE 2025 WARRIOR WALK WAS A RECORD-BREAKING AWARENESS AND FUNDRAISING CAMPAIGN, RAISING MORE THAN 25,000 IN JUST TWO WEEKS AND ATTRACTING THE HIGHEST NUMBER OF FIRST-TIME DONORS IN THE PROGRAM'S HISTORY. PARTICIPANTS ACROSS THE COUNTRY WALKED, RAN, AND ENGAGED THEIR COMMUNITIES TO INCREASE AWARENESS OF RELAPSING POLYCHONDRITIS (RP) AND SUPPORT CRITICAL RESEARCH EFFORTS. A HIGHLIGHT OF THE CAMPAIGN TOOK PLACE AT THE INDIANAPOLIS MOTOR SPEEDWAY, WHERE DRIVERS, CREW MEMBERS, AND FANS ATTENDING A MCLAREN TROPHY AMERICA EVENT JOINED TOGETHER TO WALK A LAP AROUND THE ICONIC TRACK. THIS UNIQUE EVENT INTRODUCED RP AWARENESS TO A NEW AUDIENCE AND DEMONSTRATED THE GROWING REACH AND ENGAGEMENT OF THE FOUNDATION'S AWARENESS INITIATIVES.
- $479,342 spent. RESEARCH: THE RP FOUNDATION'S INVESTMENTS IN RP AND RELATED AUTOIMMUNE DISEASE RESEARCH ACCELERATED SIGNIFICANT PROGRESS IN FY26, ADVANCING UNDERSTANDING OF DISEASE BIOLOGY, CLINICAL OUTCOMES, AND TREATMENT WHILE EXPANDING ACCESS TO SPECIALIZED CARE. THROUGH FOUNDATION SUPPORT, THE PENN RP PROGRAM, NOW AMONG THE LARGEST CENTERS IN THE WORLD DEDICATED TO RP RESEARCH AND CARE, SERVED MORE THAN 150 PATIENTS AND ENROLLED NEARLY ALL ELIGIBLE PATIENTS INTO THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) LONGITUDINAL STUDY, CREATING AN UNPARALLELED CLINICAL AND BIOSPECIMEN REPOSITORY FOR ONGOING SCIENTIFIC DISCOVERY. A MAJOR MILESTONE WAS THE LAUNCH OF PROSPECT-RP, THE FIRST-EVER CLINICAL TRIAL FOR RELAPSING POLYCHONDRITIS. THE STUDY EVALUATES TWO PROMISING IMMUNOMODULATORY THERAPIES IDENTIFIED THROUGH LONGITUDINAL COHORT RESEARCH AND IS GENERATING CRITICAL DATA ON TREATMENT EFFECTIVENESS WHILE HELPING ESTABLISH CLINICAL TRIAL METHODOLOGIES FOR FUTURE RP STUDIES. RESEARCHERS ARE ALSO COMPARING MULTIPLE DISEASE ACTIVITY MEASUREMENT TOOLS, INCLUDING THE RP DISEASE ACTIVITY INDEX (RPDAI), TO DETERMINE THE MOST EFFECTIVE WAY TO ASSESS DISEASE ACTIVITY IN FUTURE THERAPEUTIC TRIALS. THE PROGRAM FURTHER EXPANDED THE RADAR IMMUNE-PROFILING STUDY TO MORE THAN 400 PATIENT SAMPLES COLLECTED ACROSS MULTIPLE TIME POINTS, CREATING A UNIQUE RESOURCE FOR IDENTIFYING DISEASE BIOMARKERS AND THERAPEUTIC TARGETS THAT MAY ULTIMATELY SUPPORT PRECISION MEDICINE APPROACHES FOR RP. THE FOUNDATION ALSO HELPED STRENGTHEN NATIONAL AND INTERNATIONAL RESEARCH COLLABORATIONS, INCLUDING ONGOING PARTNERSHIP WITH THE NATIONAL INSTITUTES OF HEALTH AND NEW COLLABORATIONS WITH LEADING RHEUMATOLOGY RESEARCHERS IN BEIJING, CHINA, TO EXPAND PARTICIPATION IN BOTH THE LONGITUDINAL STUDY AND PROSPECT-RP. IN ADDITION, SUPPORT FOR EMERGING INVESTIGATORS HELPED BUILD FUTURE RP RESEARCH CAPACITY. SCIENTIFIC FINDINGS FROM FOUNDATION-SUPPORTED RESEARCH CONTINUED TO GAIN INTERNATIONAL RECOGNITION, INCLUDING STUDIES PRESENTED AT A MAJOR INTERNATIONAL VASCULITIS CONFERENCE EXAMINING OCULAR INVOLVEMENT AS A PREDICTOR OF DISEASE PROGRESSION AND EVALUATING THE PERFORMANCE OF THE RP DISEASE ACTIVITY INDEX IN MEASURING PATIENT DISEASE ACTIVITY. THE YEAR ALSO MARKED THE SUCCESSFUL LAUNCH OF THE FIRST PENN RP CENTER PATIENT EDUCATION MEETING, WHICH BROUGHT TOGETHER MORE THAN 150 PATIENTS, CAREGIVERS, AND CLINICIANS TO ADVANCE EDUCATION, ENGAGEMENT, AND COMMUNITY BUILDING. THE PURPOSE BIOBANK AND DATA REPOSITORY AT THE ALLEGHENY HEALTH NETWORK AUTOIMMUNITY INSTITUTE CONTINUED TO GROW IN AY26, ENROLLING A TOTAL OF 120 PARTICIPANTS FROM 24 STATES AND PUERTO RICO, INCLUDING 73 PATIENTS WITH RP. SINCE IT LAUNCHED IN 2024, THE AHN PURPOSE BIOBANK HAS BANKED 99 BLOOD SPECIMENS, WHICH ARE BEING STORED FOR FUTURE RP AND RELATED AUTOIMMUNE DISEASE RESEARCH. RESEARCH: THE RP FOUNDATION'S INVESTMENTS IN RP AND RELATED AUTOIMMUNE DISEASE RESEARCH ACCELERATED SIGNIFICANT PROGRESS IN FY26, ADVANCING UNDERSTANDING OF DISEASE BIOLOGY, CLINICAL OUTCOMES, AND TREATMENT WHILE EXPANDING ACCESS TO SPECIALIZED CARE. THROUGH FOUNDATION SUPPORT, THE PENN RP PROGRAM, NOW AMONG THE LARGEST CENTERS IN THE WORLD DEDICATED TO RP RESEARCH AND CARE, SERVED MORE THAN 150 PATIENTS AND ENROLLED NEARLY ALL ELIGIBLE PATIENTS INTO THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) LONGITUDINAL STUDY, CREATING AN UNPARALLELED CLINICAL AND BIOSPECIMEN REPOSITORY FOR ONGOING SCIENTIFIC DISCOVERY. A MAJOR MILESTONE WAS THE LAUNCH OF PROSPECT-RP, THE FIRST-EVER CLINICAL TRIAL FOR RELAPSING POLYCHONDRITIS. THE STUDY EVALUATES TWO PROMISING IMMUNOMODULATORY THERAPIES IDENTIFIED THROUGH LONGITUDINAL COHORT RESEARCH AND IS GENERATING CRITICAL DATA ON TREATMENT EFFECTIVENESS WHILE HELPING ESTABLISH CLINICAL TRIAL METHODOLOGIES FOR FUTURE RP STUDIES. RESEARCHERS ARE ALSO COMPARING MULTIPLE DISEASE ACTIVITY MEASUREMENT TOOLS, INCLUDING THE RP DISEASE ACTIVITY INDEX (RPDAI), TO DETERMINE THE MOST EFFECTIVE WAY TO ASSESS DISEASE ACTIVITY IN FUTURE THERAPEUTIC TRIALS. THE PROGRAM FURTHER EXPANDED THE RADAR IMMUNE-PROFILING STUDY TO MORE THAN 400 PATIENT SAMPLES COLLECTED ACROSS MULTIPLE TIME POINTS, CREATING A UNIQUE RESOURCE FOR IDENTIFYING DISEASE BIOMARKERS AND THERAPEUTIC TARGETS THAT MAY ULTIMATELY SUPPORT PRECISION MEDICINE APPROACHES FOR RP. THE FOUNDATION ALSO HELPED STRENGTHEN NATIONAL AND INTERNATIONAL RESEARCH COLLABORATIONS, INCLUDING ONGOING PARTNERSHIP WITH THE NATIONAL INSTITUTES OF HEALTH AND NEW COLLABORATIONS WITH LEADING RHEUMATOLOGY RESEARCHERS IN BEIJING, CHINA, TO EXPAND PARTICIPATION IN BOTH THE LONGITUDINAL STUDY AND PROSPECT-RP. IN ADDITION, SUPPORT FOR EMERGING INVESTIGATORS HELPED BUILD FUTURE RP RESEARCH CAPACITY. SCIENTIFIC FINDINGS FROM FOUNDATION-SUPPORTED RESEARCH CONTINUED TO GAIN INTERNATIONAL RECOGNITION, INCLUDING STUDIES PRESENTED AT A MAJOR INTERNATIONAL VASCULITIS CONFERENCE EXAMINING OCULAR INVOLVEMENT AS A PREDICTOR OF DISEASE PROGRESSION AND EVALUATING THE PERFORMANCE OF THE RP DISEASE ACTIVITY INDEX IN MEASURING PATIENT DISEASE ACTIVITY. THE YEAR ALSO MARKED THE SUCCESSFUL LAUNCH OF THE FIRST PENN RP CENTER PATIENT EDUCATION MEETING, WHICH BROUGHT TOGETHER MORE THAN 150 PATIENTS, CAREGIVERS, AND CLINICIANS TO ADVANCE EDUCATION, ENGAGEMENT, AND COMMUNITY BUILDING. THE PURPOSE BIOBANK AND DATA REPOSITORY AT THE ALLEGHENY HEALTH NETWORK AUTOIMMUNITY INSTITUTE CONTINUED TO GROW IN AY26, ENROLLING A TOTAL OF 120 PARTICIPANTS FROM 24 STATES AND PUERTO RICO, INCLUDING 73 PATIENTS WITH RP. SINCE IT LAUNCHED IN 2024, THE AHN PURPOSE BIOBANK HAS BANKED 99 BLOOD SPECIMENS, WHICH ARE BEING STORED FOR FUTURE RP AND RELATED AUTOIMMUNE DISEASE RESEARCH.
- $26,656 spent. EDUCATION: IN FY26, FOUNDATION-SUPPORTED RESEARCH GAINED INTERNATIONAL VISIBILITY THROUGH PRESENTATIONS AT A MAJOR INTERNATIONAL VASCULITIS CONFERENCE. STUDIES PRESENTED BY PENN INVESTIGATORS EXPLORED THE IMPLICATIONS OF OCULAR INVOLVEMENT FOR DISEASE PROGRESSION IN RP AND EVALUATED THE RP DISEASE ACTIVITY INDEX AS A TOOL FOR MEASURING PATIENT DISEASE ACTIVITY. THE FOUNDATION ALSO PRODUCED TESTIMONIAL VIDEOS FEATURING NEWLY DIAGNOSED PATIENTS, HELPING EDUCATE THE RP COMMUNITY AND RAISE AWARENESS OF THE CHALLENGES AND EXPERIENCES ASSOCIATED WITH THE DISEASE.
- FUNDRAISING IN FY26, THE RELAPSING POLYCHONDRITIS (RP) FOUNDATION, A GUIDESTAR PLATINUM SEAL OF TRANSPARENCY NONPROFIT ORGANIZATION, FURTHERED ITS COMMITMENT TO ADVANCING RP AND RELATED AUTOIMMUNE DISEASE RESEARCH THROUGH A SERIES OF INNOVATIVE FUNDRAISING INITIATIVES. FUNDS RAISED THROUGH THESE EFFORTS DIRECTLY SUPPORT RESEARCH PROGRAMS THAT ARE EXPANDING SCIENTIFIC UNDERSTANDING OF RP, ACCELERATING THERAPEUTIC DEVELOPMENT, AND IMPROVING OUTCOMES FOR PATIENTS. HIGHLIGHTS OF FY26 FUNDRAISING ACTIVITIES INCLUDE: "GIVING TUESDAY AND YEAR-END GIVING CAMPAIGNS: ANNUAL FUNDRAISING APPEALS THAT HELPED GROW ENGAGEMENT, CONNECT SUPPORTERS, AND GENERATE CRITICAL FUNDING FOR RP RESEARCH. "RP WARRIOR 5K WALK: A GLOBAL, PATIENT-CENTERED AWARENESS AND FUNDRAISING EVENT THAT MOBILIZED INDIVIDUALS AND FAMILIES TO SUPPORT VITAL RP RESEARCH AND ADVOCACY EFFORTS. "CARB NIGHT HAPPY HOUR WITH JAMES HINCHCLIFFE AND FRIENDS: HELD IN CONJUNCTION WITH INDIANAPOLIS RACE FESTIVITIES, THIS UNIQUE EVENT BROUGHT TOGETHER MOTORSPORTS DRIVERS, SUPPORTERS, AND COMMUNITY MEMBERS FOR AN EVENING FEATURING EXCLUSIVE AUCTION ITEMS AND SELECTIONS FROM ROOT & BONE'S AWARD-WINNING MENU. PROCEEDS BENEFITED BOTH THE RP FOUNDATION AND THE STOP & GO FOUNDATION. "RACE FOR RP "HOT LAP" FUNDRAISING CAMPAIGN: OFFERED AT EACH MCLAREN TROPHY AMERICA EVENT, THIS INITIATIVE INVITED FANS TO DONATE FOR A CHANCE TO WIN AN UNFORGETTABLE HOT-LAP EXPERIENCE IN MCLAREN RACE CARS, EXPANDING AWARENESS WHILE ENGAGING NEW SUPPORTERS. "END-OF-SEASON RACING FUNDRAISERS: SPECIAL FUNDRAISING EVENTS HELD AT THE MCLAREN TROPHY AMERICA SEASON FINALE AND AT MCLAREN'S HEADQUARTERS IN WOKING, UNITED KINGDOM, RAISED FUNDS FOR RP RESEARCH AND INCREASED INTERNATIONAL AWARENESS OF THE DISEASE. "PRAGUE FOR PROGRESS: RUNNING FOR JANE AND RELAPSING POLYCHONDRITIS RESEARCH: ORGANIZED BY A SON WHOSE MOTHER PASSED AWAY FROM RP, THIS GRASSROOTS FUNDRAISING EFFORT BROUGHT TOGETHER NINE RUNNERS WHO PARTICIPATED IN THE RUNCZECH PRAGUE MARATHON TO RAISE FUNDS FOR THE RP FOUNDATION AND THE WREN PROJECT, HELPING ADVANCE RP RESEARCH AND AWARENESS. "MEDAWAR FINE JEWELERS' "SIP, SHOP & SUPPORT" EVENT: THIS FUNDRAISING EVENT FEATURED GOURMET APPETIZERS AND FINE JEWELRY, WITH A PORTION OF PROCEEDS BENEFITING THE RP FOUNDATION'S EFFORTS TO ADVANCE RESEARCH AND INCREASE AWARENESS OF RP.
- FUNDRAISING IN FY26, THE RELAPSING POLYCHONDRITIS (RP) FOUNDATION, A GUIDESTAR PLATINUM SEAL OF TRANSPARENCY NONPROFIT ORGANIZATION, FURTHERED ITS COMMITMENT TO ADVANCING RP AND RELATED AUTOIMMUNE DISEASE RESEARCH THROUGH A SERIES OF INNOVATIVE FUNDRAISING INITIATIVES. FUNDS RAISED THROUGH THESE EFFORTS DIRECTLY SUPPORT RESEARCH PROGRAMS THAT ARE EXPANDING SCIENTIFIC UNDERSTANDING OF RP, ACCELERATING THERAPEUTIC DEVELOPMENT, AND IMPROVING OUTCOMES FOR PATIENTS. HIGHLIGHTS OF FY26 FUNDRAISING ACTIVITIES INCLUDE: "GIVING TUESDAY AND YEAR-END GIVING CAMPAIGNS: ANNUAL FUNDRAISING APPEALS THAT HELPED GROW ENGAGEMENT, CONNECT SUPPORTERS, AND GENERATE CRITICAL FUNDING FOR RP RESEARCH. "RP WARRIOR 5K WALK: A GLOBAL, PATIENT-CENTERED AWARENESS AND FUNDRAISING EVENT THAT MOBILIZED INDIVIDUALS AND FAMILIES TO SUPPORT VITAL RP RESEARCH AND ADVOCACY EFFORTS. "CARB NIGHT HAPPY HOUR WITH JAMES HINCHCLIFFE AND FRIENDS: HELD IN CONJUNCTION WITH INDIANAPOLIS RACE FESTIVITIES, THIS UNIQUE EVENT BROUGHT TOGETHER MOTORSPORTS DRIVERS, SUPPORTERS, AND COMMUNITY MEMBERS FOR AN EVENING FEATURING EXCLUSIVE AUCTION ITEMS AND SELECTIONS FROM ROOT & BONE'S AWARD-WINNING MENU. PROCEEDS BENEFITED BOTH THE RP FOUNDATION AND THE STOP & GO FOUNDATION. "RACE FOR RP "HOT LAP" FUNDRAISING CAMPAIGN: OFFERED AT EACH MCLAREN TROPHY AMERICA EVENT, THIS INITIATIVE INVITED FANS TO DONATE FOR A CHANCE TO WIN AN UNFORGETTABLE HOT-LAP EXPERIENCE IN MCLAREN RACE CARS, EXPANDING AWARENESS WHILE ENGAGING NEW SUPPORTERS. "END-OF-SEASON RACING FUNDRAISERS: SPECIAL FUNDRAISING EVENTS HELD AT THE MCLAREN TROPHY AMERICA SEASON FINALE AND AT MCLAREN'S HEADQUARTERS IN WOKING, UNITED KINGDOM, RAISED FUNDS FOR RP RESEARCH AND INCREASED INTERNATIONAL AWARENESS OF THE DISEASE. "PRAGUE FOR PROGRESS: RUNNING FOR JANE AND RELAPSING POLYCHONDRITIS RESEARCH: ORGANIZED BY A SON WHOSE MOTHER PASSED AWAY FROM RP, THIS GRASSROOTS FUNDRAISING EFFORT BROUGHT TOGETHER NINE RUNNERS WHO PARTICIPATED IN THE RUNCZECH PRAGUE MARATHON TO RAISE FUNDS FOR THE RP FOUNDATION AND THE WREN PROJECT, HELPING ADVANCE RP RESEARCH AND AWARENESS. "MEDAWAR FINE JEWELERS' "SIP, SHOP & SUPPORT" EVENT: THIS FUNDRAISING EVENT FEATURED GOURMET APPETIZERS AND FINE JEWELRY, WITH A PORTION OF PROCEEDS BENEFITING THE RP FOUNDATION'S EFFORTS TO ADVANCE RESEARCH AND INCREASE AWARENESS OF RP.
Source: Form 990 for the year ending March 31, 2026, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending March 2026.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since July 2014.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.