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Pitt Hopkins Research Foundation

EIN 46-0770142 · Winston Salem, NC

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceStrong93 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

PITT HOPKINS RESEARCH FOUNDATION'S MISSION IS TO SUPPORT RESEARCH DEDICATED TO FINDING A TREATMENT AND AN EVENTUAL CURE OF PITT HOPKINS SYNDROME AND OTHER SIMILAR DISORDERS. THE ORGANIZATION'S MISSION IS TO ALSO SUPPORT THE PITT HOPKINS COMMUNITY WITH RESOURCE RECOMMENDATIONS, PARENTAL SUPPORT AND THE LATEST MEDICAL INFORMATION.

Income
$836,745
Spending
$510,731
Spent on programs
91%
Reserves
28.1 months of spending
Largest source of income
donations and private grants, 81%
Employees
1
Volunteers
9
Highest pay
$50,000, president

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 84% of charities in its peer group (health care, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 28.1 months of spending.

  • Debt

    20 of 20

    It owes 10% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 39% of income.

  • Income trend

    15 of 15

    Income rose 40% on the year before.

  • Spending floor

    15 of 15

    91% of spending went to programs and raising each dollar of donations cost 4 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 93 out of 100. Higher than 83% of charities in its peer group (health care, $250k to $1m).

  • Independent board

    25 of 25

    8 of 9 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $464,175 spent. THE ORGANIZATION PROVIDES GRANTS TO VARIOUS ORGANIZATIONS (PRIMARILY UNIVERSITIES WITH RESEARCH PROGRAMS) TO SUPPORT RESEARCH DEDICATED TO FINDING A TREATMENT FOR PITT HOPKINS SYNDROME. IN 2025, THE ORGANIZATION MADE GRANTS DIRECTLY TO THREE RESEARCH ORGANIZATIONS AND ONE FOUNDATION IN SUPPORT OF RESEARCH. ADDITIONALLY, THE ORGANIZATION ENGAGED CONTRACTED RESEARCH SERVICES FROM SIX ADDITIONAL ORGANIZATIONS TO CONDUCT RESEARCH RELATED TO PITT HOPKINS SYNDROME FOR A TOTAL OF $206,939.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since May 2013.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.