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Vasculitis Foundation

EIN 43-1492959 · Kansas City, MO

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood83 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS.

Income
$2.5 million
Spending
$2.4 million
Spent on programs
64%
Reserves
12.3 months of spending
Largest source of income
donations and private grants, 92%
Employees
11
Volunteers
150
Highest pay
$149,468, executive di

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 83 out of 100.

  • Reserves

    35 of 35

    Spendable reserves would cover 12.3 months of spending.

  • Debt

    20 of 20

    It owes 2% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 5% of income.

  • Income trend

    5 of 15

    Income fell 15% on the year before.

  • Spending floor

    8 of 15

    64% of spending went to programs and raising each dollar of donations cost 11 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100.

  • Independent board

    25 of 25

    12 of 12 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. $900,946 spent. BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION (VF) SUPPORTS, INSPIRES, AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, FELLOWSHIP, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIAGNOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. THE VF PROVIDES SUPPORT THROUGH ITS EXTENSIVE WEBSITE, MONTLHY E-NEWSLETTERS, ELECTRONIC AND PRINTED EDUCATIONAL MATERIALS, PHONE AND EMAIL OUTREACH. WEBSITE VISITORS: 35,000 ANNUALLY; YOUTUBE SUBSCRIBERS: 10,000+ ANNUALLY; MONTHLY E-NEWSLETTER DISTRIBUTION: MORE THAN 14,000 SUBSCRIBERS; AND 3,500 PHONE AND EMAIL REQUESTS FOR ASSISTANCE THIS YEAR. THE VF OFFERS 9 VIRTUAL SUPPORT GROUP MEETINGS MONTHLY FOR PATIENTS OF ALL AGES AND THEIR PARENTS AND CAREGIVERS, ATTRACTING AS MANY AS 275 PARTICIPANTS A MONTH. THE VF OFFERS WIDE-RANGING LIVE AND ON-DEMAND WEBINARS WHICH ADDRESS DISEASE SPOTLIGHTS, MENTAL HEALTH/WELLNESS, RESEARCH, THERAPIES AND TREATMENTS. THE VF HAD 100+ WEBINARS WITH 7,020 HOURS WATCHED, AND 150,000+ VIEWS ON VF'S YOUTUBE EDUCATION CHANNEL. THE VF TEAM HAS BEEN ON THE ROAD THIS YEAR EDUCATING OUR PATIENT COMMUNITY AT REGIONAL CONFERENCES IN AUSTIN, CLEVELAND, NASHVILLE, SANTA MONICA, SCOTTSDALE, SEATTLE, AND WASHINGTON, DC. THE VF TEAM ALSO RAISED AWARENESS IN THE MEDICAL COMMUNITY BY EXHIBITING AT INTERNATIONAL MEDICAL CONFERENCES INCLUDING THE AMERICAN COLLEGE OF RHEUMATOLOGY, AMERICAN SOCIETY OF NEPHROLOGY, AMERICAN THORACIC SOCIETY, CARRA, AND RH APP. BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION (VF) SUPPORTS, INSPIRES, AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, FELLOWSHIP, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIAGNOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. THE VF PROVIDES SUPPORT THROUGH ITS EXTENSIVE WEBSITE, MONTLHY E-NEWSLETTERS, ELECTRONIC AND PRINTED EDUCATIONAL MATERIALS, PHONE AND EMAIL OUTREACH. WEBSITE VISITORS: 35,000 ANNUALLY; YOUTUBE SUBSCRIBERS: 10,000+ ANNUALLY; MONTHLY E-NEWSLETTER DISTRIBUTION: MORE THAN 14,000 SUBSCRIBERS; AND 3,500 PHONE AND EMAIL REQUESTS FOR ASSISTANCE THIS YEAR. THE VF OFFERS 9 VIRTUAL SUPPORT GROUP MEETINGS MONTHLY FOR PATIENTS OF ALL AGES AND THEIR PARENTS AND CAREGIVERS, ATTRACTING AS MANY AS 275 PARTICIPANTS A MONTH. THE VF OFFERS WIDE-RANGING LIVE AND ON-DEMAND WEBINARS WHICH ADDRESS DISEASE SPOTLIGHTS, MENTAL HEALTH/WELLNESS, RESEARCH, THERAPIES AND TREATMENTS. THE VF HAD 100+ WEBINARS WITH 7,020 HOURS WATCHED, AND 150,000+ VIEWS ON VF'S YOUTUBE EDUCATION CHANNEL. THE VF TEAM HAS BEEN ON THE ROAD THIS YEAR EDUCATING OUR PATIENT COMMUNITY AT REGIONAL CONFERENCES IN AUSTIN, CLEVELAND, NASHVILLE, SANTA MONICA, SCOTTSDALE, SEATTLE, AND WASHINGTON, DC. THE VF TEAM ALSO RAISED AWARENESS IN THE MEDICAL COMMUNITY BY EXHIBITING AT INTERNATIONAL MEDICAL CONFERENCES INCLUDING THE AMERICAN COLLEGE OF RHEUMATOLOGY, AMERICAN SOCIETY OF NEPHROLOGY, AMERICAN THORACIC SOCIETY, CARRA, AND RH APP.
  2. $621,816 spent. VASCULITIS - BUILDING OUTCOMES, LEADING DISCOVERIES (V-BOLD) PROGRAM COMBINES RESEARCH, FELLOWSHIPS, VASCULITIS CENTERS, AND THE VPPRN WITH THE GOAL TO IMPROVE THE QUALITY OF LIFE FOR PATIENTS WITH VASCULITIS, AND ULTIMATELY FIND THE CAUSE(S) AND CURE FOR VASCULITIS. RESEARCH: THE VF YOUNG INVESTIGATOR AWARD PROVIDES ONE OR TWO-YEAR GRANTS OF UP TO 50,000 TO SUPPORT RESEARCHERS WITHIN FIVE YEARS OF THE COMPLETION OF THEIR FELLOWSHIPS. THE FUNDING SUPPORTS PILOT STUDIES IN RESEARCHING DIAGNOSIS, ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, AND TREATMENT/MANAGEMENT. FELLOWSHIPS: THE VF PARTNERS WITH ACADEMIC INSTITUTIONS AND THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) TO PROVIDE FELLOWSHIPS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS. THIS MENTORED TRAINING PROGRAM EMPHASIZES CLINICAL, PATIENT-ORIENTED INVESTIGATION. VASCULITIS CENTERS ARE ESSENTIAL IN THE PATIENT JOURNEY - FROM DIAGNOSIS TO TREATMENT TO REMISSION, WITH THE POTENTIAL FOR CURES. VASCULITIS CENTERS PROVIDE COMPREHENSIVE, HIGH-QUALITY, AND COMPASSIONATE CARE TO PATIENTS WITH VASCULITIS. IN ADDITION, THEY HAVE THE CAPACITY TO ADVANCE OUR UNDERSTANDING OF VASCULITIS THROUGH RESEARCH. WITH EXPERTS IN THE MANAGEMENT AND STUDY OF THE DISEASE, VASCULITIS CENTERS ARE AT THE FOREFRONT OF SPECIALTY CARE AND CLINICAL RESEARCH, WHILE TREATING ALL TYPES OF VASCULITIS. IN 2024-25, VF FUNDED 10 GRANTS TOTALLING 246,907. VASCULITIS PATIENT-POWERED RESEARCH NETWORK (VPPRN) IS THE INTERNATIONAL RESEARCH NETWORK OF PATIENTS, SCIENTISTS, CLINICIANS, ADVOCATES AND FAMILY MEMBERS WHO WORK TO IMPROVE THE HEALTH CARE AND QUALITY OF LIFE FOR PEOPLE WITH VASCULITIS THROUGH HIGH-LEVEL CLINICAL RESEARCH. VASCULITIS - BUILDING OUTCOMES, LEADING DISCOVERIES (V-BOLD) PROGRAM COMBINES RESEARCH, FELLOWSHIPS, VASCULITIS CENTERS, AND THE VPPRN WITH THE GOAL TO IMPROVE THE QUALITY OF LIFE FOR PATIENTS WITH VASCULITIS, AND ULTIMATELY FIND THE CAUSE(S) AND CURE FOR VASCULITIS. RESEARCH: THE VF YOUNG INVESTIGATOR AWARD PROVIDES ONE OR TWO-YEAR GRANTS OF UP TO 50,000 TO SUPPORT RESEARCHERS WITHIN FIVE YEARS OF THE COMPLETION OF THEIR FELLOWSHIPS. THE FUNDING SUPPORTS PILOT STUDIES IN RESEARCHING DIAGNOSIS, ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, AND TREATMENT/MANAGEMENT. FELLOWSHIPS: THE VF PARTNERS WITH ACADEMIC INSTITUTIONS AND THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) TO PROVIDE FELLOWSHIPS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS. THIS MENTORED TRAINING PROGRAM EMPHASIZES CLINICAL, PATIENT-ORIENTED INVESTIGATION. VASCULITIS CENTERS ARE ESSENTIAL IN THE PATIENT JOURNEY - FROM DIAGNOSIS TO TREATMENT TO REMISSION, WITH THE POTENTIAL FOR CURES. VASCULITIS CENTERS PROVIDE COMPREHENSIVE, HIGH-QUALITY, AND COMPASSIONATE CARE TO PATIENTS WITH VASCULITIS. IN ADDITION, THEY HAVE THE CAPACITY TO ADVANCE OUR UNDERSTANDING OF VASCULITIS THROUGH RESEARCH. WITH EXPERTS IN THE MANAGEMENT AND STUDY OF THE DISEASE, VASCULITIS CENTERS ARE AT THE FOREFRONT OF SPECIALTY CARE AND CLINICAL RESEARCH, WHILE TREATING ALL TYPES OF VASCULITIS. IN 2024-25, VF FUNDED 10 GRANTS TOTALLING 246,907. VASCULITIS PATIENT-POWERED RESEARCH NETWORK (VPPRN) IS THE INTERNATIONAL RESEARCH NETWORK OF PATIENTS, SCIENTISTS, CLINICIANS, ADVOCATES AND FAMILY MEMBERS WHO WORK TO IMPROVE THE HEALTH CARE AND QUALITY OF LIFE FOR PEOPLE WITH VASCULITIS THROUGH HIGH-LEVEL CLINICAL RESEARCH.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since November 1990.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.