North Star ALS Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
NORTH STAR ALS IS THE INDEPENDENT SCIENCE HUB FOR THE ALS COMMUNITY. NORTH STAR ALS IS DEDICATED TO CONNECTING PEOPLE AFFECTED BY ALS WITH EVERY ASPECT OF RESEARCH.WE HELP ALS FAMILIES:-UNDERSTAND HOW TO ACCESS AND PARTICIPATE IN RESEARCH-ADVOCATE FOR BETTER STUDY DESIGNS-SHARE COMMUNITY INSIGHTS TO ELEVATE LIVED EXPERIENCE THROUGHOUT THE RESEARCH ECOSYSTEM
- Income
- $121,787
- Spending
- $34,822
- Reserves
- 31.1 months of spending
- Largest source of income
- donations and private grants, 100%
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- PATIENT & CAREGIVER RESEARCH EDUCATION - DEVELOPMENT AND DELIVERY OF EDUCATIONAL PROGRAMMING TO HELP INDIVIDUALS AFFECTED BY ALS UNDERSTAND AND NAVIGATE RESEARCH AND CLINICAL TRIAL OPPORTUNITIES. ACTIVITIES INCLUDE WEBINARS, DIGITAL RESOURCES, AND INFORMATIONAL CONTENT THAT TRANSLATE COMPLEX SCIENTIFIC DEVELOPMENTS INTO CLEAR, ACCESSIBLE, AND ACTIONABLE INFORMATION FOR PATIENTS AND FAMILIES.
- PUBLIC EDUCATION & RESEARCH AWARENESS - DISSEMINATION OF EDUCATIONAL CONTENT FOCUSED ON ALS RESEARCH THROUGH NEWSLETTERS, SOCIAL MEDIA, AND OTHER DIGITAL PLATFORMS. THESE EFFORTS INCREASE PUBLIC UNDERSTANDING OF ONGOING RESEARCH, EMERGING SCIENTIFIC FINDINGS, AND OPPORTUNITIES FOR ENGAGEMENT, WITH THE GOAL OF IMPROVING RESEARCH LITERACY AND PARTICIPATION WITHIN THE ALS COMMUNITY.
- PATIENT INSIGHT INTEGRATION & RESEARCH COLLABORATION - FACILITATION OF STRUCTURED OPPORTUNITIES FOR INDIVIDUALS AFFECTED BY ALS TO SHARE LIVED EXPERIENCES AND PERSPECTIVES TO INFORM RESEARCH. ACTIVITIES INCLUDE COLLABORATIONS WITH ACADEMIC AND INDUSTRY RESEARCHERS TO ENSURE THAT PATIENT INSIGHTS ARE INCORPORATED INTO STUDY DESIGN, RECRUITMENT STRATEGIES, AND BROADER RESEARCH EFFORTS, IN ALIGNMENT WITH THE ORGANIZATION'S CHARITABLE AND EDUCATIONAL MISSION.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Worth knowing.
Recognized by the IRS in January 2026. It is too new to have a track record.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.