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Alternating Hemiplegia of Childhood Foundation Inc

EIN 38-3225425 · Southfield, MI

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood83 out of 100GovernanceGood75 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.

Income
$283,334
Spending
$200,994
Spent on programs
60%
Reserves
101.4 months of spending
Largest source of income
donations and private grants, 69%
Employees
0
Volunteers
100

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 83 out of 100. Higher than 45% of charities in its peer group (medical research, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 101.4 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 29% of income.

  • Income trend

    5 of 15

    Income fell 12% on the year before.

  • Spending floor

    8 of 15

    60% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 75 out of 100. Higher than 47% of charities in its peer group (medical research, $250k to $1m).

  • Independent board

    25 of 25

    10 of 10 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $35,000 spent. Grant given to Northwestern University to fund a fellowship for Dr. Jacqueline Leite to spend 12 months performing research on alternating hemiplegia of childhood in the laboratory of Dr. Alfred L. George, Jr.
  2. $22,411 spent. The AHCF contributed to research at Brown University lead by Ann Hart to finish preliminary characterization C. elegans CRISPR knock-in models and identify robust phenotype-based assays that will facilitate using these C. elegans models to undertake efficient screening for conserved modifier genes and/or compounds that might ameliorate defects and increase our understanding of molecular pathways leading to AHC.
  3. $16,830 spent. The AHCF contributed to research at iXCells Biotechnologies on Antisense Oligonucleotide Treatments (ASO Therapy). iXcells pilot study Stage 1: including small scale mouse cortical neuron isolation and assay optimization Stage 2 : custom mouse cortical neuron isolation for ASO Screen Stage 2 part 2: ASO screening using mouse cortical neurons
  4. $46,328 spent. See Schedule O, Statement 1 The AHCF contributed to two other research projects (Jax Labs ASO Proof of Concept and SomaLogic ASO mouse models). We also sponsored the international ATP1A3 Symposium, hosted the Family Meeting, paid for a CNS sponsorship, and sent out family welcome packets.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since December 1997.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.