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National Rosacea Society

EIN 36-4120334 · Chicago, IL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood81 out of 100GovernanceGood86 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO IMPROVE THE LIVES OF THOSE WHO SUFFER FROM ROSACEA BY RAISING AWARENESS, PROVIDING INFORMATION AND SUPPORTING MEDICAL RESEARCH ON THIS WIDESPREAD BUT POORLY UNDERSTOOD SKIN DISORDER AFFECTING AN ESTIMATED 16 MILLION AMERICANS.

Income
$439,080
Spending
$367,534
Spent on programs
85%
Reserves
4.9 months of spending
Largest source of income
donations and private grants, 100%
Employees
0
Volunteers
12
Highest pay
$73,863, president

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 81 out of 100. Higher than 47% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    20 of 35

    Spendable reserves would cover 4.9 months of spending.

  • Debt

    16 of 20

    It owes 18% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 16% of income.

  • Income trend

    15 of 15

    Income rose 38% on the year before.

  • Spending floor

    15 of 15

    85% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 86 out of 100. Higher than 67% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    5 of 7 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $96,507 spent. PUBLIC EDUCATION - THE SOCIETY PRODUCES AND SUPPLIES INFORMATION AND EDUCATIONAL MATERIALS IN RESPONSE TO REQUESTS FROM PATIENTS, HEALTH PROFESSIONALS, AND THE GENERAL PUBLIC. THESE INCLUDE "ROSACEA REVIEW," A NEWSLETTER WITH NEWS AND GENERAL INFORMATION ON ROSACEA; BOOKLETS AND TEAR-SHEETS ON ROSACEA AND LIFESTYLE MANAGEMENT TO HELP INDIVIDUALS COPE WITH THE ILLNESS; A PATIENT DIARY TO HELP SUFFERERS IDENTIFY AND AVOID LIFESTYLE AND ENVIRONMENTAL FACTORS THAT MAY AGGRAVATE THEIR INDIVIDUAL CONDITIONS; MEDICAL AND CONSUMER ARTICLES AND BIBLIOGRAPHIES. THE SOCIETY ALSO CONDUCTS AND PUBLISHES PATIENT SURVEYS ON TRIGGER FACTORS, SYMPTOMS, QUALITY OF LIFE AND OTHER SIGNIFICANT ASPECTS OF ROSACEA.
  2. $123,315 spent. MEDICAL SCIENTIFIC EDUCATION - BECAUSE OF ROSACEA'S WIDE RANGE OF POTENTIAL MANIFESTATIONS, THE SOCIETY CONDUCTS CONSENSUS CONFERENCES OF LEADING EXPERTS TO DEVELOP WORLDWIDE STANDARDIZED CRITERIA FOR THE DISEASE, INCLUDING ITS PRIMARY AND SECONDARY DIAGNOSTIC FEATURES, PHENOTYPES, GRADES AND MANAGEMENT OPTIONS. THESE STANDARDS ARE REVIEWED BY MEDICAL AUTHORITIES THROUGHOUT THE UNITED STATES AND WORLDWIDE, AND PUBLISHED IN MEDICAL JOURNALS TO SERVE AS A STANDARD INSTRUMENTS FOR UNIFYING RESEARCH, IMPROVING CLINICAL DIAGNOSIS AND CARE, AND PROVIDING COMMON TERMINOLOGY FOR COMMUNICATIONS. THE SOCIETY ALSO PARTICIPANTS AT MAJOR MEDICAL MEETINGS, CONDUCTS MEDICAL CONFERENCES, PRODUCES MEDICAL EDUCATION MATERIALS AND DISTRIBUTES INFORMATION ON ITS RESEARCH GRANTS PROGRAM TO RESEARCH CENTERS.
  3. $56,455 spent. PUBLIC AWARENESS - THE SOCIETY DESIGNATES APRIL AS ROSACEA AWARENESS MONTH EACHYEAR, PRODUCES NATIONAL PUBLIC SERVICE ANNOUNCEMENTS AND CONDUCTS NATIONAL PUBLIC RELATIONS ACTIVITIES TO REACH THE MILLIONS WHO MAY UNKNOWINGLY SUFFER FROM THIS CHRONIC AND POTENTIALLY LIFE DISTRUPTIVE DISORDER. THE SOCIETY ALSO MAINTAINS A TOLL-FREE TELEPHONE NUMBER AND WEBSITE WHERE INDIVIDUALS AND HEALTH PROFESSIONALS CAN OBTAIN INFORMATION OR ASSISTANCE ON ROSACEA. THE WEBSITE, ROSACEA.ORG, RECEIVED A GOLD TRIANGLE AWARD FROM THE AMERICAN ACADEMY OF DERMATOLOGY FOR EXCELLENCE IN PUBLIC HEALTH INFORMATION, AND SERVED MORE THAN 920,000 WEBSITE VISITORS IN 2025.
  4. $37,409 spent. RESEARCH GRANTS - BECAUSE THE CAUSE OF ROSACEA IS UNKNOWN AND CONSEQUENTLY THERE IS NO CURE, THE SOCIETY ESTABLISHED RESESARCH GRANTS PROGRAM TO ENCOURAGE AND SUPPORT MEDICAL RESEARCH RELATING TO POTENTIAL CAUSES AND OTHER KEY ASPECTS OF THE DISORDER. THE SOCIETY'S MEDICAL ADVISORY BOARD REVIEWS GRANT APPLICATIONS AND SELECTS STUDIES FOR FUNDING. STUDY RESULTS ARE THEN PRESENTED AT SCIENTIFIC MEETINGS AND PUBLISHED IN MEDICAL JOURNALS, AS WELL AS IN THE SOCIETY'S NEWSLETTER AND ON ITS WEBSITE.
  5. RESEARCH GRANTS - BECAUSE THE CAUSE OF ROSACEA IS UNKNOWN AND CONSEQUENTLY THERE IS NO CURE, THE SOCIETY ESTABLISHED RESESARCH GRANTS PROGRAM TO ENCOURAGE AND SUPPORT MEDICAL RESEARCH RELATING TO POTENTIAL CAUSES AND OTHER KEY ASPECTS OF THE DISORDER. THE SOCIETY'S MEDICAL ADVISORY BOARD REVIEWS GRANT APPLICATIONS AND SELECTS STUDIES FOR FUNDING. STUDY RESULTS ARE THEN PRESENTED AT SCIENTIFIC MEETINGS AND PUBLISHED IN MEDICAL JOURNALS, AS WELL AS IN THE SOCIETY'S NEWSLETTER AND ON ITS WEBSITE.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 1997.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.