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Ddc Clinic for Special Needs Children

EIN 34-1914344 · Middlefield, OH

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood80 out of 100GovernanceGood89 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO ENHANCE THE QUALITY OF LIFE FOR SPECIAL NEEDS PEOPLE WITH METABOLIC AND INHERITED DISORDERS THROUGH EARLY DIAGNOSIS AND TREATMENT, RESEARCH, AND EDUCATION.

Income
$2.4 million
Spending
$2.4 million
Spent on programs
83%
Reserves
11.9 months of spending
Largest source of income
donations and private grants, 59%
Employees
21
Volunteers
15
Highest pay
$304,762, ceo, medical director

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 80 out of 100. Higher than 58% of charities in its peer group (health care, $1m to $10m).

  • Reserves

    28 of 35

    Spendable reserves would cover 11.9 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    12 of 15

    Income exceeded spending by 1% of income.

  • Income trend

    5 of 15

    Income fell 16% on the year before.

  • Spending floor

    15 of 15

    83% of spending went to programs and raising each dollar of donations cost 14 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 89 out of 100. Higher than 47% of charities in its peer group (health care, $1m to $10m).

  • Independent board

    25 of 25

    18 of 18 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    9 of 15

    Its accounts were reviewed or compiled by an independent accountant, but not audited.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $793,899 spent. WE SERVE PATIENTS WITH COMPLEX MEDICAL NEEDS, CLOSELY FOLLOWING THE AMERICAN ACADEMY OF PEDIATRICS (AAP) MODEL FOR A MEDICAL HOME. WE PROVIDE CARE THAT IS ACCESSIBLE, CONTINUOUS, COMPREHENSIVE, FAMILY-CENTERED, COORDINATED, COMPASSIONATE, AND CULTURALLY EFFECTIVE.WE PROVIDE MEDICAL SERVICES FOR CHILDREN WITH OVER 160 DIFFERENT RARE DISEASES; WE ARE RECOGNIZED AS A LEADING INTERNATIONAL MEDICAL FACILITY FOR SUCH COMPLEX DISORDERS AS PROLIDASE DEFICIENCY, COHEN SYNDROME, GANGLIOSIDE GM3 SYNTHASE DEFICIENCY, GLUCOSE-GALACTOSE MALABSORPTION, TMCO1 DEFECT SYNDROME, AND SAMS ASSOCIATION.IN ADDITION, WE HELP FAMILIES WITH (CONTINUED ON SCHEDULE O) MEDICAL SUPPLIES, NUTRITION NEEDS THROUGH A PATIENT ASSISTANCE PROGRAM, AND WE COORDINATE ON-SITE SUB-SPECIALTY SERVICES WITH OUTSIDE INSTITUTIONS.
  2. $1.1 million spent. PATIENT-ORIENTED RESEARCH ALLOWS US TO FOCUS ON EARLY DIAGNOSIS AND GROUNDBREAKING TREATMENT, BRINGING RELIEF TO CHILDREN AND HOPE TO THEIR FAMILIES. THIS IS OFTEN REFERRED TO AS "TRANSLATIONAL" RESEARCH BECAUSE WHAT WE LEARN IS TRANSLATED IMMEDIATELY TO PATIENT CARE. WE ARE CONSIDERED A FOREMOST RESOURCE TO OTHER DOCTORS WHO HAVE SIMILARLY AFFECTED PATIENTS.OUR MOLECULAR DIAGNOSTICS LABORATORY OFFERS STATE-OF-THE-ART GENETIC TESTING FOR HUNDREDS OF GENETIC DISORDERS. THE LAB WAS DEVELOPED IN 2005 TO SUPPORT TRANSLATIONAL RESEARCH AND PERSONALIZED MEDICINE FOR PATIENTS. IN 2012, WITH A GROWING NUMBER OF REQUESTS BY CLINICIANS ACROSS THE COUNTRY LOOKING FOR HIGH-QUALITY (CONTINUED ON SCHEDULE O) AND AFFORDABLE TESTING SERVICES FOR RARE GENETIC CONDITIONS, OUR LAB SOUGHT AND EARNED CERTIFICATION BY THE CLINICAL LABORATORY IMPROVEMENT AMENDMENTS (CLIA). OUR TESTS INCLUDE DNA SEQUENCE ANALYSIS VIA SANGER SEQUENCING AND NEXT-GENERATION SEQUENCING (NGS), AS WELL AS DNA COPY NUMBER VARIATION ANALYSIS BY CHROMOSOMAL MICROARRAY.
  3. $131,079 spent. WE PARTNER WITH FAMILIES, THE COMMUNITY, AND MEDICAL PROFESSIONALS TO EMPOWER THEM WITH KNOWLEDGE; EXTENSIVE OUTREACH TO FAMILIES AND MEDICAL PROFESSIONALS HAS INCREASED AWARENESS OF RISK FACTORS AND DISEASE PROCESSES LEADING TO EARLIER DIAGNOSIS AND BETTER PLANS OF CARE.WE OFFER FAMILY SUPPORT SERVICES INCLUDING GENETIC COUNSELING, DISORDER-SPECIFIC FAMILY GATHERINGS, AND MOTHERS SUPPORT GROUPS.WE COLLABORATE WITH LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES, SHARING KNOWLEDGE WITH PROMINENT PHYSICIANS AND RESEARCH SCIENTISTS AROUND THE WORLD THROUGH PAPERS PUBLISHED IN PRESTIGIOUS JOURNALS SUCH AS THE PROCEEDINGS OF THE (CONTINUED ON SCHEDULE O) NATIONAL ACADEMY OF SCIENCES, NATURE GENETICS AND THE AMERICAN JOURNAL OF MEDICAL GENETICS, AMERICAN JOURNAL OF HERMATOLOGY, BRITISH JOURNAL OF HERMATOLOGY, AND JOURNAL OF MOVEMENT DISORDERS.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2004.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.