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Twin to Twin Transfusion Syndrome Foundation Inc

EIN 34-1740578 · Bay Village, OH

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceNot ratedThe short tax form does not cover thisImpact evidenceDescribes programsHow well its results are evidenced

What it says it does

SAVING LIVES OF TWINS AFFLICTED BY TTTS

Income
$159,149
Spending
$138,725
Reserves
15.9 months of spending
Largest source of income
donations and private grants, 99%
Highest pay
$96,276, president/treasurer

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100.

  • Reserves

    35 of 35

    Spendable reserves would cover 15.9 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 13% of income.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $76,276 spent. PROVIDING EDUCATIONAL AND EMOTIONAL SUPPORT TO FAMILIES, MEDICAL PROFESSIONALS AND OTHER CAREGIVERS BEFORE, DURING AND AFTER A DIAGNOSIS OF TTTS (INCLUDING TAPS, SIUGR, AND TRAP). SUPPORTING FAMILIES INCLUDING BEREAVEMENT, NICU, SPECIAL NEEDS AND RESEARCH. SINCE 1989, OVER 39,200 FAMILIES DIRECTLY SUPPORTED. FOUNDATION ALSO PROVIDES AN INTERNATIONAL WEBSITE & ACCESS TO VARIOUS SOCIAL MEDIA GROUPS FOR EDUCATION AND HELP.
  2. $47,961 spent. INTERNATIONAL TTTS AWARENESS PROGRAM TO INCREASE AWARENESS OF TTTS TO EDUCATE PARENTS AND MEDICAL PROFESSIONALS ON THE WARNING SIGNS OF TTTS, TREATMENT OPTIONS, IMPORTANCE OF EARLY DIAGNOSIS OF CHORIONICITY BY 8 WEEKS OF PREGNANCY, WEEKLY ULTRASOUNDS WITH A MFM SPECIALIST, IMPORTANCE OF REST/NUTRITION/CERVICAL LENGTH AND EARLIER DELIVERY.
  3. $14,488 spent. PROVIDING FAMILY GRANTS TO FINANCIALLY NEEDY FAMILIES IN CRISIS, TRAVEL AND LODGING FOR TTTS TREATMENT FOR THEIR BABIES, AS WELL AS BEREAVEMENT GRANTS FOR COMPASSIONATE SERVICES AND CEMETARY MARKERS TO HONOR AND LOVE THEIR BABIES. FOUNDATION ALSO PROVIDES RESEARCH & MEDICAL GRANTS.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since February 1994.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.