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Primary Immunodeficiency Treatment Foundation

EIN 33-2407762 · San Francisco, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthNot ratedToo small or too little detailGovernanceFair59 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE ORGANIZATION IS A NIH FUNDED CONSORTIUM CONDUCTING MEDICAL RESEARCH TO UNDERSTAND HOW TO BEST TREAT IMMUNE DISORDERS. OUR MISSION IS "WORKING TOGETHER TO IMPROVE THE OUTCOME FOR PATIENTS WITH RARE, LIFE-THREATENING, INHERITED DISORDERS OF THE IMMUNE SYSTEM."

Income
$265,592
Spending
$7,868
Reserves
Over 10 years of spending
Largest source of income
donations and private grants, 100%
Employees
0
Volunteers
6

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Fair: 59 out of 100. Higher than 24% of charities in its peer group (health care, $250k to $1m).

  • Independent board

    25 of 25

    6 of 6 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. THE PIDTC IS AN NIH FUNDED RESEARCH CONSORTIUM MADE UP OF 47 INSTITUTIONS IN NORTH AMERICA. THE PIDTC DEVELOPS AND EXECUTES OBSERVATIONAL AND INTERVENTIONAL CLINICAL TRIALS TO UNDERSTAND BEST THERAPIES FOR PATIENTS WITH RARE, LIFE-THREATENING, INHERITED DISORDERS OF THE IMMUNE SYSTEM. IN ADDITON, THE PIDTC HOLDS AN ANNUAL MEETING EACH YEAR WHERE INVESTIGATORS AND TRAINEES FROM ALL 47 CENTERS MEET. AS PART OF THE ANNUAL MEETING, WE ALSO CONDUCT AN EDUCATION DAY WHERE MEDICAL STUDENTS, RESIDENTS, AND FELLOWS CAN ATTEND TO LEARN MORE ABOUT TREATMENT OF PATIENTS WITH INBORN ERRORS OF IMMUNITY.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.