Ewing Sarcoma Institute Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
ACCELERATE SCIENTIFIC DISCOVERY & DEVELOPMENT OF BREAKTHROUGH TREATMENTS FOR EWING SARCOMA PATIENTS.
- Income
- $50,334
- Spending
- $33,924
- Reserves
- 5.8 months of spending
- Largest source of income
- donations and private grants, 99%
Source: Form 990EZ for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.
Source: Form 990EZ for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $9,816 spent. GENERAL PROGRAM - IN ITS FOUNDING YEAR, THE INSTITUTE MAPPED OUT THE FULL LANDSCAPE OF STAKEHOLDERS ESSENTIAL TO ADVANCING PROGRESS AGAINST EWING SARCOMA. LEADERSHIP MET WITH RESEARCHERS, CLINICIANS, SCIENTISTS, INDUSTRY REPRESENTATIVES, AND PATIENT ADVOCATES, AND ENGAGED DIRECTLY WITH KEY EWING SARCOMA ORGANIZATIONS, PARTNERS, AND INITIATIVES WORKING IN THE FIELD. THROUGH THESE EFFORTS, THE INSTITUTE DEVELOPED A COMPREHENSIVE UNDERSTANDING OF THE CURRENT STATE OF EWING SARCOMA RESEARCH AND CARE, AND IDENTIFIED OPPORTUNITIES TO STRENGTHEN COORDINATION ACROSS TRADITIONALLY SILOED GROUPS. THIS FOUNDATIONAL WORK ESTABLISHED THE COLLABORATIVE ARCHITECTURE UPON WHICH THE INSTITUTE'S RESEARCH FUNDING AND SCIENTIFIC PROGRAMMING WILL BE BUILT IN SUBSEQUENT YEARS.
- $6,544 spent. COMMUNITY & PARENT ENGAGEMENT - IN ITS FOUNDING YEAR, THE INSTITUTE LAUNCHED ITS COMMUNITY ENGAGEMENT PROGRAM BY UNITING THE HISTORICALLY FRAGMENTED EWING SARCOMA ADVOCATE AND PHILANTHROPIC COMMUNITIES IN SHARED PURPOSE. THE INSTITUTE MET WITH DOZENS OF FOUNDATIONS FOCUSED ON EWING SARCOMA AND PEDIATRIC CANCER TO BUILD PHILANTHROPIC ALIGNMENT AND IDENTIFY COORDINATED FUNDING STRATEGIES. IT ALSO ENGAGED DIRECTLY WITH MORE THAN TWENTY EWING SARCOMA PATIENTS AND FAMILIES TO ENSURE THE PATIENT AND CAREGIVER VOICE INFORMS THE INSTITUTE'S RESEARCH PRIORITIES AND PROGRAMMATIC DIRECTION. THROUGH THESE EFFORTS, THE INSTITUTE TRANSFORMED A DISPERSED LANDSCAPE OF ADVOCACY AND GIVING INTO AN ORGANIZED COMMUNITY POSITIONED TO DRIVE COLLECTIVE IMPACT.
- $4,908 spent. STRATEGIC ADVISORY BOARD - A DEFINING ACCOMPLISHMENT OF THE INSTITUTE'S FOUNDING YEAR WAS THE IDENTIFICATION, RECRUITMENT, AND FORMAL SEATING OF ITS STRATEGIC ADVISORY BOARD, COMPRISED OF TWELVE OF THE WORLD'S LEADING EXPERTS IN EWING SARCOMA. INSTITUTE LEADERSHIP MAPPED THE GLOBAL LANDSCAPE OF SCIENTIFIC AND CLINICAL EXPERTISE IN THE DISEASE AND ENGAGED TOP RESEARCHERS AND CLINICIANS ACROSS LEADING INSTITUTIONS. THE RESULTING BOARD REPRESENTS THE FOREMOST AUTHORITIES ON EWING SARCOMA BIOLOGY, TRANSLATIONAL RESEARCH, AND CLINICAL CARE, PROVIDING THE INSTITUTE WITH UNPARALLELED SCIENTIFIC GUIDANCE ON THIS RARE DISEASE. ESTABLISHING THE STRATEGIC ADVISORY BOARD IN THE FIRST YEAR PROVIDED THE SCIENTIFIC CREDIBILITY AND EXPERT OVERSIGHT NEEDED TO GUIDE RESEARCH INVESTMENTS AND PROGRAMMATIC PRIORITIES FROM THE OUTSET.
Source: Form 990EZ for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since October 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.