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National Organization of Disorders of the Corpus Callosum

EIN 33-1029337 · Yorba Linda, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong93 out of 100GovernanceGood82 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE NODCC HAS BECOME THE LEADING NONPROFIT ORGANIZATION FOR THE DISORDERS OF THE CORPUS CALLOSUM AND IS DEDICATED TO RAISING THE PROFILE, UNDERSTANDING AND ACCEPTANCE OF THESE DISORDERS THROUGH EDUCATION, NETWORKING, ADVOCACY AND BEING A CATALYST FOR RESEARCH.

Income
$433,762
Spending
$437,177
Spent on programs
90%
Reserves
13.5 months of spending
Largest source of income
fees for its services, 49%
Employees
0
Volunteers
30

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 93 out of 100. Higher than 68% of charities in its peer group (medical research, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 13.5 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 1% of income.

  • Income trend

    15 of 15

    Income rose 101% on the year before.

  • Spending floor

    15 of 15

    90% of spending went to programs and raising each dollar of donations cost 4 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 82 out of 100. Higher than 62% of charities in its peer group (medical research, $250k to $1m).

  • Independent board

    25 of 25

    17 of 17 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $32,920 spent. THE NODCC HAS SEVERAL OUTREACH PROGRAMS TO HELP RAISE THE AWARENESS AND IMPROVE EDUCATION AMONG THE STAKEHOLDERS IN THE COMMUNITY. WE HOST EDUCATIONAL EXHIBITS AT PROFESSIONAL MEDICAL CONFERENCES & HOST MONTHLY VIRTUAL MEETINGS FOR PARENTS/CAREGIVERS AND ADJULTS WITH DCC IN OUR COMMUNITY.
  2. $62,895 spent. THE NODCC IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY A DISORDER OF THE CORPUS CALLOSUM BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2024, NODCC STAFF PROVIDED ONE ON ONE SUPPORT THROUGH PHONE CALLS, EMAILS AND INTERACTIONS ON SOCIAL MEDIA. WE PROVIDED WELCOME PACKETS TO NEWLY DIAGNOSED FAMILIES. WE MAINTAIN AN INCREASING NUMBER OF RESOURCES ON OUR WEBSITE, BROCHURE, EDUCATIONAL BOOKLETS, AND EDUCATIONAL VIDEOS ON YOUTUBE.
  3. $296,386 spent. THE NODCC CONFERENCE AND REGIONAL MEETINGS ARE A WAY OF PROVIDING SUPPORT AND COMMUNITY TO OUR FAMILIES AFFECTED BY DCC.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 2003.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.