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Passes our checks

Aps Type 1 Foundation

EIN 32-0241819 · Stony Brook, NY

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceNot ratedThe short tax form does not cover thisImpact evidenceDescribes programsHow well its results are evidenced

What it says it does

The APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this autoimmune disorder.

Income
$126,409
Spending
$112,896
Reserves
39.6 months of spending
Largest source of income
donations and private grants, 100%

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 82% of charities in its peer group (diseases, under $250k).

  • Reserves

    35 of 35

    Spendable reserves would cover 39.6 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 11% of income.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. The APS Type 1 Foundation's community is approximately 200 in North America and counting. There are many undiagnosed APS Type 1 patients throughout the United States and worldwide. The Foundations has assisted in decreasing the time to diagnosis; on average, it was 7-10 years when we started, and it can now take 4-5 years. The Foundation's accomplishments for 2024 include Education: This July, The APS Type 1 Foundation Inc. held its 6th Biannual International Symposium on APS Type 1 in San Francisco, California. This symposium provides much-needed education, especially for the newly diagnosed patients, their families, physicians, and clinicians worldwide. We are helping to promote best practices and increase research interest throughout the world. Awareness: The Foundation held our second Global Summit in San Francisco in July 2024. This event is for physicians and research scientists. For this event, the Foundation partnered with the Clinical Immunology Society and the National Institute of Allergy and Infectious Diseases. We are hoping to hold our third in 2026. We continue awareness and education through our website, quarterly newsletters and on social media platforms. Research: The Foundation continues to fund research in APS Type 1, also known as APECED, typically every two years. We continue to run the first-ever Natural History Registry on APS Type 1.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2014.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.