ALS United Ohio Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE MISSION OF ALS UNITED OHIO IS TO PROVIDE COMPREHENSIVE SUPPORT AND ADVOCACY FOR PEOPLE WITH ALS AND THEIR FAMILIES, WHILE ADVANCING RESEARCH FOR NEW TREATMENTS AND AN END TO ALS.
- Income
- $3.2 million
- Spending
- $2.4 million
- Spent on programs
- 80%
- Reserves
- 27.6 months of spending
- Largest source of income
- donations and private grants, 63%
- Employees
- 15
- Volunteers
- 77
- Highest pay
- $140,772, president &
Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 100 out of 100. Higher than 88% of charities in its peer group (health care, $1m to $10m).
Reserves
35 of 35Spendable reserves would cover 27.6 months of spending.
Debt
20 of 20It owes 1% of what it owns.
Living within its means
15 of 15Income exceeded spending by 25% of income.
Income trend
15 of 15Income rose 35% on the year before.
Spending floor
15 of 1580% of spending went to programs and raising each dollar of donations cost 11 cents.
Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 67% of charities in its peer group (health care, $1m to $10m).
Independent board
25 of 257 of 7 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $1.4 million spent. PATIENT SERVICES AND SUPPORT: ALS UNITED OHIO PROVIDES A WIDE RANGE OF SERVICES TO PEOPLE WHO HAVE BEEN DIAGNOSED WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) OR LOU GEHRIG'S DISEASE AND TO THEIR FAMILY MEMBERS. SERVICES INCLUDE CASE MANAGEMENT BY MEDICAL AND HEALTHCARE PROFESSIONALS WHO ASSIST PATIENTS, SPOUSES, AND CAREGIVERS IN KNOWING HOW TO PREPARE AND DEAL WITH VARIOUS ASPECTS (PHYSICAL, PSYCHO-SOCIAL, AND FINANCIAL) OF BEING DIAGNOSED WITH THIS DEVASTATING, TERMINAL ILLNESS. IN ADDITION, THE ORGANIZATION PROVIDES EQUIPMENT LOANS, MONTHLY SUPPORT GROUPS, STAFFING AND PARTNERING WITH ALS CLINICS (OHIOHEALTH IN COLUMBUS AND UNIVERSITY OF CINCINNATI), A PATIENT GRANT PROGRAM AND CHILDREN'S ALS RESOURCES. ALL OF THESE SERVICES ARE PROVIDED, FREE OF CHARGE. DURING THIS PERIOD, OVER 587 PEOPLE LIVING WITH ALS WERE SERVED; 903 INDIVIDUALS ATTENDED TEN MONTHLY SUPPORT GROUP MEETINGS; 85 CHILD AND TEEN BACKPACKS PROVIDED; 482 PATIENT VISITS TO 2 MULTIDISCIPLINARY ALS CLINICS, AND 1,017 PIECES OF EQUIPMENT LOANED AND PURCHASED FOR PATIENTS. DURING FISCAL YEAR 2025, THE ORGANIZATION WAS ABLE TO CONTINUE ITS PATIENT GRANT PROGRAM. TOTAL GRANTS PROVIDED EQUALED 222,020. GRANTS ARE AWARDED BASED UPON ELIGIBILITY APPLICATIONS THAT ARE REVIEWED AND APPROVED BY THE ORGANIZATION'S STAFF. PATIENT SERVICES AND SUPPORT: ALS UNITED OHIO PROVIDES A WIDE RANGE OF SERVICES TO PEOPLE WHO HAVE BEEN DIAGNOSED WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) OR LOU GEHRIG'S DISEASE AND TO THEIR FAMILY MEMBERS. SERVICES INCLUDE CASE MANAGEMENT BY MEDICAL AND HEALTHCARE PROFESSIONALS WHO ASSIST PATIENTS, SPOUSES, AND CAREGIVERS IN KNOWING HOW TO PREPARE AND DEAL WITH VARIOUS ASPECTS (PHYSICAL, PSYCHO-SOCIAL, AND FINANCIAL) OF BEING DIAGNOSED WITH THIS DEVASTATING, TERMINAL ILLNESS. IN ADDITION, THE ORGANIZATION PROVIDES EQUIPMENT LOANS, MONTHLY SUPPORT GROUPS, STAFFING AND PARTNERING WITH ALS CLINICS (OHIOHEALTH IN COLUMBUS AND UNIVERSITY OF CINCINNATI), A PATIENT GRANT PROGRAM AND CHILDREN'S ALS RESOURCES. ALL OF THESE SERVICES ARE PROVIDED, FREE OF CHARGE. DURING THIS PERIOD, OVER 587 PEOPLE LIVING WITH ALS WERE SERVED; 903 INDIVIDUALS ATTENDED TEN MONTHLY SUPPORT GROUP MEETINGS; 85 CHILD AND TEEN BACKPACKS PROVIDED; 482 PATIENT VISITS TO 2 MULTIDISCIPLINARY ALS CLINICS, AND 1,017 PIECES OF EQUIPMENT LOANED AND PURCHASED FOR PATIENTS. DURING FISCAL YEAR 2025, THE ORGANIZATION WAS ABLE TO CONTINUE ITS PATIENT GRANT PROGRAM. TOTAL GRANTS PROVIDED EQUALED 222,020. GRANTS ARE AWARDED BASED UPON ELIGIBILITY APPLICATIONS THAT ARE REVIEWED AND APPROVED BY THE ORGANIZATION'S STAFF.
- $362,702 spent. PUBLIC AWARENESS: ALS UNITED OHIO PROVIDES IN-SERVICE TRAINING TO HEALTHCARE PROVIDERS SO THEY ARE BETTER PREPARED TO CARE FOR ALS PATIENTS. STAFF AND VOLUNTEERS SPEAK TO COMMUNITY ORGANIZATIONS, SCHOOL GROUPS, AND THE GENERAL PUBLIC ABOUT ALS AND THE NEED FOR LOCAL SERVICES, SUPPORT AND ABOUT THE NEED FOR RESEARCH TO FIND EFFECTIVE TREATMENTS AND A CURE FOR ALS. THE ORGANIZATION'S STAFF WORK WITH LOCAL RADIO STATIONS, NEWSPAPERS/PUBLICATIONS AND TELEVISION STATIONS TO ACQUIRE COVERAGE WHEN POSSIBLE TO EDUCATE THE GENERAL PUBLIC ABOUT ALS, OUR FREE SERVICES AND TO ENCOURAGE THE PUBLIC TO ATTEND OUR CHAPTER-SPONSORED EVENTS. THE ORGANIZATION PARTNERS WITH LOCAL ATHLETIC TEAMS - MAJOR LEAGUE AND MINOR LEAGUE BASEBALL) TO HOST LOU GEHRIG DAY EVENTS TO HONOR AN INDIVIDUAL WITH ALS, TO PROVIDE INFORMATION ABOUT THE DISEASE AND TO DIRECT OTHERS WITH ALS TO THE FREE SERVICES THE ORGANIZATION PROVIDES. PUBLIC AWARENESS: ALS UNITED OHIO PROVIDES IN-SERVICE TRAINING TO HEALTHCARE PROVIDERS SO THEY ARE BETTER PREPARED TO CARE FOR ALS PATIENTS. STAFF AND VOLUNTEERS SPEAK TO COMMUNITY ORGANIZATIONS, SCHOOL GROUPS, AND THE GENERAL PUBLIC ABOUT ALS AND THE NEED FOR LOCAL SERVICES, SUPPORT AND ABOUT THE NEED FOR RESEARCH TO FIND EFFECTIVE TREATMENTS AND A CURE FOR ALS. THE ORGANIZATION'S STAFF WORK WITH LOCAL RADIO STATIONS, NEWSPAPERS/PUBLICATIONS AND TELEVISION STATIONS TO ACQUIRE COVERAGE WHEN POSSIBLE TO EDUCATE THE GENERAL PUBLIC ABOUT ALS, OUR FREE SERVICES AND TO ENCOURAGE THE PUBLIC TO ATTEND OUR CHAPTER-SPONSORED EVENTS. THE ORGANIZATION PARTNERS WITH LOCAL ATHLETIC TEAMS - MAJOR LEAGUE AND MINOR LEAGUE BASEBALL) TO HOST LOU GEHRIG DAY EVENTS TO HONOR AN INDIVIDUAL WITH ALS, TO PROVIDE INFORMATION ABOUT THE DISEASE AND TO DIRECT OTHERS WITH ALS TO THE FREE SERVICES THE ORGANIZATION PROVIDES.
- $123,271 spent. ADVOCACY AND RESEARCH: ALS UNITED OHIO SUPPORTS SCIENTIFIC RESEARCH GRANTS TO FIND THE CAUSE, TREATMENTS AND CURE FOR ALS. IN ADDITION TO FINANCIAL SUPPORT, THE ALS UNITED OHIO ACTIVELY DEVELOPS RELATIONSHIPS WITH LOCAL ALS RESEARCHERS, INVITING THEM TO PRESENT THEIR NEW PROJECTS AND THEIR FINDINGS TO ALS UNITED OHIO SUPPORT GROUPS AND TO WRITE ARTICLES FOR POSTING IN THE ORGANIZATION'S NEWSLETTER. THE ORGANIZATION ALSO FACILITATES OPPORTUNITIES FOR LOCAL ALS RESEARCHERS TO EDUCATE PATIENTS ABOUT SPECIFIC RESEARCH PROJECTS AND DRUG TRIALS AND TO RECRUIT PATIENTS TO VOLUNTARILY PARTICIPATE IN THOSE EFFORTS. THE ORGANIZATION PARTNERS WITH ALS VOLUNTEERS TO EDUCATE MEMBERS OF THE THE OHIO CONGRESSIONAL DELEGATION ABOUT ALS AND THE NEED TO INCREASE AWARENESS AND RESOURCES TO PEOPLE AFFECTED BY THIS DISEASE. THE ORGANIZATION'S STAFF AND VOLUNTEERS MEET WITH VARIOUS STATE OF OHIO LEGISLATORS TO EDUCATE THEM ABOUT ALS, ABOUT THE FREE SERVICES WE PROVIDE IN THE COMMUNITY AND THE NEED FOR ADDITIONAL RESOURCES TO HELP SUPPORT PEOPLE IN OHIO WITH ALS. ADVOCACY AND RESEARCH: ALS UNITED OHIO SUPPORTS SCIENTIFIC RESEARCH GRANTS TO FIND THE CAUSE, TREATMENTS AND CURE FOR ALS. IN ADDITION TO FINANCIAL SUPPORT, THE ALS UNITED OHIO ACTIVELY DEVELOPS RELATIONSHIPS WITH LOCAL ALS RESEARCHERS, INVITING THEM TO PRESENT THEIR NEW PROJECTS AND THEIR FINDINGS TO ALS UNITED OHIO SUPPORT GROUPS AND TO WRITE ARTICLES FOR POSTING IN THE ORGANIZATION'S NEWSLETTER. THE ORGANIZATION ALSO FACILITATES OPPORTUNITIES FOR LOCAL ALS RESEARCHERS TO EDUCATE PATIENTS ABOUT SPECIFIC RESEARCH PROJECTS AND DRUG TRIALS AND TO RECRUIT PATIENTS TO VOLUNTARILY PARTICIPATE IN THOSE EFFORTS. THE ORGANIZATION PARTNERS WITH ALS VOLUNTEERS TO EDUCATE MEMBERS OF THE THE OHIO CONGRESSIONAL DELEGATION ABOUT ALS AND THE NEED TO INCREASE AWARENESS AND RESOURCES TO PEOPLE AFFECTED BY THIS DISEASE. THE ORGANIZATION'S STAFF AND VOLUNTEERS MEET WITH VARIOUS STATE OF OHIO LEGISLATORS TO EDUCATE THEM ABOUT ALS, ABOUT THE FREE SERVICES WE PROVIDE IN THE COMMUNITY AND THE NEED FOR ADDITIONAL RESOURCES TO HELP SUPPORT PEOPLE IN OHIO WITH ALS.
Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending January 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since May 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
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