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Spina Bifida Association of Kentucky Inc

EIN 31-1081176 · Louisville, KY

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong90 out of 100GovernanceNot ratedThe short tax form does not cover thisImpact evidenceDescribes programsHow well its results are evidenced

What it says it does

Our mission is to build a better future for all those impacted by Spina Bifida. The Spina Bifida Association of Kentucky achieves this mission by providing FREE educational social and financial programs for those with Spina Bifida in Kentucky and Southern Indiana. Spina Bifida is a permanently disabling birth defect that presents lifelong physical and emotional challenges but with proper medical intervention those with Spina Bifida can live a full and productive life.

Income
$180,920
Spending
$175,004
Reserves
11.7 months of spending
Largest source of income
donations and private grants, 99%
Highest pay
$60,000, executive director

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 90 out of 100. Higher than 71% of charities in its peer group (diseases, under $250k).

  • Reserves

    28 of 35

    Spendable reserves would cover 11.7 months of spending.

  • Debt

    20 of 20

    It owes 2% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 3% of income.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $20,500 spent. SPINA BIFIDA FAMILY CAMP annual 3-day weekend at the Center for Courageous Kids in Scottsville KY. This camp allows children with Spina Bifida and their families to attend an accessible medically staffed sleep-away camp and participate in fishing archery swimming and more. In 2025 32 families attended this camp.
  2. $79,581 spent. CHILDRENS PROGRAMS From newborn to teen providing social and educational programming to help kids with Spina Bifida and their parents guardians learn to navigate their ever-changing world. These programs provide a chance for kids to interact with others who have similar challenges and as they grow teaches them how to advocate for themselves and mange their own medical care. Parents guardians are provided with educational materials and a chance to get information and advice from experts and other parents who are facing similar challenges.
  3. $26,527 spent. MULTIGENERATIONAL PROGRAMS Programming for all those with Spina Bifida and their families. This includes social and holiday activities as well as educational programs and events and the SBAK Financial Assistance Fund. In 2025 the Financial Assistance Fund helped provided aid to families whose SNAP benefits were impacted by the government shutdown helped a family install a ramp on the van they use to transport their child with Spina Bifida and assisted an adult with Spina Bifida whose only parent passed away.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 1984.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.