Skip to the page content
Your donations
Passes our checks

The Spina Bifida Coalition Inc

EIN 31-1031092 · Cincinnati, OH

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthNot ratedToo small or too little detailGovernanceNot ratedThe short tax form does not cover thisImpact evidenceDescribes programsHow well its results are evidenced

What it says it does

To promote and enhance the lives of all affected by SB.

Income
$183,729
Spending
$145,965
Reserves
8.5 months of spending
Largest source of income
donations and private grants, 99%
Highest pay
$56,412, executive director

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (10)
  1. $64,906 spent. GENERAL PROGRAM-This categaory captures costs associated with keeping our doors open.These expenses include payroll, rent, web hosting utilities. Our service area encompasses 105 counties in OH, KY, IN, WV.
  2. $7,068 spent. SCHOLARSHIPS-We provided 31 scholarships to our stakeholders and their families. These included 20 direct aid for financial assistance, 4 SNAP, 4 camp/recreation, 2 auto modification and 2 post-secondary.
  3. $20,892 spent. WALK ROLL PROGRAMMING-The Walk Roll is an annual event held in NE Ohio and the Greater Cincinnati area. Over 900 individuals came together in both locations. Costs include software, rental, equipment, entertainment, photograph
  4. $100 spent. TOUCHPOINTS-is a series of informational links that target issues that occur at developmental milestones. These resources address challenges that occur in lifestyle education at each transitional stage partnering with CCHMC.
  5. $4,420 spent. SOCIAL EVENTS-In 2025 we held 2 in-person Walk Rolls at 2 of our regions. In addition we hosted 3 holiday parties in each of our regions as well as other community events for our families.
  6. $1,319 spent. CLINIC PROGRAMS- Our stakeholders require hospitalizations so to make their days brighter we provide latex free balloons to inpatients meal tickets to parents. Clinic bags including snacks, activities beverage were also given.
  7. $1,000 spent. COLLABORATIVE PROGRAMS/COMMUNITY PARTNERSHIPS-This category encompasses programs that are cross-disability as well as partnerships with other organizations and foundations. We continue to participate in CCTST with CCHMC.
  8. $2,902 spent. ADULT/TEEN PROGRAMMING-We provide various programming both inperson virtual for adults and teens. Our aduts have a bi-monthly lunch, quarterly virtual craft hour virtual monthly adult hangout. Teens participate in SB sync.
  9. $1,380 spent. ADVOCACY-This category captures expenses related to advocacy efforts on behalf of the organization. This includes mileage for attending monthly meetings and workshops related to advocacy efforts related to spina bifida.
  10. $7,028 spent. Research-Since 2018 we have been working with thd Childrens Hospital sb clinic on a research project related to Transition for our AYA. in 2025 we began steps to pilot this intervention by hiring a Transition coach.

Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since September 1973.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.