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Adnp Kids Research Foundation

EIN 30-0964243 · Brush Prairie, WA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood78 out of 100GovernanceWeak35 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

Rare disease support patient and disease advocacy patient and disease education scientific research drug development funding of treatment studies and drug trials for treatment of ADNP syndrome.

Income
$1.1 million
Spending
$1.1 million
Spent on programs
100%
Reserves
4.5 months of spending
Largest source of income
donations and private grants, 100%
Employees
0
Volunteers
5

Source: Form 990 for the year ending May 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 78 out of 100. Higher than 41% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    20 of 35

    Spendable reserves would cover 4.5 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 1% of income.

  • Income trend

    15 of 15

    Income rose 609% on the year before.

  • Spending floor

    15 of 15

    100% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending May 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Weak: 35 out of 100. Higher than 4% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    18 of 25

    4 of 4 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Independent check of accounts

    0 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending May 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $1.0 million spent. UC Davis and MIND Institute research funding for gene therapy. Research and development investigating three 3 different gene therapy approaches in cells neurons and mouse model characterization including EEG and biomarker investigations. Three approaches to move forward with an AAV as the top program.
  2. $37,500 spent. RareBase research funding repurposed drug identification. Phase 3 research and development investigating repurposed drug treatments that increase ADNP expression on human neurons. Final selection of top 10 candidates additional screening including lab work on top single candidate. *FINAL PAYMENT FOR PROJECT
  3. $26,000 spent. Seaver Autism Center at Mount Sinai research funding for continued ADNP treatment investigations. Continuation of supporting grant applications for low dose KET. investigating low throughput screening animal model characterization biomarker identification in neurons for efficacy in future treatment studies.
  4. $21,150 spent. Program Services Related Other including contact registry patient registry office expenses business expenses information technology website expenses online security expenses and expenses for research and program related conferences and research meetings all program related.

Source: Form 990 for the year ending May 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending May 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2017.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.