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Danny Did Foundation

EIN 27-1642251 · Evanston, IL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES. 3.4 MILLION PEOPLE ARE FACING THE CHALLENGES OF EPILEPSY IN THE U.S. AND MORE THAN 50 MILLION PEOPLE ARE AFFECTED BY EPILEPSY WORLDWIDE. THE ISSUE OF AGGRESSIVELY ADDRESSING SUDEP IS AS URGENT AS IT IS LOGICAL.

Income
$1.7 million
Spending
$1.5 million
Spent on programs
76%
Reserves
25.7 months of spending
Largest source of income
donations and private grants, 100%
Employees
5
Volunteers
115
Highest pay
$171,765, president

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 83% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 25.7 months of spending.

  • Debt

    20 of 20

    It owes 3% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 14% of income.

  • Income trend

    15 of 15

    Income rose 8% on the year before.

  • Spending floor

    15 of 15

    76% of spending went to programs and raising each dollar of donations cost 9 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    25 of 25

    16 of 16 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $1.1 million spent. THE FOUNDATION ADVANCES PUBLIC AWARENESS OF EPILEPSY AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), STRIVES TO IMPROVE SUDEP DISCLOSURE BETWEEN MEDICAL PROFESSIONALS AND FAMILIES AFFECTED BY SEIZURES, AND ADVOCATES FOR THE MAINSTREAM ACCEPTANCE AND USE OF SEIZURE DETECTION AND PREDICTION DEVICES THAT MAY ASSIST IN PREVENTING SEIZURE-RELATED DEATHS. IN 2024, DANNY DID SUBSIDIZED 712 SEIZURE DETECTION DEVICES FOR FAMILIES IN FINANCIAL NEED AND HUNDREDS MORE WERE COUNSELED ON DEVICES AND WAYS TO PROTECT THEIR LOVED ONES LIVING WITH EPILEPSY. IN 2024, THIRTY NINE FAMILIES WERE PROVIDED TRAVEL ASSISTANCE GRANTS SO THEY COULD ATTEND EPILEPSY EDUCATIONAL CONFERENCES. SUDEP AWARENESS WAS SHARED ON BILLBOARDS ALONG HIGHWAYS AND IN AIRPORTS, IN SPANISH ON BUILDING BOARDS THROUGHOUT CHICAGO, ON WEBMD, MEDSCAPE, STREAMING TV CHANNELS, ON ELEVEN RADIO STATIONS, THROUGHOUT CHICAGO ON A BUS, AND AT WALKS, CONFERENCES AND EXPOS.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since April 2010.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.