Designer Genes of North Dakota Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
Designer Genes of North Dakota exists to strengthen opportunities for individuals with Down syndrome and those who support them to earn, learn, and belong.
- Income
- $163,773
- Spending
- $157,226
- Reserves
- 13.1 months of spending
- Largest source of income
- donations and private grants, 97%
- Highest pay
- $72,187, executive dir.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 100 out of 100. Higher than 87% of charities in its peer group (human services, under $250k).
Reserves
35 of 35Spendable reserves would cover 13.1 months of spending.
Debt
20 of 20It owes 1% of what it owns.
Living within its means
15 of 15Income exceeded spending by 4% of income.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $48,012 spent. Membership Community Events - We hosted several community-building events, including:a. The Annual Walk for Down Syndrome, to celebrate the Down syndrome community and raise awareness.b. Seasonal family gatherings like the Annual Picnic, Supper with Santa, and awareness-themed events for World Down Syndrome Day.c. iCan Bike Camp.d. The Bikers 4 Bikers fundraiser, helping raise awareness fnd funding to sustain programs. e. Regional meetups and member connection events throughout the year.f. A key hightlight was the introduction of statewide meetups, a new program service designed to increase connection and accessibilty for families across North Dakota. These meetups created opportunities for individuals and families to build relationships, share experiences, and strengthen local support networks.
- $2,628 spent. Member Support - Provided individualized support and navigation to over 250 families across North Dakota. This included guidance on accessing Early Intervention, IEP support, transition services, Medicaid, SSI, and other systems of care. Support was offered through in-person meetings, phone consultations, resource navigation, and referrals. Designer Genes supported all known new diagnoses of Down syndrome across the state with welcome packages, connection to local support networks, and one-on-one family mentoring.We facilitated ongoing community-based life skills and connection programming for individuals ages 18 years and older with Down syndrome and developmental disabilities. GROW focuses on healthy relationships, social engagement, self-advocacy, and belonging.
- Public Awareness - Engaged in year-round advocacy at the local, state, and national level. Designer Genes also shared educational campaigns during Down Syndrome Awareness Month.Education and Resource Development - We offered presentations and training for educators, caregivers, and professionals. We supported mock interviews and membership meet-up to support families and individuals navigating life.Designer Genes created and distributed educational materials, including fact sheets on disability systems, Down syndrome awareness and various state conferences throughout the year as well as with program managers.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since January 2011.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.