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Cure Cmd Inc

EIN 26-2640975 · Lakewood, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong93 out of 100GovernanceGood80 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

Cure CMDs mission is to advance research toward treatments for the congenital muscular dystrophies and empower those living with CMD through engagement and support of our community.

Income
$677,234
Spending
$442,453
Spent on programs
68%
Reserves
7.1 months of spending
Largest source of income
donations and private grants, 99%
Employees
5
Volunteers
5
Highest pay
$108,898, executive director secretary

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 93 out of 100. Higher than 68% of charities in its peer group (medical research, $250k to $1m).

  • Reserves

    28 of 35

    Spendable reserves would cover 7.1 months of spending.

  • Debt

    20 of 20

    It owes 7% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 35% of income.

  • Income trend

    15 of 15

    Income rose 17% on the year before.

  • Spending floor

    15 of 15

    68% of spending went to programs and raising each dollar of donations cost 8 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 80 out of 100. Higher than 57% of charities in its peer group (medical research, $250k to $1m).

  • Independent board

    25 of 25

    12 of 12 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $153,442 spent. See schedule O
  2. $103,642 spent. Outreach & Education - While we work with the research community to identify a pipeline of future treatments for the congenital muscular dystrophies Cure CMD supports the affected community where they are today through a variety of supportive content and connections that are responsive to the their needs and giving them a prominent voice in determining Cure CMDs priorities and future programming. We host the CMD Scientific and Family Conference SciFam: scifam.info bringing together stakeholders from around the world to learn share and interrogate research progress. We host an ongoing webinar series that explores topics relevant to those living with or caring for someone with CMD. We host online support groups and other opportunities for community members to connect and share their experiences. Our Legislative Advocacy Team forges a path for community members to share their story and their needs with local state and federal policy makers. And our Executive and Scientific Directors provide 1:1 support for those newly diagnosed and struggling to understand where they should begin to ensure their affected loved one has the best possible quality of life. These are just some of the opportunities we offer to support those living with CMD and will continue to evolve our programming to best serve the communitys ever-changing needs.
  3. $41,686 spent. Patient Registry - Cure CMD is the administrator of the Congenital Muscle Disease International Registry CMDIR the largest database of congenital muscle disease CMD affected individuals. Our goal is to achieve global registration of the CMD community and serve as the central hub for up to date information regarding clinical studies and trials expert diagnostics and care and resources to educate affected individuals families and caregivers. Through the CMDIR the CMD community has a home a place to register - with or without genetic confirmation - and a means by which to be notified about news resources and opportunities to participate in clinical trials. The data collected and information provided has been developed with the review direction and advice of research and clinical experts affected individuals and caregivers and industry and government representatives in an effort to create a meaningful tool designed to drive the community toward treatments. The team behind the CMDIR continues to refine and perfect this tool in constant evolution to best serve the needs of the CMD stakeholder community.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 2008.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.