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New Jersey Center for Tourette Syndrome and Associated Disorders

EIN 26-1388409 · Somerville, NJ

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceGood80 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

MISSION STATEMENT TO ENSURE CHILDREN AND ADULTS WITH TOURETTE SYNDROME ARE EMPOWERED AND ACCEPTED THROUGH EDUCATION, ADVOCACY AND RESEARCH. VISION STATEMENT A COMMUNITY IN WHICH THOSE WITH TS AND ASSOCIATED DISORDERS ARE UNDERSTOOD AND EMPOWERED. THE VISION STATEMENT MAKES A COMMITMENT TO THE FUTURE WHERE TS WILL NO LONGER BE MISUNDERSTOOD AND UNRECOGNIZED AS A CONDITION THAT CURRENTLY AFFECTS ONE MILLION PEOPLE IN THE UNITED STATES. VALUES F - FORWARD THINKING - INNOVATIVE APPROACH TO MANAGING ALL AREAS OF THE BUSINESS. A - ACCEPTING - CREATING A COMMUNITY WHERE PEOPLE WITH TS ARE ACCEPTED. I - INSPIRING - EMPOWERING THOSE WITH TS TO SELF-ADVOCATE. T - TRANSFORMATIVE - CHANGING THE LIVES OF THOSE AFFECTED BY THE DISORDER. H - HOLISTIC - LOOKING BEHIND THE TS AND SEEING THE WHOLE PERSON.

Income
$1.4 million
Spending
$1.2 million
Spent on programs
69%
Reserves
12 months of spending
Largest source of income
government grants, 62%
Employees
10
Volunteers
266
Highest pay
$128,610, asst exec di

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 88% of charities in its peer group (health care, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 12.0 months of spending.

  • Debt

    20 of 20

    It owes 13% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 13% of income.

  • Income trend

    15 of 15

    Income rose 30% on the year before.

  • Spending floor

    15 of 15

    69% of spending went to programs and raising each dollar of donations cost 16 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 80 out of 100. Higher than 31% of charities in its peer group (health care, $1m to $10m).

  • Independent board

    5 of 25

    0 of 10 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $826,143 spent. THE NEW JERSEY CENTER FOR TOURETTE SYNDROME (NJCTS) IS THE STATE'S ONLY ORGANIZATION EXCLUSIVELY DEDICATED TO SERVING INDIVIDUALS WITH TOURETTE SYNDROME (TS), A NEUROLOGICAL DISORDER CHARACTERIZED BY INVOLUNTARY MOVEMENTS AND VOCAL TICS. THE CDC ESTIMATES THAT 1 IN 50 SCHOOL-AGED CHILDREN LIVES WITH TS OR A PERSISTENT TIC DISORDER. NJCTS'S MISSION IS TO EMPOWER INDIVIDUALS WITH TS AND ASSOCIATED DISORDERS WHILE FOSTERING A CULTURE OF ACCEPTANCE AND UNDERSTANDING. WE FULFILL THIS MISSION THROUGH A COMPREHENSIVE SUITE OF PROGRAMS, INCLUDING CAMP FANTASTIC, THE TIM HOWARD LEADERSHIP ACADEMY, PHYSICIAN REFERRALS, SCHOOL IN-SERVICE TRAININGS, MEDICAL GRAND ROUNDS, TEEN PROGRAMS, THE RUTGERS TS CLINIC, AND MONTHLY WEBINARS, ENSURING MEANINGFUL SUPPORT ACROSS ALL STAGES OF LIFE. THE NEW JERSEY CENTER FOR TOURETTE SYNDROME (NJCTS) IS THE STATE'S ONLY ORGANIZATION EXCLUSIVELY DEDICATED TO SERVING INDIVIDUALS WITH TOURETTE SYNDROME (TS), A NEUROLOGICAL DISORDER CHARACTERIZED BY INVOLUNTARY MOVEMENTS AND VOCAL TICS. THE CDC ESTIMATES THAT 1 IN 50 SCHOOL-AGED CHILDREN LIVES WITH TS OR A PERSISTENT TIC DISORDER. NJCTS'S MISSION IS TO EMPOWER INDIVIDUALS WITH TS AND ASSOCIATED DISORDERS WHILE FOSTERING A CULTURE OF ACCEPTANCE AND UNDERSTANDING. WE FULFILL THIS MISSION THROUGH A COMPREHENSIVE SUITE OF PROGRAMS, INCLUDING CAMP FANTASTIC, THE TIM HOWARD LEADERSHIP ACADEMY, PHYSICIAN REFERRALS, SCHOOL IN-SERVICE TRAININGS, MEDICAL GRAND ROUNDS, TEEN PROGRAMS, THE RUTGERS TS CLINIC, AND MONTHLY WEBINARS, ENSURING MEANINGFUL SUPPORT ACROSS ALL STAGES OF LIFE.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2008.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.