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Lymphatic Malformation Alliance Inc

EIN 26-1224181 · Saint Petersburg, FL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood79 out of 100GovernanceNot ratedThe short tax form does not cover thisImpact evidenceDescribes programsHow well its results are evidenced

What it says it does

WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION AND PATIENT DISCUSSION FORUM.

Income
$118,890
Spending
$153,100
Reserves
27 months of spending
Largest source of income
donations and private grants, 96%
Highest pay
$64,608, director of operations

Source: Form 990EZ for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 79 out of 100. Higher than 53% of charities in its peer group (diseases, under $250k).

  • Reserves

    35 of 35

    Spendable reserves would cover 27.0 months of spending.

  • Debt

    20 of 20

    It owes 3% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 29% of income.

Source: Form 990EZ for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.

Source: Form 990EZ for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $44,000 spent. OUR PATIENT SUPPORT SERVICES INCLUDED THE MANAGEMENT OF OUR PATIENT REGISTRY TO SUPPORT RESEARCH NEEDS, TRACK VITAL INFORMATION ABOUT CLAS, AND ANSWER QUESTIONS ABOUT THE DISEASES. THE PROGRAMS ALSO SUPPORTS THE MANAGEMENT OF SEVERAL ONLINE SUPPORT GROUPS.
  2. $37,369 spent. OUR OUTREACH PROGRAM INCREASES AWARENESS OF THE CLAS THROUGH OUR WEBSITE, SOCIAL MEDIA, AND EVENTS SUCH AS CLA AWARENESS DAY AND RARE DISEASE DAY. PARTNERSHIPS WITH OTHER RARE DISEASE ORGANIZATIONS AND FOUNDATIONS. ALSO, COVERS WORK FOR NEWSLETTER AND WORK WITH ADVISORY COUNCILS.
  3. $31,046 spent. RESEARCH - IN THIS AREA, WE HOST A CLA WEBINAR SERIES FOR RESEARCH. PRESENTATIONS ARE POSTED ONLINE FOR THE GENERAL PUBLIC. RAISED FUNDS FOR RESEARCH GRANTS SPECIFIC TO CLAS. ALSO, LAY SUMMARIES ARE CREATED TO EDUCATE THE PUBLIC ABOUT NEW RESEARCH PAPERS AND DISCOVERIES. THIS AREA ALSO COVERS WORK WITH OUR MEDICAL AND SCIENTIFIC ADVISORY COUNCIL.

Source: Form 990EZ for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2008.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.