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Hereditary Angioedema Association Inc

EIN 25-1852548 · Fairfax, VA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong95 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

SEE SCHEDULE O COMMENT.

Income
$10.0 million
Spending
$5.5 million
Spent on programs
92%
Reserves
44.8 months of spending
Largest source of income
donations and private grants, 93%
Employees
21
Volunteers
1,000
Highest pay
$336,688, former senior executive vpcoo

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 95 out of 100. Higher than 85% of charities in its peer group (health care, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 44.8 months of spending.

  • Debt

    20 of 20

    It owes 3% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 45% of income.

  • Income trend

    10 of 15

    Income fell 2% on the year before.

  • Spending floor

    15 of 15

    92% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 67% of charities in its peer group (health care, $1m to $10m).

  • Independent board

    25 of 25

    4 of 6 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $5.1 million spent. THE HAE ASSOCIATIONS OVERALL OBJECTIVE IS TO SAVE LIVES AND RAISE THE QUALITY OF LIFE FOR PATIENTS WITH THE RARE, DEBILITATING, AND POTENTIALLY FATAL RARE DISEASE HEREDITARY ANGEODEMA. WE PROVIDE PATIENTS AND PHYSICIANS WITH ESSENTIAL, AUTHORITATIVE INFORMATION AIMED AT INCREASING DIAGNOSIS RATES AND HELPING PATIENTS FIND AN APPROPRIATE TREATMENT. WE OFFER AN ARRAY OF PROGRAMS, SERVICES, AND ACTIVITIES THAT INCLUDE CONTINUING MEDICAL EDUCATION, IN PERSON AND WEB BASED SEMINARS, PATIENT AND SCIENTIFIC CONFERENCES, SUPPORT GROUPS, AND INDIVIDUAL COUNSELING. THE HAEA WEBSITE AND EXTENSIVE SOCIAL MEDIA PRESENSE ENHANCES OUR ABILITY TO REACH AND DISSEMINATE INFORMATION TO THE PATIENT AND PHYSICIAN COMMUNITIES. WE ARE STAUNCH ADVOCATES FOR (1) PATIENT ACCESS TO AND SUFFICIENT INSURANCE REIMBURSEMENT FOR CURRENTLY AVAILABLE THERAPIES, AND (2) RESEARCH DIRECTED TOWARDS HELPING PATIENTS IMPROVE THEIR QUALITY OF LIFE AND, ULTIMATELY, FINDING A CURE. THE HAEA ALSO CONDUCTS NATIONAL PATIENT AND PHYSICIAN MEETINGS, AND OFFERS A VARIETY OF SERVICES TO INDIVIDUALS AND FAMILIES THAT INCLUDE PHYSICIAN AND CLINICAL TRIAL REFERRALS AND ASSISTANCE IN DEALING WITH DISEASE-RELATED EMERGENCIES.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since January 2007.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.