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Spina Bifida Assoc of Jacksonville Inc

EIN 23-7432288 · Jacksonville, FL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood70 out of 100GovernanceFair59 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

SPINA BIFIDA OF JACKSONVILLE, ESTABLISHED IN 1973, IS A 501(C)(3) NON- PROFIT ORGANIZATION DEDICATED TO SUPPORTING INDIVIDUALS AND FAMILIES AFFECTED BY SPINA BIFIDA. THEIR MISSION FOCUSES ON ADVOCACY, EDUCATION, AND PROVIDING ESSENTIAL SERVICES TO THE LOCAL COMMUNITY.

Income
$97,737
Spending
$254,121
Spent on programs
100%
Reserves
55 months of spending
Largest source of income
donations and private grants, 100%
Employees
3
Highest pay
$37,921, executive di

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 70 out of 100. Higher than 39% of charities in its peer group (diseases, under $250k).

  • Reserves

    35 of 35

    Spendable reserves would cover 55.0 months of spending.

  • Debt

    20 of 20

    It owes 2% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 160% of income.

  • Income trend

    0 of 15

    Income fell 53% on the year before.

  • Spending floor

    15 of 15

    100% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Fair: 59 out of 100. Higher than 39% of charities in its peer group (diseases, under $250k).

  • Independent board

    25 of 25

    9 of 9 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $254,121 spent. ADVOCACY AND EDUCATION: THE ORGANIZATION ACTIVELY RAISES AWARENESS ABOUT SPINA BIFIDA, A NEURAL TUBE DEFECT RESULTING FROM THE SPINE'S FAILURE TO CLOSE PROPERLY DURING EARLY PREGNANCY. WE PROVIDE INFORMATION AND SUPPORT TO FAMILIES, HELPING THEM NAVIGATE THE CHALLENGES ASSOCIATED WITH THE CONDITION. SUPPORT PROGRAMS: SPINA BIFIDA OF JACKSONVILLE OFFERS VARIOUS PROGRAMS, INCLUDING: -MEDICAL RESOURCES: PROVIDE INFORMATION AND SPECIALIZED MEDICAL RESOURCES. WE ALSO PROVIDE MEDICAL REIMBURSEMENTS FOR MEDICALLY NECESSARY ITEMS NOT COVERED BY INSURANCE. -MEDICAL SUPPLIES: ASSISTING FAMILIES IN OBTAINING NECESSARY MEDICAL EQUIPMENT. -MEDICAL EDUCATION OPPORTUNITIES: SPONSOR FAMILIES AT AN ANNUAL DISABILITIES AND MEDICAL SERVICES CONVENTION. -TRANSPORTATION RESOURCES: OFFERING SUPPORT FOR TRANSPORTATION NEEDS. -FAMILY SOCIALS AND GATHERINGS: EVENTS AND DINNERS FOR THE WHOLE FAMILY CATERED TO THEIR UNIQUE NEEDS. "LOVE WHAT DRIVES YOU" CAMPAIGN: THIS INITIATIVE COLLABORATES WITH THE AUTOMOTIVE COMMUNITY TO ENHANCE MOBILITY FOR FAMILIES AFFECTED BY SPINA BIFIDA. THE CAMPAIGN FOCUSES ON UPDATING VEHICLES WITH RAMPS AND ADAPTIVE EQUIPMENT, WHICH ARE THEN DONATED TO FAMILIES IN NEED. OUR GOAL IS TO "FUEL INDEPENDENCE IN THE SPINA BIFIDA COMMUNITY." FOSTERING COMMUNITY PARTNERSHIPS TO RAISE FUNDS AND OPEN UP OPPORTUNITIES FOR OUR FAMILIES. THE AMELIA CONCOURS IS AN EXAMPLE. ANNUAL JACKSONVILLE GRAND PRIX: SPINA BIFIDA OF JACKSONVILLE ORGANIZES THE JACKSONVILLE GRAND PRIX, A GO-KART RACING EVENT THAT HAS RAISES APPROXIMATELY 10,000 FOR THE ORGANIZATION. THIS EVENT NOT ONLY SERVES AS A FUNDRAISER BUT ALSO AS A UNIQUE COMMUNITY GATHERING TO SUPPORT THE CAUSE. AVONLEA ANTIQUES AND ART BOOTH IS STOCKED WITH DONATED ITEMS. NOT ONLY IS IT GREAT EXPOSURE FOR US BUT IS ALSO GOOD ADVERTISING. THROUGH THESE INITIATIVES, SPINA BIFIDA OF JACKSONVILLE CONTINUES TO MAKE SIGNIFICANT STRIDES IN SUPPORTING INDIVIDUALS AND FAMILIES IMPACTED BY SPINA BIFIDA, FOSTERING A SENSE OF COMMUNITY, AND ENHANCING THE QUALITY OF LIFE FOR THOSE AFFECTED. ADVOCACY AND EDUCATION: THE ORGANIZATION ACTIVELY RAISES AWARENESS ABOUT SPINA BIFIDA, A NEURAL TUBE DEFECT RESULTING FROM THE SPINE'S FAILURE TO CLOSE PROPERLY DURING EARLY PREGNANCY. WE PROVIDE INFORMATION AND SUPPORT TO FAMILIES, HELPING THEM NAVIGATE THE CHALLENGES ASSOCIATED WITH THE CONDITION. SUPPORT PROGRAMS: SPINA BIFIDA OF JACKSONVILLE OFFERS VARIOUS PROGRAMS, INCLUDING: -MEDICAL RESOURCES: PROVIDE INFORMATION AND SPECIALIZED MEDICAL RESOURCES. WE ALSO PROVIDE MEDICAL REIMBURSEMENTS FOR MEDICALLY NECESSARY ITEMS NOT COVERED BY INSURANCE. -MEDICAL SUPPLIES: ASSISTING FAMILIES IN OBTAINING NECESSARY MEDICAL EQUIPMENT. -MEDICAL EDUCATION OPPORTUNITIES: SPONSOR FAMILIES AT AN ANNUAL DISABILITIES AND MEDICAL SERVICES CONVENTION. -TRANSPORTATION RESOURCES: OFFERING SUPPORT FOR TRANSPORTATION NEEDS. -FAMILY SOCIALS AND GATHERINGS: EVENTS AND DINNERS FOR THE WHOLE FAMILY CATERED TO THEIR UNIQUE NEEDS. "LOVE WHAT DRIVES YOU" CAMPAIGN: THIS INITIATIVE COLLABORATES WITH THE AUTOMOTIVE COMMUNITY TO ENHANCE MOBILITY FOR FAMILIES AFFECTED BY SPINA BIFIDA. THE CAMPAIGN FOCUSES ON UPDATING VEHICLES WITH RAMPS AND ADAPTIVE EQUIPMENT, WHICH ARE THEN DONATED TO FAMILIES IN NEED. OUR GOAL IS TO "FUEL INDEPENDENCE IN THE SPINA BIFIDA COMMUNITY." FOSTERING COMMUNITY PARTNERSHIPS TO RAISE FUNDS AND OPEN UP OPPORTUNITIES FOR OUR FAMILIES. THE AMELIA CONCOURS IS AN EXAMPLE. ANNUAL JACKSONVILLE GRAND PRIX: SPINA BIFIDA OF JACKSONVILLE ORGANIZES THE JACKSONVILLE GRAND PRIX, A GO-KART RACING EVENT THAT HAS RAISES APPROXIMATELY 10,000 FOR THE ORGANIZATION. THIS EVENT NOT ONLY SERVES AS A FUNDRAISER BUT ALSO AS A UNIQUE COMMUNITY GATHERING TO SUPPORT THE CAUSE. AVONLEA ANTIQUES AND ART BOOTH IS STOCKED WITH DONATED ITEMS. NOT ONLY IS IT GREAT EXPOSURE FOR US BUT IS ALSO GOOD ADVERTISING. THROUGH THESE INITIATIVES, SPINA BIFIDA OF JACKSONVILLE CONTINUES TO MAKE SIGNIFICANT STRIDES IN SUPPORTING INDIVIDUALS AND FAMILIES IMPACTED BY SPINA BIFIDA, FOSTERING A SENSE OF COMMUNITY, AND ENHANCING THE QUALITY OF LIFE FOR THOSE AFFECTED.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since April 1979.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.