Bleeding Disorders Association of South Carolina
Public records show a registered, tax-exempt organization in good standing.
What it says it does
To raise awareness for and advocate on behalf of persons with bleeding disorders and their families provide education and supportive services and promote ongoing research to improve the quality of life for those affected.
- Income
- $484,313
- Spending
- $519,539
- Spent on programs
- 91%
- Reserves
- 12.1 months of spending
- Largest source of income
- donations and private grants, 84%
- Employees
- 0
- Highest pay
- $81,000, director
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 79 out of 100. Higher than 76% of charities in its peer group (housing, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 12.1 months of spending.
Debt
20 of 20It owes 1% of what it owns.
Living within its means
4 of 15Spending exceeded income by 7% of income.
Income trend
5 of 15Income fell 19% on the year before.
Spending floor
15 of 1591% of spending went to programs and raising each dollar of donations cost 0 cents.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Weak: 36 out of 100. Higher than 3% of charities in its peer group (housing, $250k to $1m).
Independent board
5 of 250 of 11 voting board members are independent.
Conflict of interest policy
0 of 15Reports no written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
0 of 5Reports that it does not keep minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
6 of 15Its accounts were not audited or reviewed by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (17)
- $78,852 spent. BDASC Chapter Day at Camps The Bleeding Disorders Association of South Carolina partnered with the South Carolina Hemophilia Treatment Centers and the State Department of Health and Environmental Control to host special Chapter Days at summer camps across the state. These events were designed to support children living with bleeding disorders who are patients of Prisma Health Hospitals at Midstate and Upstate. To ensure accessibility, BDASC provided travel assistance for families in need of transportation support. Each camper received a Chapter Camp Bag filled with fun and useful items, and all camp sessions featured a BDASC-sponsored Ice Cream Social. These special touches helped create a supportive and joyful environment for learning and connection. Camp experiences offered children the chance to build self-confidence and independence, with additional mentoring from BDASC volunteers to reinforce positive self-help and life skills. Our involvement also extended to Camp Courage and the Brave Blood family camp hosted by Prisma Health Upstate HTC in Greenville, ensuring continuity of support and encouragement across all regional programs.
- $73,753 spent. BDASC Advocacy/Legislative Days in Columbia Our annual Advocacy and Legislative Days event in Columbia was attended by approximately 68 individuals, including community members living with bleeding disorders, healthcare providers, local and national partner organizations, representatives from the South Carolina Department of Health and Environmental Control, Children with Special Health Care Needs, and our valued industry partners. The event provided critical advocacy awareness and training for attendees, helping to build understanding of current healthcare access initiatives supported by the Chapter. It also served as a platform to voice community concerns and to educate elected officials about the real-life challenges of living with bleeding disorders. Informational materials and resources were distributed to state agencies and government representatives to strengthen their understanding and support of our cause. Participants supported 38 meetings with our South Carolina Legislators, educating them on policies that harm patients access to treatment care.
- $62,824 spent. Mens, Womens, Young Families, VWD, and Rare Support Groups BDASC facilitated 10 targeted support group activities throughout the state, engaging individuals from various regions and diverse bleeding disorder communities, including those with Von Willebrand Disease (VWD) and ultra rare bleeding disorders. These programs served men, women, young families, teens, and children, offering both educational content and emotional support. Each gathering was designed to foster empowerment, build lasting friendships, and provide a space where individuals could share experiences, learn from one another, and navigate the challenges of living with a bleeding disorder together.
- $59,644 spent. National Annual Meeting Education and Research Support As an active chapter of the National Bleeding Disorders Foundation and a member of the Hemophilia Federation of America, we strongly encourage participation in national events. This year, we provided financial support to six individuals and their families to attend these important national meetings. In addition, we contributed to bleeding disorder research initiatives and supported global efforts through funding provided to the National Bleeding Disorders Foundation. These efforts ensure our community stays informed and engaged with the latest advancements and global perspectives in care and advocacy
- $43,906 spent. Newsletter, Website, and E-Blasts BDASC maintained strong and consistent communication with our community through a variety of digital and print channels. Our quarterly newsletter featured updates on Chapter activities, national news, treatment product information, educational articles, and member highlightsserving as a vital resource for staying connected and informed. Our website continues to be a central hub of support and education, offering resources for individuals and families affected by bleeding disorders. In addition, we distributed weekly e-blasts to over 2,000 subscribers nationwide, sharing timely updates on events, advocacy efforts, research, and educational opportunities. .
- $40,506 spent. BDASC 52nd Annual State Meeting and Educational Conference Day We proudly hosted our 52nd Annual Statewide Meeting and Educational Conference, a two-day event that brought together over 155 attendees from across South Carolina and beyond. This included members of the bleeding disorders community, healthcare professionals, and organizational partners. The event featured the HELLO Conference Helping Embrace Life Learning Opportunities, with eight presentations designed to support individuals and families in living their best lives with a bleeding disorder. Sessions included topics on advocacy, treatment care, and personal growth. The weekend opened with a celebratory Friday evening dinner, including community awards, recognition of the Board of Directors, and a keynote presentation. Saturday offered educational breakouts, teen programming, and childcare services. Attendees also had the opportunity to engage with home care and pharmaceutical companies at the exhibit hall to learn about the latest therapies and services available.
- $40,505 spent. 2025 Inaugural Fall Advocacy and Medical Summit (FAMS) Our FAMS (Family Advocacy & Member Summit) event was designed as a community-centered, action-oriented gathering focused on bringing together individuals and families affected by bleeding disorders to strengthen connection, elevate voices, and drive meaningful change. FAMS weekend brought our community together to share, learn, and leadturning lived experiences into action that drives connection, advocacy, and lasting impact. FAMS served as a safe, engaging space where our community share lived experiences across generations and diagnoses, learn about advocacy, healthcare access, and policy issues (like copay accumulators/maximizers), we built relationships between families, adults, teens, and stakeholders, explore the future of care with emerging treatments and innovations therapies while empowering our voices to influence decisions at both the state and national level. It wasnt just an educational eventit was about belonging, empowerment, and collective impact. We host 36 families across the state and had a total of 149 participants.
- $30,432 spent. The Carolina Crew North and South Carolina Teen Retreat The Carolina Crew Teen Retreat brought together 30 teens, ages 1318, from across North and South Carolina for a four-day weekend dedicated to growth, connection, and empowerment. Open to teens living with a bleeding disorder, as well as those with an affected sibling or parent, the retreat offered a supportive environment to foster friendships, independence, and resilience. Participants took part in a variety of educational sessions and outdoor team-building activities, helping to strengthen peer relationships and develop a reliable support network. A key focus of the retreat was encouraging teens to advocate for themselvesparticularly during the challenging transition to adulthood. A special session was held to build self-advocacy skills, while mentorship opportunities provided guidance and reassurance in navigating life with a bleeding disorder.
- $17,902 spent. Washington Days In March, BDASC proudly represented South Carolina at the national Washington Days advocacy event in Washington, D.C. Alongside over 385 advocates from across the country, our delegation engaged in seven meetings with U.S. Congressional offices to discuss continued access to care and treatment for those affected by bleeding disorders. We provided financial assistance to eleven community members, empowering them to participate in federal-level advocacy and to share their personal stories with lawmakers.
- $13,685 spent. Rural Outreach Support Programming: The Voices of 46 In 2025, BDASC conducted over 60 in-person educational outreach programs across South Carolina, reaching communities in the Upstate, Midlands, and Lowcountry regions. These efforts reduced the need for long-distance travel and ensured that families living in rural and underserved areas had access to critical information and support. Program topics included scholarship and camp opportunities, insurance navigation, healthcare policy updates, school and employment resources, bleeding disorders education, and advocacy training. Through this extensive outreach, we were able to provide educational and networking support to hundreds of families throughout the state. As part of our commitment to awareness, BDASC led efforts during National Bleeding Disorders Awareness Month in March, securing proclamations from state, county, and city officials to recognize and elevate the visibility of bleeding disorders across South Carolina. In addition to these efforts, we launched a statewide initiative to proclaim special days of awareness specifically honoring our Von Willebrand Disease (VWD) and rare bleeding disorder communities, and our women who bleedensuring their unique challenges and needs received the recognition they deserve.
- $12,604 spent. Winter Year-End State Meeting and Holiday Celebration Our Winter Year-End State Meeting and Holiday Celebration welcomed 45 participantsincluding adults, children, and teensfor a day of reflection, celebration, and education. This one-day event served as the Chapters final community gathering of the year, highlighting BDASCs accomplishments and program impacts. In addition to festive holiday activities for all ages, the event featured an educational session focused on strengthening advocacy skills, empowering attendees to continue engaging in the community and with policymakers throughout the year.
- Public Awareness
- Emergency Assistance Program and Scholarships BDASC continued its commitment to supporting families and individuals impacted by bleeding disorders through our Emergency Assistance Program, and Scholarship Fund. In 2025, we granted 121 financial aid requests to individuals and families totaling over $29,000. This vital support helped community members facing unexpected financial hardship due to living with bleeding disorders and provided opportunities for support and education. In addition, BDASC awarded six college scholarships to eligible students affected by bleeding disorders, helping them pursue higher education while managing the challenges of their condition. These initiatives reflect our dedication to improving quality of life and long-term success for our community.
- Par for the Clot Charity Golf Awareness Fundraiser Now in its eleventh year, our "Par for the Clot" charity golf tournament continues to grow as a successful fundraising and awareness initiative. With 175 participants, including volunteers and community members, the event raised vital funds to support BDASCs education programs, advocacy work, and contributions to national research. Beyond fundraising, this event served as an educational outreach effort, helping the broader public better understand the physical, emotional, and financial impact of a bleeding disorder diagnosis on individuals and families.
- STEP for Bleeding Disorders Walk for Hemophilia and Bleeding Disorders Our annual STEP for Bleeding Disorders Walk is a key fundraiser and awareness campaign for BDASC. This community event drew over 165 participants from across South Carolina. More than just a walk, it encourages fitness and well-being among individuals with hemophilia and other bleeding disorders while educating the general public. Funds raised from the walk directly support our mission-driven programs and services, expanding our reach and deepening public understanding of bleeding disorders.
- Virtual Innovation Program (VIP) In response to the COVID-19 pandemic, BDASC continued the Virtual Innovation Program (VIP), originally launched in 2020. The mission of VIP is to provide ongoing education, support services, and facilitate connections for our members using managed educational tools, such as iPads. Through the service of Mobile Device Management, we are able to deliver web clips, videos, apps, and URLs tailored to our communitys needs, along with Zoom virtual meeting capabilities. The program has been embraced by 82 families and individuals who have enrolled, offering a flexible, accessible way to stay engaged and informed. Given the success of this educational pilot, BDASC plans to continue the VIP, providing this valuable resource to additional members as funding allows for the acquisition of additional educational tools.
- Annual Adult Connections Retreats and Symposiums In addition to educating families with children and teens, we hosted dedicated retreats for adults in our community. These weekend gatherings offered opportunities for networking, peer support, and education directly from individuals and families living with bleeding disorders. The event welcomed 72 adult participants and focused on topics such as mental health, relationships, men and women's health, and more. Attendees reported a strong sense of belonging and connection, reinforcing the core mission of our organization through community empowerment.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since April 1998.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.