Epilepsy Association
Public records show a registered, tax-exempt organization in good standing.
What it says it does
EPILEPSEY ASSOCIATION RAISES AWARENESS FOR CHILDREN, ADULTS AND FAMILIES IN NORTHEAST OHIO THAT ARE IMPACTED BY EPILEPSY IN THE COMMUNITY, PROVIDE EDUCATION, ADVOCACY AND DIRECT SERVICES THATLEAD TO AN INCREASED UNDERSTANDING OF THE DISORDER AND TO BETTER MANAGEMENT OF THE CONDITION, RESILIENCE, PERSONAL FULFILLMENT, INDEPENDENCE AND THE ABILITY TO CONTRIBUTE MEANINGFULLY TO THE COMMUNITY.
- Income
- $641,757
- Spending
- $690,816
- Spent on programs
- 72%
- Reserves
- 18.1 months of spending
- Largest source of income
- donations and private grants, 70%
- Employees
- 8
- Volunteers
- 110
- Highest pay
- $93,396, executive director
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 84 out of 100. Higher than 52% of charities in its peer group (diseases, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 18.1 months of spending.
Debt
20 of 20It owes 6% of what it owns.
Living within its means
4 of 15Spending exceeded income by 8% of income.
Income trend
10 of 15Income fell 2% on the year before.
Spending floor
15 of 1572% of spending went to programs and raising each dollar of donations cost 22 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 90 out of 100. Higher than 72% of charities in its peer group (diseases, $250k to $1m).
Independent board
25 of 2530 of 30 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
0 of 10Did not give the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $271,887 spent. PATIENT SERVICES: THE ASSOCIATION PROVIDES COMMUNITY CASE MANAGEMENT AND MENTAL HEALTH ASSESSMENT SERVICES TO ADULT CLIENTS WHO ARE AFFECTED BY EPILEPSY. CLIENTS MEET WITH AGENCY CASE MANAGERS TO CREATE AN INDIVIDUALIZED SERVICE PLANS. PLANS ARE ESTABLISHED TO ASSIST CLIENTS IN MEETING IDENTIFIED GOALS. AN EMPHASIS IS PLACED ON CONSUMER CHOICE, MAINTAINING MEDICAL STABILITY, AND IMPROVING THE QUALITY OF LIFE FOR CLIENTS. IN 2024, THERE WERE ON AVERAGE 72 ADULTS WHO RECEIVED CASE MANAGEMENT AND OTHER SOCIAL SERVICES.
- $103,615 spent. PUBLIC HEALTH EDUCATION: THE ASSOCIATION PROVIDES EDUCATIONAL PRESENTATIONS TO A VARIETY OF COMMUNITY GROUPS, STUDENTS, TEACHERS, AND THE GENERAL PUBLIC TO INCREASE THE AWARENESS AND UNDERSTANDING OF EPILEPSY. EDUCATION IS PROVIDED ABOUT EPILEPSY FACTS, SEIZURE RECOGNITION, AND EPILEPSY FIRST AID. 56,736 INDIVIDUALS WERE REACHED THROUGH COMMUNITY EDUCATION PROGRAMS AND ANOTHER 151 INDIVIDUALS ACCESSED ASSISTANCE THROUGH INFORMATION AND REFERRAL PROGRAMMING.
- $118,741 spent. KIDS AND FAMILY: THE ASSOCIATION PROVIDES SUPPORT FOR FAMILIES WHO HAVE A CHILD WITH EPILEPSY. THE ASSOCIATION STAFF ASSESS THE NEEDS OF EACH FAMILY MEMBER WITH ONE-ON-ONE SUPPORT AND CONNECTS THEM WITH COMMUNITY SERVICES, PROVIDES GENERAL ASSISTANCE, EPILEPSY EDUCATION AND ADVOCACY. SERVICES ARE TAILORED TO MEET THE UNIQUE NEEDS OF EACH FAMILY. IN 2024, THERE WERE 273 CHILDREN AND FAMILIES WHO WERE SERVED THROUGH PROGRAMMING AND 84 VISITS PROVIDED TO INDIVIDUALS AND SCHOOLS.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since November 1972.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.