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Tourette Association of America Inc

EIN 23-7191992 · Bayside, NY

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood78 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS.

Income
$5.2 million
Spending
$5.8 million
Spent on programs
76%
Reserves
11.7 months of spending
Largest source of income
donations and private grants, 66%
Employees
38
Volunteers
52
Highest pay
$309,826, president & ceo

Source: Form 990 for the year ending February 28, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 78 out of 100. Higher than 44% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    28 of 35

    Spendable reserves would cover 11.7 months of spending.

  • Debt

    16 of 20

    It owes 18% of what it owns.

  • Living within its means

    4 of 15

    Spending exceeded income by 11% of income.

  • Income trend

    15 of 15

    Income rose 4% on the year before.

  • Spending floor

    15 of 15

    76% of spending went to programs and raising each dollar of donations cost 16 cents.

Source: Form 990 for the year ending February 28, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    25 of 25

    19 of 19 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending February 28, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $2.2 million spent. PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS.
  2. $949,883 spent. RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFICUNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BYPROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OFNEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS.
  3. $1.1 million spent. CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION ANDCDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROMETO PHYSICIANS AND ALLIED PROFESSIONALS AND TO ENCOURAGE PHYSICIANS TOAPPLY TO THE ASSOCIATION'S REFERRAL LISTS. INCLUDES PROGRAMS TOEDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME.
  4. $126,255 spent. PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OFTOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS,SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES.

Source: Form 990 for the year ending February 28, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending February 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since December 1982.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

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