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Sickle Cell Disease Association of Illinois

EIN 23-7157702 · Chicago, IL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair52 out of 100GovernanceGood81 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE MISSION OF THE SICKLE CELL DISEASE ASSOCIATION OF ILLINOIS IS TO RAISE AWARENESS OF THIS DISEASE AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WHO SUFFER WITH IT. WE DO THIS BY PROVIDING COMMUNITY OUTREACH PROGRAMS SUCH AS NEW BORN SCREENING, GENETIC COUNSELING AND EDUCATION.

Income
$545,780
Spending
$560,540
Spent on programs
81%
Reserves
0.5 months of spending
Largest source of income
government grants, 85%
Employees
5
Volunteers
50

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 52 out of 100.

  • Reserves

    4 of 35

    Spendable reserves would cover 0.5 months of spending.

  • Debt

    10 of 20

    It owes 34% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 3% of income.

  • Income trend

    15 of 15

    Income rose 40% on the year before.

  • Spending floor

    15 of 15

    81% of spending went to programs and raising each dollar of donations cost 5 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 81 out of 100.

  • Independent board

    25 of 25

    6 of 6 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    12 of 15

    Its accounts were reviewed or compiled by an independent accountant, but not audited.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $454,439 spent. A PATIENT GRANT PROGRAM WHICH ASSISTS WITH COUNSELING EDUCATION AND DIRECT GRANTS. PROVIDE VARIOUS FUNCTIONS IE..SUMMER CAMP, XMAS PARTY,BABY SHOWERS, ETC. THAT BRING TOGETHER SICKLE CELL PATIENT FORM AGES 7 TO 13. THE PROGRAMS ARE GEARED TO STRENGTHEN THE CHILDREN EMOTIONALLY AS WELL AS PHYSICALLY. PROVIDED A SCHOLARSHIP PROGRAM COMMITTED TO HELPING SICKLE CELL PATIENTS ATTAIN AN EDUCATION AT THE COLLEGE AND UNIVERSITY LEVEL. PROVIDE NEWBORN SCREEN SUPPORT TO AT RISK FAMILIES. PARTICIPATED IN ILLINOIS SICKLE CELL ACTION NETWORK (ISCAN) PROGRAM ESTABLISHED TO COLLECT CRITIAL INFORMATION ON THOSE WITH SICKLE CELL TO IMPROVE MEDICAL FOLLOW UP.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since December 1971.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.