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Living Beyond Breast Cancer

EIN 23-2734689 · Bala Cynwyd, PA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

LIVING BEYOND BREAST CANCER (LBBC) WAS FOUNDED IN 1991 AND IS A NATIONAL NONPROFIT ORGANIZATION THAT SEEKS TO CREATE A WORLD THAT UNDERSTANDS THERE IS MORE THAN ONE WAY TO HAVE BREAST CANCER. TO FULFILL ITS MISSION OF PROVIDING TRUSTED INFORMATION AND A COMMUNITY OF SUPPORT TO THOSE IMPACTED BY THE DISEASE, LBBC OFFERS ON-DEMAND EMOTIONAL, PRACTICAL, AND EVIDENCE-BASED CONTENT. LBBC ADDRESSES THE CURRENT NEEDS OF PEOPLE AFFECTED BY BREAST CANCER, WHETHER THEY ARE NEWLY DIAGNOSED, IN TREATMENT, RECOVERY OR LIVING WITH A HISTORY OF OR MANAGING A METASTATIC BREAST CANCER. RESOURCES ARE DEVELOPED IN COLLABORATION WITH THE NATION'S LEADING ONCOLOGISTS, HEALTH PROFESSIONALS, AND ALLIED ORGANIZATIONS AND ARE DELIVERED BY PEOPLE WHO UNDERSTAND THE PHYSICAL AND EMOTIONAL COMPLEXITIES OF BREAST CANCER IN A VARIETY OF WAYS - IN PERSON, PRINTED AND DIGITAL FORMATS.

Income
$8.2 million
Spending
$6.4 million
Spent on programs
84%
Reserves
36.6 months of spending
Largest source of income
donations and private grants, 84%
Employees
40
Volunteers
120
Highest pay
$343,847, chief executive officer

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 88% of charities in its peer group (health care, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 36.6 months of spending.

  • Debt

    20 of 20

    It owes 1% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 21% of income.

  • Income trend

    15 of 15

    Income rose 15% on the year before.

  • Spending floor

    15 of 15

    84% of spending went to programs and raising each dollar of donations cost 6 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 67% of charities in its peer group (health care, $1m to $10m).

  • Independent board

    25 of 25

    28 of 28 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $282,027 spent. EDUCATIONAL AND STORYTELLING WEBSITE:LBBC.ORG: THE WEBSITE GATHERS AND PRESENTS MEDICAL AND PSYCHOSOCIAL INFORMATION THAT PEOPLE RELY ON TO HELP THEM UNDERSTAND THEIR TYPE OF BREAST CANCER, THE IMPACT IT HAS ON THEIR LIVES AND INTRODUCES THEM TO THE COMMUNITY THAT IS AVAILABLE TO SUPPORT THEM. THE WEBSITE CONTAINS A RICH ARRAY OF RESOURCES FROM WRITTEN CONTENT TO VIDEOS, TO NEWS AND VIEWS ABOUT BREAST CANCER. THE WEBSITE REFLECTS LBBC'S COMMITMENT TO PROVIDING INFORMATION AND SUPPORT TO ALL PEOPLE IMPACTED BY BREAST CANCER, THOSE DIAGNOSED, THEIR FAMILIES AND CAREGIVERS AS WELL AS HEALTHCARE PROVIDERS.BLOGS: LBBC KNOWS THERE IS POWER IN TELLING PERSONAL STORIES AND SHARING EXPERIENCES, FOR BOTH THE WRITER AND THE READER. THE LBBC BLOG FEATURES STORIES OF WOMEN AND MEN IMPACTED BY BREAST CANCER AS WELL AS THOSE OF FAMILY MEMBERS, FRIENDS, AND CAREGIVERS. THESE FIRST-PERSON STORIES, IN PRINT AND BY VIDEO, SHARE THE LIVED EXPERIENCE OF BREAST CANCER.
  2. $487,425 spent. EDUCATIONAL PROGRAMS:CONFERENCES, SUMMITS, AND WEBINARS: IN PERSON AND VIRTUALLY DELIVERED EDUCATIONAL PROGRAMS PROVIDE INFORMATION IN AN ARRAY OF FORMATS - FROM PLENARY SESSIONS TO INTERACTIVE WORKSHOPS LED BY BREAST CANCER EXPERTS, THESE PROGRAMS HELP PARTICIPANTS MAKE INFORMED DECISION ABOUT THEIR CARE AND CONNECT WITH OTHERS. HEAR MY VOICE OUTREACH AND ADVOCACY PROGRAM: EVERY YEAR LBBC TRAINS A NEW HEAR MY VOICE CLASS COMPRISED OF WOMEN AND MEN LIVING WITH METASTATIC BREAST CANCER TO BE ADVOCATES IN THEIR COMMUNITIES, AS WELL AS ON A NATIONAL LEVEL AND TO PROVIDE PEER SUPPORT TO OTHERS LIVING WITH METASTATIC BREAST CANCER.YOUNG WOMEN'S INITIATIVE: LBBC IS IN THE FIRST YEAR OF A FIVE-YEAR COOPERATIVE AGREEMENT WITH THE CENTERS FOR DISEASE CONTROL AND PREVENTION. THIS FUNDING IS USED TO PROVIDE DEDICATED PROGRAMS AND SERVICES FOR WOMEN UNDER THE AGE OF 45 DIAGNOSED WITH BREAST CANCER. PROGRAMS INCLUDE SURVIVORSHIP SERIES FOR YOUNG WOMEN, YOUNG ADVOCATE PROGRAM AND PARENTING RESOURCES.
  3. $374,750 spent. FINANCIAL ASSISTANCE:LBBC FUND: ONE-TIME GRANTS OF UP TO $1,250 FOR WOMEN IN ACTIVE TREATMENT FOR BREAST CANCER WHO ARE FACING FINANCIAL HARDSHIPS. THESE GRANTS ARE AVAILABLE TO ANYONE LIVING IN THE UNITED STATES.
  4. $3.6 million spent. OTHER PROGRAM SERVICES:BREAST CANCER HELPLINE: STAFFED BY VOLUNTEERS WHO HAVE A PERSONAL HISTORY OF BREAST CANCER, THIS SERVICE PROVIDES PEER SUPPORT AND PRACTICAL INFORMATION THROUGH A CONFIDENTIAL EXCHANGE.CLOSED FACEBOOK COMMUNITIES: LBBC HOSTS CLOSED FACEBOOK COMMUNITIES TO ALLOW THE BREAST CANCER COMMUNITY TO EASILY ACCESS PEER SUPPORT. THERE ARE NOW THREE CLOSED COMMUNITIES FOR THESE GROUPS: YOUNG WOMEN, ALL AGES/ALL STAGES, AND HIGH RISK FOR BREAST CANCER.HEALTHCARE PROVIDER EDUCATION AND OUTREACH: LBBC OFFERS WEBINARS AND RESOURCES DIRECTLY TO HEALTHCARE PROVIDERS ON SPECIFIC TOPICS TO HELP THEM BETTER SUPPORT THEIR PATIENTS.GUIDES TO UNDERSTANDING BREAST CANCER AND METASTATIC BREAST CANCER SERIES: AVAILABLE ONLINE AND IN PRINT, ARE GUIDES THAT ADDRESS THE NEEDS OF PEOPLE WHO ARE NEWLY DIAGNOSED, IN TREATMENT, OR LIVING WITH METASTATIC DISEASE.SOCIAL MEDIA CONTENT AND LIVE WEBCAST PROGRAMS.
  5. $698,971 spent. THE NO ONE MISSED CAMPAIGN IS A NEW INITIATIVE FOR FY 2024. THE CAMPAIGN WAS LAUNCHED IN THE LUNG CANCER COMMUNITY IN 2021 AND LBBC IS LEADING ITS EXPANSION TO THE BREAST CANCER COMMUNITY. THE GOAL OF THE CAMPAIGN IS TO ENSURE THAT PATIENTS HAVE ACCESS TO INFORMATION ABOUT BIOMARKER TESTING IN ORDER TO IMPROVE DOCTOR-PATIENT DIALOGUE AND INCREASE TESTING. MOST OF THE FUNDS RAISED FOR THE CAMPAIGN GO TO DIRECT COSTS TO IMPLEMENT MARKETING AND ADVERTISING EFFORTS. IN ADDITION TO THE $750,000 RAISED FOR THE CAMPAIGN IN FY 2024, $700,000 WAS RAISED IN FY 2023 AND RESTRICTED FOR USE IN FY 2024.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since April 1994.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.