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ALS United Mid-Atlantic

EIN 23-2387205 · Ft Washington, PA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair69 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE MISSION OF ALS UNITED MID-ATLANTIC IS TO UNITE AND EMPOWER THE ALS COMMUNITY THROUGH A COLLABORATIVE APPROACH TO FOSTERING BOLD RESEARCH INITIATIVES, ADVANCE NATIONAL AND STATE ADVOCACY, AND PROVIDE COMPREHENSIVE CARE AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY ALS.

Income
$6.1 million
Spending
$6.2 million
Spent on programs
77%
Reserves
4.6 months of spending
Largest source of income
donations and private grants, 76%
Employees
37
Volunteers
210
Highest pay
$189,791, executive director

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 69 out of 100. Higher than 42% of charities in its peer group (health care, $1m to $10m).

  • Reserves

    20 of 35

    Spendable reserves would cover 4.6 months of spending.

  • Debt

    16 of 20

    It owes 17% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 2% of income.

  • Income trend

    10 of 15

    Income fell 1% on the year before.

  • Spending floor

    15 of 15

    77% of spending went to programs and raising each dollar of donations cost 13 cents.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 67% of charities in its peer group (health care, $1m to $10m).

  • Independent board

    25 of 25

    14 of 14 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $3.4 million spent. CARE SERVICES:ALS UNITED MID-ATLANTIC PROVIDES COMPREHENSIVE SUPPORT AND RESOURCES FREE OF CHARGE FOR PATIENTS DIAGNOSED WITH ALS AND THEIR LOVED ONES. OUR SERVICES INCLUDE SUPPORTING NINE MULTIDISCIPLINARY ALS CLINICS, IN HOME CARE GRANTS, DME, ASSISTIVE TECHNOLOGY, TRANSPORTATION, RAMPING, SUPPORT GROUPS, AND DEDICATED PROFESSIONAL STAFF SUPPORT TO EVERY PATIENT.
  2. $832,793 spent. EDUCATION:ALS UNITED MID-ATLANTIC PROVIDES AN ANNUAL ALS RESEARCH SYMPOSIUM; A COMPREHENSIVE WEBSITE RESOURCE WITH ACCURATE INFORMATION AND CARE SUPPORT VIDEOS; IN PERSON EDUCATION AT CLINIC, PATIENT HOMES, FACILITES, AND EVENTS; HARD COPY MATERIALS PROVIDED IN THESE SAME SETTINGS AND MAILED TO PATIENTS; AND SUPPORT GROUPS FOR NEWLY DIAGNOSED, CAREGIVERS, AND THOSE LIVING WITH ALS.
  3. $596,660 spent. RESEARCH:ALS UNITED MID-ATLANTIC FUNDS ALS RESEARCH IN THESE GENERAL AREAS: BASIC SCIENCE, CLINICAL RESEARCH, CLINICAL TRIALS, TRANSLATIONAL RESEARCH, AND STUDIES AIMED AT IMPROVING PATIENT QUALITY OF LIFE. FUNDING DECISIONS ARE RECOMMENDED BY THE RESEARCH COMMITTEE AND APPROVED BY THE BOARD OF DIRECTORS.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending January 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since April 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.