Platelet Disorder Support Association Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
PDSA IS DEDICATED TO ENHANCING THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH, AND SUPPORT.
- Income
- $3.0 million
- Spending
- $1.8 million
- Spent on programs
- 85%
- Reserves
- 55.1 months of spending
- Largest source of income
- donations and private grants, 81%
- Employees
- 8
- Volunteers
- 100
- Highest pay
- $222,234, president &
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 100 out of 100. Higher than 88% of charities in its peer group (health care, $1m to $10m).
Reserves
35 of 35Spendable reserves would cover 55.1 months of spending.
Debt
20 of 20It owes 5% of what it owns.
Living within its means
15 of 15Income exceeded spending by 39% of income.
Income trend
15 of 15Income rose 2% on the year before.
Spending floor
15 of 1585% of spending went to programs and raising each dollar of donations cost 3 cents.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 67% of charities in its peer group (health care, $1m to $10m).
Independent board
25 of 257 of 7 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (1)
- $1.6 million spent. NOW IN OUR 27TH YEAR, PDSA CONTINUES TO GROW AND EXPAND OUR REACH TO SUPPORT AND EDUCATE TENS OF THOUSANDS OF ITP PATIENTS AND FAMILIES AROUND THE WORLD. PDSA'S PATIENT AND CAREGIVER SUPPORT GROUPS EXPANDED TO 68 LOCATIONS IN THE U.S., AND CANADA; 80 MEETINGS TOOK PLACE IN VIRTUAL OR IN-PERSON FORMAT, WITH OVER 1,200 PATIENTS/CAREGIVERS PARTICIPATING. ITP CONFERENCE 2025, PDSA'S 25TH ANNUAL CONFERENCE, TOOK PLACE FOR THE FIRST TIME IN PHILADELPHIA, PA WITH MORE THAN 300 ATTENDEES REPRESENTING 15 COUNTRIES, 35 US STATES AND TWO CANADIAN PROVINCES. IN ADDITION, WE OFFERED A VIRTUAL CONFERENCE PLATFORM WITH MORE THAN 1,400 PDSA MEMBERS GIVEN ACCESS TO THE VIRTUAL CONTENT IN SEPTEMBER FOR ITP AWARENESS MONTH. PDSA ALSO HOSTED THE INTERNATIONAL ITP ALLIANCE MEETING WITH THIRTEEN GLOBAL AMBASSADORS REPRESENTING 12 COUNTRIES PARTICIPATED IN THE MEETING. PDSA STAFF AND OUR MEDICAL ADVISORS CONTINUED TO ANSWER PATIENT/CAREGIVER CALLS AND EMAILS VIA OUR ITP HELPLINE. THIS WAS ALL IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS ENROLLING OUR 200TH CHILD, COLLEGE SCHOLARSHIP PROGRAM, PRODUCING A 28-PAGE QUARTERLY NEWSLETTER AND MONTHLY E-NEWSLETTER, AND UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS. TO DATE, OUR INTERNATIONAL COLLECTION TOTALS 44 TRANSLATED BOOKLETS IN 17 DIFFERENT LANGUAGES. ON THE RESEARCH FRONT, PDSA STAFF ATTENDED, EXHIBITED AND PRESENTED EDUCATIONAL PROGRAMS AT A NUMBER OF SCIENTIFIC/MEDICAL MEETINGS INCLUDING AMERICAN SOCIETY OF PEDIATRIC HEMATOLOGY /ONCOLOGY (ASPHO), NATIONAL ORGANIZATION OF RARE DISORDERS (NORD) RARE DISEASE SUMMIT AND THE NORD LIVING RARE, LIVING STRONGER PATIENT/FAMILY FORUM, AND THE AMERICAN SOCIETY OF HEMATOLOGY/ONCOLOGY ANNUAL MEETING AND EXHIBITION (ASH). PDSA ALSO ORGANIZED AND HOSTED THE ASH ITP BREAKFAST AND ICON (ITP CONSORTIUM OF NORTH AMERICA) ANNUAL MEETING WITH 250 ATTENDEES. OUR ABSTRACTS ON SHARED DECISION-MAKING WAS PRESENTED AT ASH AND NORD. WE FUNDED THREE INNOVATIVE PATIENT-CENTERED ITP RESEARCH STUDIES IN 2025. IN PARTNERSHIP WITH THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD), PDSA ADMINISTERS THE ONE AND ONLY ITP NATURAL HISTORY STUDY PATIENT REGISTRY, AN IMPORTANT GLOBAL COLLECTION OF PATIENT DATA THAT AIMS TO INFORM ITP RESEARCH AND TREATMENT DEVELOPMENT. 2,500+ PATIENTS ARE ENROLLED IN THE REGISTRY TO DATE. PDSA WAS VERY ACTIVE ON THE ADVOCACY FRONT, WITH ITP PATIENTS, CAREGIVERS, BOARD MEMBERS, STAFF AND MEDICAL ADVISORS MEETING WITH OUR CONGRESSIONAL LEADERS. WE ORGANIZED OUR LARGEST HILL DAY IN WASHINGTON, DC, WITH 30 PATIENTS, CAREGIVERS AND MEDICAL ADVISORS MEETING WITH 34 CONGRESSIONAL OFFICES TO EDUCATE THEM ON THE UNMET NEEDS AND BURDEN OF DISEASE OF ITP PATIENTS AND URGING THEM TO SUPPORT FEDERAL PROGRAMS FOR ITP. NOW IN OUR 27TH YEAR, PDSA CONTINUES TO GROW AND EXPAND OUR REACH TO SUPPORT AND EDUCATE TENS OF THOUSANDS OF ITP PATIENTS AND FAMILIES AROUND THE WORLD. PDSA'S PATIENT AND CAREGIVER SUPPORT GROUPS EXPANDED TO 68 LOCATIONS IN THE U.S., AND CANADA; 80 MEETINGS TOOK PLACE IN VIRTUAL OR IN-PERSON FORMAT, WITH OVER 1,200 PATIENTS/CAREGIVERS PARTICIPATING. ITP CONFERENCE 2025, PDSA'S 25TH ANNUAL CONFERENCE, TOOK PLACE FOR THE FIRST TIME IN PHILADELPHIA, PA WITH MORE THAN 300 ATTENDEES REPRESENTING 15 COUNTRIES, 35 US STATES AND TWO CANADIAN PROVINCES. IN ADDITION, WE OFFERED A VIRTUAL CONFERENCE PLATFORM WITH MORE THAN 1,400 PDSA MEMBERS GIVEN ACCESS TO THE VIRTUAL CONTENT IN SEPTEMBER FOR ITP AWARENESS MONTH. PDSA ALSO HOSTED THE INTERNATIONAL ITP ALLIANCE MEETING WITH THIRTEEN GLOBAL AMBASSADORS REPRESENTING 12 COUNTRIES PARTICIPATED IN THE MEETING. PDSA STAFF AND OUR MEDICAL ADVISORS CONTINUED TO ANSWER PATIENT/CAREGIVER CALLS AND EMAILS VIA OUR ITP HELPLINE. THIS WAS ALL IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS ENROLLING OUR 200TH CHILD, COLLEGE SCHOLARSHIP PROGRAM, PRODUCING A 28-PAGE QUARTERLY NEWSLETTER AND MONTHLY E-NEWSLETTER, AND UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS. TO DATE, OUR INTERNATIONAL COLLECTION TOTALS 44 TRANSLATED BOOKLETS IN 17 DIFFERENT LANGUAGES. ON THE RESEARCH FRONT, PDSA STAFF ATTENDED, EXHIBITED AND PRESENTED EDUCATIONAL PROGRAMS AT A NUMBER OF SCIENTIFIC/MEDICAL MEETINGS INCLUDING AMERICAN SOCIETY OF PEDIATRIC HEMATOLOGY /ONCOLOGY (ASPHO), NATIONAL ORGANIZATION OF RARE DISORDERS (NORD) RARE DISEASE SUMMIT AND THE NORD LIVING RARE, LIVING STRONGER PATIENT/FAMILY FORUM, AND THE AMERICAN SOCIETY OF HEMATOLOGY/ONCOLOGY ANNUAL MEETING AND EXHIBITION (ASH). PDSA ALSO ORGANIZED AND HOSTED THE ASH ITP BREAKFAST AND ICON (ITP CONSORTIUM OF NORTH AMERICA) ANNUAL MEETING WITH 250 ATTENDEES. OUR ABSTRACTS ON SHARED DECISION-MAKING WAS PRESENTED AT ASH AND NORD. WE FUNDED THREE INNOVATIVE PATIENT-CENTERED ITP RESEARCH STUDIES IN 2025. IN PARTNERSHIP WITH THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD), PDSA ADMINISTERS THE ONE AND ONLY ITP NATURAL HISTORY STUDY PATIENT REGISTRY, AN IMPORTANT GLOBAL COLLECTION OF PATIENT DATA THAT AIMS TO INFORM ITP RESEARCH AND TREATMENT DEVELOPMENT. 2,500+ PATIENTS ARE ENROLLED IN THE REGISTRY TO DATE. PDSA WAS VERY ACTIVE ON THE ADVOCACY FRONT, WITH ITP PATIENTS, CAREGIVERS, BOARD MEMBERS, STAFF AND MEDICAL ADVISORS MEETING WITH OUR CONGRESSIONAL LEADERS. WE ORGANIZED OUR LARGEST HILL DAY IN WASHINGTON, DC, WITH 30 PATIENTS, CAREGIVERS AND MEDICAL ADVISORS MEETING WITH 34 CONGRESSIONAL OFFICES TO EDUCATE THEM ON THE UNMET NEEDS AND BURDEN OF DISEASE OF ITP PATIENTS AND URGING THEM TO SUPPORT FEDERAL PROGRAMS FOR ITP.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since August 1999.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.