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Epilepsy Foundation of Connecticut Inc

EIN 22-2535999 · Middletown, CT

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood86 out of 100GovernanceStrong90 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE MISSION OF THE EPILEPSY FOUNDATION OF CONNECTICUT IS TO SUPPORT PEOPLE IMPACTED BY EPILEPSY THROUGH ADVOCACY, EDUCATION, PROGRAMS AND CONNECTIONS TO ENSURE THAT THEY CAN LIVE THEIR BEST LIVES.

Income
$699,473
Spending
$716,921
Spent on programs
65%
Reserves
54.8 months of spending
Largest source of income
donations and private grants, 53%
Employees
10
Volunteers
60
Highest pay
$101,443, executive di

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 86 out of 100. Higher than 60% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 54.8 months of spending.

  • Debt

    20 of 20

    It owes 2% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 2% of income.

  • Income trend

    15 of 15

    Income rose 17% on the year before.

  • Spending floor

    8 of 15

    65% of spending went to programs and raising each dollar of donations cost 30 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 90 out of 100. Higher than 73% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    15 of 15 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $465,839 spent. THE EPILEPSY FOUNDATION OF CONNECTICUT: PROVIDED INFORMATION I.E. BROCHURES, MEDICATION INFORMATION, LEGAL RIGHTS, ADVOCACY, ETC. TO CLIENTS. CONDUCTED EDUCATIONAL PROGRAMS THAT SERVED PARTICIPANTS INCLUDING SCHOOL NURSES, ALLIED HEALTHCARE PROFESSIONALS, TEACHERS, CAMP COUNSELORS, LIFEGUARDS, EARLY CHILDCARE EDUCATORS, OTHER AGENCY AND EMPLOYEE TRAINING, SENIOR CITIZENS, TRANSIT COMPANIES, ELEMENTARY SCHOOL STUDENTS, MIDDLE SCHOOL STUDENTS, HIGH SCHOOL STUDENTS, POLICE OFFICERS, AND FIRST RESPONDERS. HOSTED EDUCATIONAL WEBINARS WITH PROFESSIONALS PROVIDING INFORMATION ABOUT VARIOUS EPILEPSY RELATED TOPICS. SUCCESSFULLY ADVOCATED FOR EMERGENCY LEGISLATION EXPANDING ACCESS TO AND REIMBURSEMENT OF TELEHEALTH SERVICES DURING THE COVID PANDEMIC. SPONSORED A CAMPING PROGRAM FOR CHILDREN AND TEENS WITH EPILEPSY. MANAGED A PARENT & FAMILY TELEPHONE SUPPORT NETWORK. MANAGED A FRIEND TO FRIEND TELEPHONE SUPPORT NETWORK. SPONSORED VIRTUAL SUPPORT GROUPS THROUGHOUT CONNECTICUT, SERVING DOZENS OF PEOPLE MONTHLY. PROVIDED TRANSPORTATION ASSISTANCE FOR CLIENTS WITH EPILEPSY. OFFERED THE HALYN MURTHA FAMILY ASSISTANCE FUND TO HELP PEOPLE WITH EPILEPSY IN NEED OF FINANCIAL ASSISTANCE TO COVER THE COST OF EPILEPSY TREATMENT, AND CARE SERVICES ASSOCIATED WITH THE CONDITION. ENROLLED CLIENTS IN THE HOBSCOTCH MEMORY & COGNITION PROGRAM. ENROLLED CLIENTS IN PROJECT UPLIFT PROGRAM THAT IMPROVED MENTAL HEALTH THROUGH MINDFULNESS AND COGNITIVE BEHAVIORAL SKILLS. THE EPILEPSY FOUNDATION OF CONNECTICUT: PROVIDED INFORMATION I.E. BROCHURES, MEDICATION INFORMATION, LEGAL RIGHTS, ADVOCACY, ETC. TO CLIENTS. CONDUCTED EDUCATIONAL PROGRAMS THAT SERVED PARTICIPANTS INCLUDING SCHOOL NURSES, ALLIED HEALTHCARE PROFESSIONALS, TEACHERS, CAMP COUNSELORS, LIFEGUARDS, EARLY CHILDCARE EDUCATORS, OTHER AGENCY AND EMPLOYEE TRAINING, SENIOR CITIZENS, TRANSIT COMPANIES, ELEMENTARY SCHOOL STUDENTS, MIDDLE SCHOOL STUDENTS, HIGH SCHOOL STUDENTS, POLICE OFFICERS, AND FIRST RESPONDERS. HOSTED EDUCATIONAL WEBINARS WITH PROFESSIONALS PROVIDING INFORMATION ABOUT VARIOUS EPILEPSY RELATED TOPICS. SUCCESSFULLY ADVOCATED FOR EMERGENCY LEGISLATION EXPANDING ACCESS TO AND REIMBURSEMENT OF TELEHEALTH SERVICES DURING THE COVID PANDEMIC. SPONSORED A CAMPING PROGRAM FOR CHILDREN AND TEENS WITH EPILEPSY. MANAGED A PARENT & FAMILY TELEPHONE SUPPORT NETWORK. MANAGED A FRIEND TO FRIEND TELEPHONE SUPPORT NETWORK. SPONSORED VIRTUAL SUPPORT GROUPS THROUGHOUT CONNECTICUT, SERVING DOZENS OF PEOPLE MONTHLY. PROVIDED TRANSPORTATION ASSISTANCE FOR CLIENTS WITH EPILEPSY. OFFERED THE HALYN MURTHA FAMILY ASSISTANCE FUND TO HELP PEOPLE WITH EPILEPSY IN NEED OF FINANCIAL ASSISTANCE TO COVER THE COST OF EPILEPSY TREATMENT, AND CARE SERVICES ASSOCIATED WITH THE CONDITION. ENROLLED CLIENTS IN THE HOBSCOTCH MEMORY & COGNITION PROGRAM. ENROLLED CLIENTS IN PROJECT UPLIFT PROGRAM THAT IMPROVED MENTAL HEALTH THROUGH MINDFULNESS AND COGNITIVE BEHAVIORAL SKILLS.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 1984.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.