Skip to the page content
Your donations
Passes our checks

Adenoid Cystic Carcinoma Researchfoundation

EIN 20-6745475 · Needham, MA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood89 out of 100GovernanceGood85 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE ADENOID CYCTIC CARCINOMA RESEARCH FOUNDATION (ACCRF) SUPPORTS RESEARCH INTO ADENOID CYSTIC CARCINOMA THAT WILL ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES AND A CURE FOR THE DISEASE.

Income
$1.2 million
Spending
$1.2 million
Spent on programs
84%
Reserves
21.3 months of spending
Largest source of income
donations and private grants, 77%
Employees
3
Highest pay
$150,000, executive dir.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 89 out of 100. Higher than 62% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 21.3 months of spending.

  • Debt

    20 of 20

    It owes 4% of what it owns.

  • Living within its means

    4 of 15

    Spending exceeded income by 5% of income.

  • Income trend

    15 of 15

    Income rose 1% on the year before.

  • Spending floor

    15 of 15

    83% of spending went to programs and raising each dollar of donations cost 7 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 85 out of 100. Higher than 40% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    25 of 25

    7 of 9 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. $909,594 spent. SCIENTIFIC RESEARCH: ACCRF SUPPORTS AND COORDINATES BASIC, TRANSLATIONAL AND CLINICAL RESEARCH THAT IS LIKELY TO LEAD TO BETTER OUTCOMES FOR PATIENTS WITH ADENOID CYSTIC CARCINOMA. THE FOUNDATION FACILITATES PROJECTS THAT SPAN BIOBANKING, MODEL DEVELOPMENT, DIAGNOSTICS, FUNCTIONAL STUDIES, TARGET IDENTIFICATION, PRECLINICAL DRUG SCREENING AND CLINICAL TRIALS.
  2. $110,296 spent. PATIENT EDUCATION: ACCRF PROVIDES MULTIPLE WAYS IN WHICH INDIVIDUALS WITH ADENOID CYSTIC CARCINOMA AND THEIR CAREGIVERS MAY LEARN ABOUT THEIR PATIENT JOURNEYS. BY BUILDING COMMUNITY THROUGH ITS WEBSITE, EMAILS, SOCIAL MEDIA, PATIENT MEETINGS WEBINARS AND OTHER COMMUNICATIONS, THE FOUNDATION PROVIDES KNOWLEDGE ABOUT TREATMENT OPTIONS, SUPPORTIVE NETWORKS AND HOPE FOR ITS PATIENTS.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2006.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.