Skip to the page content
Passes our checks

The Maryland Sickle Cell Disease Ssociation Incorporated

EIN 20-5906340 · Columbia, MD

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair64 out of 100GovernanceFair54 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

To improve the quality of life of those affected by sickle cell disease by promoting advocacy, education, research and excellent healthcare delivery.

Income
$481,769
Spending
$533,920
Spent on programs
71%
Reserves
2.6 months of spending
Largest source of income
donations and private grants, 100%
Employees
3
Volunteers
10
Highest pay
$18,370, executive director

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 64 out of 100. Higher than 24% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    10 of 35

    Spendable reserves would cover 2.6 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    4 of 15

    Spending exceeded income by 11% of income.

  • Income trend

    15 of 15

    Income rose 43% on the year before.

  • Spending floor

    15 of 15

    71% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Fair: 54 out of 100. Higher than 22% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    18 of 25

    4 of 4 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $20,431 spent. Community Support: This program supports the SCD community in a variety of ways. We provided scholarships for individuals living with SCD to attend the national convention of the Sickle Cell Disease Association of America (SCD), educational books and support for families during the holiday season. Over 100 persons benefited from this program.
  2. $210,198 spent. Patient Transportation: Our transportation program provides rides to persons with sickle cell disease (SCD) to their clinic appointments. Our clinic partners have found that transportation is a major barrier to persons accessing consistent health care and this has a devastating impact on the health outcomes of persons with SCD. We provided just over 198 rides in total.
  3. $75,662 spent. Sickle Cell Awareness: This is an ongoing program to raise awareness about SCD. We believe that raising awareness is the key to bringing about change to improve the lives of persons living with SCD. This program included expenditures on hosting our Annual Education Day Conference. Over 100 people attended the conference. We also update and use our website as a mechanism to raise awareness about SCD.
  4. $57,945 spent. Food Assistance: This program provides food assistance to individual with SCD and/or their families who have been assessed by a Community Health Workers as facing food insecurity. We provided assistance to 233 people.
  5. $13,058 spent. Emergency Assistance: This program provides financial assistance to individuals with SCD and/or their caregiver who are facing financial challenges. Most often these needs are for housing, food, and assistance with utility bills. We provided assistance to 23 people.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 2008.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.