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Cholangiocarcinoma Foundation

EIN 20-5776861 · Salt Lake City, UT

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood74 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE ORGANIZATION'S MISSION IS TO FIND A CURE AND IMPROVE THE QUALITY OF LIFE FOR CHOLANGIOCARCINOMA PATIENTS.

Income
$7.1 million
Spending
$7.2 million
Spent on programs
75%
Reserves
4 months of spending
Largest source of income
donations and private grants, 93%
Employees
32
Volunteers
250
Highest pay
$243,039, chief medica

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 74 out of 100. Higher than 36% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    20 of 35

    Spendable reserves would cover 4.0 months of spending.

  • Debt

    16 of 20

    It owes 21% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 1% of income.

  • Income trend

    15 of 15

    Income rose 3% on the year before.

  • Spending floor

    15 of 15

    75% of spending went to programs and raising each dollar of donations cost 20 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 64% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    25 of 25

    9 of 10 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. $2.0 million spent. RESEARCH THE ORGANIZATION ADVANCES SCIENTIFIC DISCOVERY THROUGH ITS RESEARCH FELLOWSHIP PROGRAM, CAREER DEVELOPMENT AWARD, AND INNOVATION GRANTS, WHICH COLLECTIVELY SUPPORT EMERGING INVESTIGATORS AND FUND TRANSFORMATIVE, HIGH- IMPACT STUDIES. IT ALSO CONVENED THE INTERNATIONAL CHOLANGIOCARCINOMA CONSENSUS CONFERENCE, UNITING GLOBAL EXPERTS TO ESTABLISH RESEARCH PRIORITIES AND ACCELERATE CLINICAL TRANSLATION. THESE EFFORTS ARE ANCHORED IN THE INTERNATIONAL CHOLANGIOCARCINOMA RESEARCH NETWORK (ICRN) - A WORLDWIDE COLLABORATION DRIVING PROGRESS IN ETIOLOGY, PREVENTION, EARLY DETECTION, AND TREATMENT. THROUGH ICRN SUBCOMMITTEES, THE ORGANIZATION LEVERAGES SHARED DATA AND CULTIVATES FUTURE LEADERS IN RESEARCH AND CARE.
  2. $3.4 million spent. PATIENT SUPPORT THE ORGANIZATION PROVIDES SUPPORT SERVICES TO INDIVIDUALS DIAGNOSED WITH CHOLANGIOCARCINOMA AND THEIR CAREGIVERS. THESE SERVICES INCLUDE ACCESS TO A NETWORK OF PATIENT ADVOCATES, PEER MENTORS, SUPPORT GROUPS, EDUCATIONAL WEBINARS, AND DISEASE-SPECIFIC INFORMATIONAL RESOURCES. THE GOAL OF THESE PROGRAMS IS TO IMPROVE QUALITY OF LIFE BY OFFERING RELIABLE INFORMATION, EMOTIONAL SUPPORT, AND GUIDANCE TO HELP PATIENTS AND FAMILIES NAVIGATE THEIR CARE IN COORDINATION WITH HEALTHCARE PROVIDERS

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since November 2007.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.