American Thrombosis and Hemostasisnetwork Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) IS A NONPROFIT ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLEEDING AND CLOTTING DISORDERS. WE'RE USING TECHNOLOGY TO SECURE DATA, ADVANCE KNOWLEDGE, TRANSFORM CARE--AND ULTIMATELY IMPROVE LIVES.
- Income
- $16.0 million
- Spending
- $17.0 million
- Spent on programs
- 82%
- Reserves
- -1.6 months of spending
- Largest source of income
- donations and private grants, 68%
- Employees
- 52
- Volunteers
- 5
- Highest pay
- $428,123, chief science officer
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Fair: 50 out of 100. Higher than 21% of charities in its peer group (medical research, $10m to $100m).
Reserves
0 of 35Spendable reserves are negative: it owes or has committed more than it holds.
Debt
16 of 20It owes 23% of what it owns.
Living within its means
4 of 15Spending exceeded income by 6% of income.
Income trend
15 of 15Income rose 18% on the year before.
Spending floor
15 of 1582% of spending went to programs and raising each dollar of donations cost 0 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 45% of charities in its peer group (medical research, $10m to $100m).
Independent board
25 of 254 of 5 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (5)
- $5.4 million spent. ATHN RESEARCH PROGRAMS:ATHN, IN CONJUNCTION WITH OUR 140+ HEMOPHILIA TREATMENT CENTERS (HTCS) ACROSS THE UNITED STATES, LEADS OR SUPPORTS A NUMBER OF PROGRAMS THAT LEVERAGE OUR STAFF EXPERTISE AND INFRASTRUCTURE.OUR LEADING 2024 RESEARCH PROGRAMS INCLUDE:ATHN TRANSCENDS - THE WORLD'S LARGEST NATURAL HISTORY STUDY OF PEOPLE AFFECTED BY NON-NEOPLASTIC HEMATOLOGIC CONDITIONS, WAS CREATED IN RESPONSE TO THE NATIONAL HEART, LUNG, AND BLOOD INSTITUTE'S (NHLBI) BLUEPRINT FOR FACTOR VIII INHIBITOR CLINICAL TRIALS. WITH THE PRIMARY AIM OF DETERMINING THE SAFETY OF ALL THERAPIES UTILIZED IN THIS POPULATION.ATHN TRANSCENDS PLANS TO ENROLL PARTICIPANTS INTO VARIOUS COHORTS BASED ON DIAGNOSIS. ATHN TRANSCENDS' STUDY ARCHITECTURE IS DESIGNED TO ENCOURAGE THE CREATION OF MODULES EXPLORING SPECIFIC SAFETY AND EFFECTIVENESS ENDPOINTS. IN ADDITION, THE ATHN RESEARCH BIOREPOSITORY, LOCATED AT VERSITI, BLOOD CENTER OF WISCONSIN, WILL STORE BIOSPECIMENS FROM ATHN TRANSCENDS FOR FUTURE RESEARCH.ATHN TRANSCENDS IS ORGANIZED INTO SEVEN (7) COHORTS: 1. HEMOPHILIA 2. VON WILLEBRAND DISEASE 3. THROMBOSIS/THROMBOPHILIA4. NON-NEOPLASTIC HEMATOLOGIC CONDITIONS5. BLEEDING NOT OTHERWISE SPECIFIED (NOS) 6. RARE BLOOD DISORDERS7. CONGENITAL PLATELET DISORDERS
- $4.1 million spent. COMMUNITY COUNTS CDC PUBLIC HEALTH SURVEILLANCE PROJECT (CDC):THIS FEDERAL PROJECT IS LED BY ATHN IN PARTNERSHIP WITH THE CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC) AND THE U.S. HEMOPHILIA TREATMENT CENTER NETWORK. ITS AIM IS TO COLLECT DATA ON PEOPLE WITH BLEEDING AND CLOTTING DISORDERS AND INCREASE KNOWLEDGE, MONITOR TRENDS, IDENTIFY RISK FACTORS, AND MORE. IN 2020, THE CDC RENEWED ATHN'S 5-YEAR COOPERATIVE AGREEMENT TO CONTINUE THE COMMUNITY COUNTS PROJECT AND:- STRENGTHEN COLLABORATION WITH TREATMENT CENTERS - CONTINUE DATA AND SPECIMEN COLLECTION AND TRANSFER- EVALUATE DATA QUALITY AND IMPROVEMENT- SHARE INFORMATION WITH THE COMMUNITYUSING ATHN SYSTEMS, OVER 453,000 SURVEILLANCE FORMS HAVE BEEN SUBMITTED TO CDC FOR MORE THAN 141,000 UNIQUE PATIENTS.
- $3.3 million spent. ATHN SYSTEMS:THIS PROGRAM COMPRISES THE SOFTWARE SYSTEMS AND CAPABILITIES REQUIRED AS A STEWARD OF A SECURE NATIONAL DATABASE USED TO SUPPORT CLINICAL OUTCOMES ANALYSIS, RESEARCH, AND PUBLIC HEALTH WITH REPORTING BY OVER 140 TREATMENT CENTERS, GOVERNMENT ENTITIES, AND RESEARCHERS.
- $618,935 spent. NATIONAL HEMOPHILIA PROGRAM COORDINATING CENTER (NHPCC):THE NHPCC SUPPORTS A COLLABORATIVE AND INTEGRATED NATIONAL INFRASTRUCTURE OF REGIONAL HEMOPHILIA NETWORKS TO PROMOTE ACCESS AND QUALITY OF CARE FOR PEOPLE WITH BLOOD DISORDERS. THE NHPCC IS FUNDED BY A HEALTH RESOURCES AND SERVICES ADMINISTRATION (HRSA) COOPERATIVE AGREEMENT THROUGH ATHN, ITS SPONSORING ORGANIZATION. ATHN RECEIVED A NEW FIVE-YEAR COOPERATIVE AGREEMENT IN JUNE 2022 CARRYING THE PROJECT INTO 2027. THE NHPCC'S QUALITY IMPROVEMENT PROGRAM USES EVIDENCE-BASED PRACTICES TO IMPROVE ACCESS TO CARE, TRANSITION OF CARE, PATIENT ENGAGEMENT, AND MORE. THIS PROGRAM HAS USED RESULTS OF THE FIRST-EVER NATIONAL PATIENT NEEDS ASSESSMENT, COMPLETED BY THE NHPCC, TO PRIORITIZE AND LAUNCH QUALITY IMPROVEMENT INITIATIVES AT HTCS ACROSS THE U.S.
- $630,611 spent. ATHN DATA QUALITY COUNTS IS HELPING ATHN AFFILIATES ENRICH THE ATHN DATASET. THE PROMISE OF USING DATA FOR RESEARCH, SURVEILLANCE, AND QUALITY IMPROVEMENT RELIES ON DATA THAT IS COMPLETE AND ACCURATE. ATHN DATA QUALITY COUNTS PROVIDES THE CRITICAL FUNDING NEEDED TO BUILD DATA MANAGEMENT CAPACITY ACROSS THE ATHN AFFILIATE NETWORK AND ENRICH THEATHNDATASET. SINCE OUR INCEPTION, ATHN HAS DISTRIBUTED OVER $8.1M IN DQC GRANTS TO OUR NETWORK OF HTCS.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since September 2007.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.