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Hemophilia and Bleeding Disordersof Alabama

EIN 20-4384653 · Eclectic, AL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair68 out of 100GovernanceGood74 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS SUFFERING FROM HEMOPHILIA AND OTHER BLEEDING DISORDERS.

Income
$335,362
Spending
$346,749
Spent on programs
92%
Reserves
1.6 months of spending
Largest source of income
fees for its services, 78%
Employees
2
Highest pay
$87,219, executive director

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 68 out of 100. Higher than 27% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    10 of 35

    Spendable reserves would cover 1.6 months of spending.

  • Debt

    20 of 20

    It owes 8% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 3% of income.

  • Income trend

    15 of 15

    Income rose 13% on the year before.

  • Spending floor

    15 of 15

    92% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 74 out of 100. Higher than 45% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    9 of 9 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $84,590 spent. HOLD AN ANNUAL MEETING FOR THE ENTIRE MEMBERSHIP TO COME TOGETHER TO FELLOWSHIP WITH OTHER FAMILIES IN ALABAMA WHO ARE AFFECTED WITH A BLEEDING DISORDER. THE ANNUAL MEETING IS ALSO AN OPPORTUNITY TO PROVIDE EDUCATION TO OUR MEMBERSHIP THROUGH KEYNOTE SPEAKERS AND INDUSTRY PARTNERS WHO ARE PROFESSIONALS AND EXPERTS ON BLEEDING DISORDERS. IT IS AN OPPORTUNITY FOR THE MANUFACTURERS OF FACTOR PRODUCTS TO MARKET NEW PRODUCTS AND SERVICES, SO THAT MEMBERS STAY ABREAST OF THE MOST CURRENT AND EFFECTIVE TREATMENTS ON THE MARKET.
  2. $80,636 spent. SPONSOR AN ANNUAL WEEKEND CAMP, CAMP HARVEST, AT CHILDRENS HARBOR IN ALEXANDER CITY, AL FOR THE ENTIRE MEMBERSHIP TO COME TOGETHER TO FELLOWSHIP WITH OTHER FAMILIES IN ALABAMA WHO ARE AFFECTED WITH A BLEEDING DISORDER. CAMP HARVEST IS ALSO AN OPPORTUNITY TO PROVIDE EDUCATION TO OUR MEMBERSHIP THROUGH SPEAKERS AND INDUSTRY PARTNERS WHO ARE PROFESSIONALS AND EXPERTS ON BLEEDING DISORDERS.
  3. $49,997 spent. SPONSOR AN ANNUAL SUMMER CAMP PROGRAM, CAMP CLOT NOT, AT CHILDRENS HARBOR IN ALEXANDER CITY, AL WITH A FULL CAMPING EXPERIENCE FOR CHILDREN THROUGHOUT THE STATE OF ALABAMA WHO SUFFER WITH BLEEDING DISORDERS. THE CAMP ENCOURAGES HEALTHY LIVING, HEALTHY JOINTS THROUGH DAILY EXERCISE, AND TEACHES CHILDREN HOW TO SELF INFUSE THEIR FACTOR PRODUCTS.
  4. Program Service Expenses 50,897, Grants and allocations 0, Revenue 42,740 SPONSOR AN ANNUAL WEEKEND FOR WOMEN, AT CHILDRENS HARBOR IN ALEXANDER CITY, AL FOR THE ADULT FEMALE MEMBERSHIP TO COME TOGETHER TO FELLOWSHIP WITH OTHER WOMEN IN ALABAMA WHO ARE AFFECTED WITH A BLEEDING DISORDER. THE ANNUAL WOMENS RETREAT IS ALSO AN OPPORTUNITY TO PROVIDE EDUCATION TO OUR MEMBERSHIP THROUGH SPEAKERS AND INDUSTRY PARTNERS WHO ARE PROFESSIONALS AND EXPERTS ON BLEEDING DISORDERS.
  5. Program Service Expenses 53,232, Grants and allocations 0, Revenue 44,701 PROVIDE AN OPPORTUNITY FOR PROGRAM SERVICE SPONSORSHIP TO CREATE EDUCATION OPPORTUNITIES FOR MEMBERS.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since May 2006.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

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