Chiari & Syringomyelia Research Foundation Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
SEARCHING FOR BETTER UNDERSTANDING, TREATMENTS AND CURES FOR CHIARI MALFORMATION (CM), SYRINGOMYELIA (SM), NEUROPATHIC PAIN AND RELATED DISORDERS
- Income
- $37,399
- Spending
- $68,934
- Reserves
- 47.6 months of spending
- Largest source of income
- other income, 62%
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (2)
- $67,564 spent. STRIVE FOR IMPROVED SURGICAL OUTCOMES FOR CHIARI MALFORMATION AND SYRINGOMYELIA PATIENTS INCLUDING MUCH LOWER INITIAL COMPLICATION RATES. ONGOING STUDIES: PRE- AND POST-OPERATIVE MORPHOLOGICAL CHARACTERISTICS ASSOCIATED WITH SYRINX OUTCOME AFTER POSTERIOR FOSSA DECOMPRESSION FOR CHIARI MALFORMATION- AUSTRALIA - APROXIMATELY 50% OF GRANT PAID IN 2025. WE WOULD EXPECT TO PAY THE REMAINDER IN 2026 - APROXIMATELY 47,000 - DATA FROM TWO CENTERS COLLECTED - MANUAL MORPHOMETRIC DATA COLLECTION IS PROCEEDING - "TRAINING THE AI BOT" FOR A SEPARATE ANALYSIS IS ONGOING - STATICAL ANALYSIS AND DETERMINATION OF "NEXT STEPS" LATER IN 2026 PUBLISH COMPLICATION RATES AND SURGICAL TECHNIQUES FROM LOW COMPLICATION RATE CENTERS TO SET A BENCHMARK FOR ALL CENTERS. -ONE CENTER NEAR SUBMISSION FOR PUBLICATION AND ONE IN THE DISCUSSION STAGE. UPDATING CLINICAL DATA FOR PUBLICATION ON SYRINX SHUNT PLACEMENT OUTCOMES.
- UNDERSTANDING THE BIOLOGY, CHEMISTRY, AND FLUID DYNAMICS OF POST TRAUMATIC SYRINGOMYELIA TO UNDERSTAND ALL FORMS OF SYRINGOMYELIA. -HOW IS CSF FLOW IN SYRINGOMYELIA PATIENTS IMPACTED BY HEART RATE, BLOOD PRESSURE AND RESPIRATION -POST TRAUMATIC SYRINX FORMATION IMPLICATIONS FROM LYMPHATIC DRAINAGE RECENT PUBLICATIONS: "HOW VOLUME CHANGES IN EPIDURAL SPACE DRIVES RESPIRATORY CEREBROSPINAL FLUID FLOW" - JOURNAL OF BIOMECHANICS - DECEMBER 2025 "CHIARI MALFORMATION DOES NOT OBSTRUCT CSF FLOW DURING COUGHS" - COMPUTERS IN MEDICINE - NOVEMBER OF 2025
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since March 2005.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.